Things that make chronic illness life easier

2024/12/8 Edited to

... Read moreNavigating daily life with a chronic illness often feels like a constant puzzle, but over time, I've discovered some incredible 'essentials' that truly make things easier. These aren't just items; they're genuine game-changers that help me conserve energy, manage symptoms, and maintain a bit more independence. I'm excited to share a few of my absolute must-haves, hoping they might spark ideas for your own journey! First up, let's talk about the unsung hero of my kitchen: a simple jar opener. This might seem like a small detail, but when you're dealing with hand pain, weakness, or fatigue, opening a stubborn jar can feel like an impossible task. Mine is a simple rubber gripper, but there are also under-cabinet versions that are fantastic. It saves me so much frustration and prevents unnecessary strain, meaning I have more energy for other things. It's a small investment with a huge payoff for my daily comfort. Another absolute lifesaver is my chronic illness cart. I literally call it my 'mobile command center' because it holds everything I might need within arm's reach, especially on days when moving around is just too much. It's usually stocked with essentials like tissues, all my daily medications in an organizer, and yes, even vomit bags for those unpredictable moments. But I've also personalized mine with a few extras: a water bottle, some easy-to-grab snacks, my favorite pain relief balm, and a small heating pad. Keeping these items close by means I don't have to get up repeatedly, which is crucial for energy pacing. When it comes to mobility, my forearm crutches have been transformative. I know mobility aids can feel like a big step, but finding the right one can unlock so much freedom. For me, forearm crutches offer excellent support without putting uncomfortable pressure on my underarms like traditional crutches. And a little secret? Mine are sparkly! Embracing an aid that's both functional and reflects a bit of my personality has honestly made me feel more confident and less self-conscious. Don't underestimate the power of personalizing your aids to make them feel more like an extension of you. Finally, having a well-packed hospital go bag ready to go at all times provides immense peace of mind. You never know when an emergency or unexpected admission might happen, and having this prepared reduces a huge amount of stress during an already difficult time. Beyond necessities like my wallet, phone charger, and important health documents, I always include a super soft blanket or scarf (hospital blankets are rarely comforting!), a comfortable change of clothes (pajamas are a must!), toiletries, earplugs and an eye mask for better sleep, and a few distractions like a book or a fully charged tablet. It makes those daunting hospital stays a little more bearable and ensures I have a few home comforts with me. These physical tools are incredibly helpful, but remember, the most essential tools are often self-compassion, patience, and advocating for your own needs.

14 comments

Ashsplash's images
Ashsplash

I have so many bags around me and my wheelchair is an extra holder 👏 Things upon things. I hear that 💜

Brittany Moore's images
Brittany Moore

Hi, fellow spoonie! Thanks for sharing tips and I already do all of these so it’s cool you also do these! 🥰 Hope you’re staying safe & healthy!

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