Something has to give
moments like these i usually do not share
of me so upset. overwhelmed, lost,desperate.
the healthcare system sometimes makes us chronically ill folks feel worse than better from the lack of knowledge and education and resources they dont provide to patients as they dont have any.
if you have followed me on TikTok you may already know how many health conditions I have , lack of resources or help some doctors only can do so much, mediciad telling me to move is not a solution there are so many struggles I constantly fight for care and i just shut down.
i cant afford the help i can get maybe some actual help possibly, all out of pocket but as someone on low income there's no way I can afford it.
Cant go out of state for better care as NC mediciad policy's suck im tired of mediciad insurance. they wouldnt cover a thing out of pocket
I feel the system is just ruining my life more days go by. I still have hopes,dreams,ambitions to do things and want to be successful I dont want to be stuck like this much longer, there has to be things i can do to get off the system and earn a income, I want to feel like my own self.
the lack of doctors not listening to my troubles with nutrition, hydration, ostomate care. they do what they can and just send me on my way. its mentally & physically exhausting. fighting for you're care its a full time job. #patientadvocate #chronicillness #healthcare #healthcarefailure
Living with multiple chronic illnesses comes with daily battles that go beyond the physical symptoms. From my personal experience, the healthcare system often seems unprepared to support complex needs, leaving patients feeling neglected and overwhelmed. One of the toughest challenges is dealing with limited Medicaid coverage, especially in states like North Carolina where policies can restrict access to out-of-state care or specialized treatments. For individuals relying on Medicaid and living on low income, the prospect of paying out-of-pocket for necessary assistance or therapies can be daunting and sometimes impossible. Doctors may do their best within their constraints, but the lack of communication and thorough understanding of issues like nutrition, hydration, and ostomate care can leave patients feeling dismissed. This leads to a cycle of unmanaged symptoms and mounting frustration, which catastrophically impacts mental health. Advocating for oneself becomes a full-time job, often exhausting both mentally and physically. Connecting with patient advocacy groups and chronic illness communities online has been invaluable for emotional support and sharing resources. Educating oneself about available programs, alternative therapies, and local non-profits can sometimes open doors to unexpected help. Despite these hardships, maintaining hope and ambition is essential. Small goals towards regaining independence, like exploring remote work or freelance opportunities suited to one’s abilities, can put patients back in control of their lives. For anyone facing similar struggles, remember that you are not alone, and pushing for better care and understanding is worth the effort. Sharing your story might not only help you but also illuminate the very real gaps in our healthcare system that need urgent attention.
See more comments