Having gone through the intense and emotional process of a liver transplant for a baby with biliary atresia, I can share some personal insights that may help families facing similar challenges. Biliary atresia is a rare condition that blocks bile ducts, leading to liver damage, making early diagnosis and timely intervention crucial. The waiting period before the transplant is often filled with uncertainty and stress. Regular lab days are essential for monitoring liver function and overall health, but they can be overwhelming for both parents and infants. Staying organized by keeping track of lab results and symptoms helped us communicate effectively with our medical team. Post-transplant care is another critical phase. It involves managing medications like immunosuppressants to prevent rejection and frequent check-ups to monitor recovery. Establishing a routine that balances medical appointments with quality family time made a big difference in our baby's healing process. Connecting with support groups for liver transplant families gave us emotional support and valuable advice from those who understood the journey firsthand. Sharing experiences, fears, and hopes with others helped ease the isolation that sometimes comes with such a rare diagnosis. If you are navigating this path, remember to prioritize your baby's comfort and celebrate small milestones. Every lab day and doctor visit brings you one step closer to a healthier future. Patience, love, and a strong support system are your greatest allies in this transplant journey.
0 saved
13
3
2/16 Edited to
3 comments
Related posts

#biliaryatresiafighter #liverdisease #livertransplant #medicalmom
2 likes

Pediatric nursing
#nursingstudent #nursingschool #goodnotes #goodnotestemplates #ipad
62 likes

Before transplant… we were just trying to survive. After transplant… he gets to LIVE. Because one person said yes. In honor of Stetson and his hero, we’re walking to raise money for kids still fighting liver disease. Join us in supporting the American Liver Foundation and be part of someone els
3 likes

parasite 🦠 cleanse 🪱 🧼 #guthealth #parasite #cleanliving #healthforall
107 likes



Medical surgical cheat sheets ✨🍋✨
#nursingstudent #nursing #nursingstudentlife #nursingnotes #nursing
149 likes

Before transplant… we were just trying to survive. After transplant… he gets to LIVE. Because one person said yes. In honor of Stetson and his hero, we’re walking to raise money for kids still fighting liver disease. Join us in supporting the American Liver Foundation and be part of someone els
0 likes

#biliary atresia#luchando dia a dia#camila 🌸
3 likes



Mastering TEF/EA: From Pathophysiology to Care
Tracheoesophageal Fistula (TEF) and Esophageal Atresia (EA) are critical congenital anomalies arising from failed foregut separation during embryonic development. Type C remains the most prevalent variant, characterized by a proximal blind pouch and a distal fistula. This anatomical disruption trig
33 likes



3 likes



Biliary atresia awareness
#liver #liverfailure #biliaryatresia #medicaltiktok #medicalmom #warrior #medicalwarrior #mom
3 likes

#livertransplant #livertransplantsurvivor #thriving #hope #biliaryatresia
3 likes



muscle atrophy
I'm sad, I've lost so much weight since surgery and learned I was in double organ failure heart and liver. A year ago I started my transplant journey, which we all know now it was denied. I miss my body when I was strong, working full time doing yoga multiple times a week. I miss so many t
4 likes



Did a lot this year🤍
#my2024 #2024recap #lemon8contest this year definitely was the hardest , I had my daughter in June , in August we were told she had biliary atresia and she had to get a surgery, at the end of August my house was involved in a shootout that happened outside in the neighborhood and I got shot i
6 likes



Down syndrome
Down syndrome is a genetic condition caused by the presence of an extra copy of chromosome 21 (called trisomy 21). It leads to characteristic physical features, mild to moderate intellectual disability, and developmental delays. Common features include a flat facial profile, upward-slanting eyes, l
16 likes



🩺 Nursing Notes You’ll Love!📝
Here are some amazing nursing notes from @NursingStudyCafe on Instagram! These are super detailed and perfect for studying. If you’re looking for more notes and resources like these, make sure to go follow her for the rest and so much more! 🙌🏾💉 📖 Let’s support and share the love within the nursi
424 likes

@Post Malone #liverfailureawareness #biliaryatresiafighter #biliaryatresiaawareness #livertransplant #livertransplantjourney #liverfailure #hospitallife
1 like

I thank the universe for you 🥰
#nicu #nicubaby #duodenalatresia #nicumama
2 likes

There is so many more details to Stetson’s story. But this is the long story short feel free to ask any questions. We would love to share awareness on his condition. #liverfailureawareness #biliaryatresiafighter #biliaryatresiaawareness #liverdisease #livertransplant #livertransplantjourn
0 likes

Me + Uworld
When it’s Christmas break but you still have a shelf to study for😭 #studyy #unaesthetic #medicalschool #medschool #medicalstudentlife
5 likes

Big Dreams & Endless Hope
Hi, I’m Kristle 💖 Mama to my two wonderful girls, Kylie & Kassie! My youngest, Kassie, is a brave little fighter waiting for a liver transplant while battling biliary atresia. Our journey is filled with love, challenges, and hope, and I’m grateful to share it with you 💕 #biliaryatresia #ra
4 likes

#biliaryatresia #ba #liverdisease #medicalmama #chronicillness #hospital
0 likes

My first lemon8 post 🫶✨
Hey Friend!! I am so happy you're here and I can't wait to connect and get to know you better. A little more about me.. I'm Ashley I am a wife and mama to 3 kiddos(2 boys and recently adopted a teen girl😊) I’m a newish homeschool mom and so far it’s been a learning curve but we lo
1 like

#biliaryatresia #medicalmom #medicalmomma #biliaryatresiaawareness #medicalmama #feedingtubeawareness #raredisease
0 likes

#medicalmom #medicaltiktok #biliaryatresia #biliaryatresiafighter #raredisease #rarediseaseawareness #jaundice #momtok #medicalmomlife
0 likes

#stetsonstrong #livertransplant #biliaryatresia #liverdisease #liverfailure
1 like



Why I Turned My iPad Air into a Kindle
👩🏻As a busy mom of two and an avid reader, I decided to turn my iPad Air into a Kindle instead of purchasing a separate e-reader. 👩🏻💻The decision was simple once I discovered the Pocketbook app. This app has transformed my iPad into a seamless Kindle e-reader, and here's how. 📓Unlimited
1184 likes

A Nurse, Mom, Daughter, and Friend Needs Your Help 🙏🏽
Please consider helping this amazing woman, who is a pillar in her community, always organizing drives for lower-income families to get essential items. She works tirelessly at a hospital, saving lives every day, even while facing her own challenges. She urgently needs a small portion of a livin
0 likes

microtia #fyp #fgteev #sad #nostalgia #sad
5 likes



metabolic disorders (chronic conditions)
#nursingschool #nursingstudent
57 likes

#biliaryatresia #liverdisease #liverfailure #hospital
1 like

OUR BRAND!
Always looking for the #Tricuspidatresia #TA #heartdisease brand!
2 likes

Pediatric Nursing
#nursingstudent #goodnotes #nursingschool #nursing #ipad
75 likes

Total and Permanent Disability Discharge
👍Pros : Discharged student debt
0 likes

#Stetsonstrong #septic #biliaryatresia #liverfailure #hospital
1 like

#liverfailureawareness #biliaryatresiafighter #biliaryatresiaawareness #liverdisease #livertransplant #livertransplantjourney #liverfailure #hospitallife
0 likes

#medicalmom #tubie #biliaryatresia #medicalmama #tubielife #medicalmama
0 likes

My Biliary Atresia surviver
1 like

All jokes aside, this has been the hardest thing we have gone through. We would love to share more awareness for Biliary Atresia. #liver #biliaryatresia #liverhealth #liverfailure #medicaltiktok #medicalmom
0 likes

#medicalmama #medicaltiktok #medicalmom #biliaryatresia #liverdisease #kasai
0 likes

#stetsonstrong #biliaryatresia #liverdisease #BA #biliaryatresiafighter #waitingonatransplant #liver #transplant #liverfaliure
0 likes

Hoot topic on the NCLEX right now!⬇️
Hyper vs Hypobilirubinemia Let’s break down bilirubin! 🩸 🧠 Patho first: Bilirubin comes from RBC breakdown → the liver converts it into a form the body can excrete. So anytime the liver can’t process it OR there’s too much RBC breakdown → bilirubin rises. ⸻ 🔥 Hyperbilirubinemia Th
19 likes

#stetsonstrong #biliaryatresia #liverdisease #liverteansplant #transplant
3 likes

Larry be Larrying
TikTok app made me post this just to save without the watermark, resulting in none of my writing or hashtags getting sent with it! Posting it here too for my TA community! #TA #tricuspidatresia #heartdisease #depressionisreal #nuerodivergant
1 like

#biliaryatresia #livertransplant #liverdisease #liverfailure
0 likes



Mother Newborn Exam 1 Review
34 likes



Student; Notion or Google Sheets?
📊 If it’s not organized, it’s not getting done. I built a whole system in Notion to track my classes, apps, MCAT, and even my habits… and honestly? It changed everything. Google Sheets helps me plan my week by energy, not guilt. 💡 Use templates to save time 💡 Add emojis for quick scanning 💡 Al
107 likes

Cardio Catheterization
This is one of the many Cath surgeries I’ve had since the age of 12, I started having AFIB a week before my 12th birthday and got my first pacemaker a week before my 16th birthday. Not everyone with Tricuspid Atresia will have AFIB but it does come with many other comorbidity’s and everyone is d
0 likes



Study with me as a New Nursing Student!! 🤍
Hey besties 🥰 Let’s get some studies done today! So far for this semester, I have been working hard to become “bestie” with Pathophysiology 😩if you know, you know! It hasn’t been easy but today I’m focusing on everything that has to do with the GI (gastrointestinal) mainly the Kidney & eve
23 likes

#newtolemon8 #nclexprep #nurselifestyle #nigeriantiktok #nursingstudentessentials
2 likes
See more

YAYAYAYAYYYYY!!!!!!❤️ congratulations you deserve it!!!