moments like these i usually do not share of me so upset. overwhelmed, lost,desperate. the healthcare system sometimes makes us chronically ill folks feel worse than better from the lack of knowledge and education and resources they dont provide to patients as they dont have any. if you hav

day in the life as I go get iv hydration therapy as a chronic illness patients with multiple complex conditions, nothing but appointments day in and day out. remember: be your own advocate #potssyndrome #mcasawareness #ehlers danlos syndrome #gastroparesis #ileostomylife

What is Ehlers-Danlos Syndrome? EDS is a connective tissue disorder, and connective tissues are all over your body so it can affect any part of your body. There are 13 different types. I have the most common type, which is the hypermobility type, also known as Type 3. It mainly affects my joints a

MY Health Journey started as a young teen with many gastro problems it was a medical mystery to gastrenologist,specialist it felt like a guessing game after going on a lifestyle change of foods I was symptoms free for a bit until I was in my early 20's with bad symptoms that felt they came ov