I have two surgeons going in to get endometriosis and a complex cyst out. I have already diagnosed endometriosis that runs in my family. My sister had stage 4 endometriosis removed. They will also be removing a complex cyst in my abdomen and sending it off for biopsy. All good vibes, prayers, etc are welcomed 🩷 Endometriosis is so common and underdiagnosed. I really hope that changes one day and I see some personal relief from however many excisions they decide to make it my tummy. I’m sorry this is so short but wanted to keep you updated. I have gone through so many health hurdles and there are other surgeries to come. Surgeries can be fatal for VEDS patients and that always scares me. I don’t heal fast either. I just hope I can get through them while still feeling like I can live life in peace and be a good mom.
Endometriosis is a condition that affects millions worldwide, yet it remains significantly underdiagnosed and misunderstood. Many women suffer silently, oftentimes for years, before receiving a proper diagnosis and treatment. I can truly relate to this struggle, as I come from a family where endometriosis runs deep, with severe cases like stage 4 impacting my sister. This experience has shed light on how crucial it is to raise awareness and push for better diagnostic protocols. Preparing for surgery to remove both endometriosis lesions and a complex cyst is daunting—especially when compounded by a connective tissue disorder such as Vascular Ehlers-Danlos Syndrome (VEDS). VEDS adds layers of complexity due to fragile blood vessels and tissues that heal more slowly. This reality made me approach my upcoming surgery with a mix of hope and nervousness, as even routine procedures carry increased risks. My approach has been to focus on thorough preoperative planning and ensuring my surgical team is fully aware of my VEDS diagnosis. Having two surgeons involved provides a reassuring layer of expertise and care. Post-surgery, I anticipate a slow recovery period, so I'm consciously preparing my home environment to support restful healing and minimize stress. The emotional toll is often overlooked but is very real. Sharing updates and connecting with others who understand these layers of health challenges provides comfort and strength. I find solace in community support and the collective good vibes and prayers sent my way. I remain hopeful that the excisions will bring tangible relief from chronic pain and improve my quality of life. Managing multiple surgeries while fulfilling responsibilities as a mom is a delicate balancing act, but holding onto the vision of recovery and peace keeps me motivated. For anyone facing similar battles with endometriosis or connective tissue disorders, you’re not alone. Prioritize self-care, communicate openly with your healthcare providers, and lean into your support network. Progress may be slow and uncertain at times, but each step forward is a testament to resilience and courage.
