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... Read moreHaving gone through the intense and emotional process of a liver transplant for a baby with biliary atresia, I can share some personal insights that may help families facing similar challenges. Biliary atresia is a rare condition that blocks bile ducts, leading to liver damage, making early diagnosis and timely intervention crucial. The waiting period before the transplant is often filled with uncertainty and stress. Regular lab days are essential for monitoring liver function and overall health, but they can be overwhelming for both parents and infants. Staying organized by keeping track of lab results and symptoms helped us communicate effectively with our medical team. Post-transplant care is another critical phase. It involves managing medications like immunosuppressants to prevent rejection and frequent check-ups to monitor recovery. Establishing a routine that balances medical appointments with quality family time made a big difference in our baby's healing process. Connecting with support groups for liver transplant families gave us emotional support and valuable advice from those who understood the journey firsthand. Sharing experiences, fears, and hopes with others helped ease the isolation that sometimes comes with such a rare diagnosis. If you are navigating this path, remember to prioritize your baby's comfort and celebrate small milestones. Every lab day and doctor visit brings you one step closer to a healthier future. Patience, love, and a strong support system are your greatest allies in this transplant journey.

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Carla D Thomas

Lucky boy!!

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𝐒𝐮𝐛 𝐈𝐧 𝐀 𝐓𝐮𝐛 𝐅𝐨𝐫 𝐖𝐞𝐢𝐠𝐡𝐭 𝐋𝐨𝐬𝐬🥪
❦ 𝐓𝐡𝐢𝐬 𝐫𝐞𝐜𝐢𝐩𝐞 𝐢𝐬 𝐚 𝐉𝐞𝐫𝐬𝐞𝐲 𝐌𝐢𝐤𝐞’𝐬 𝐬𝐮𝐛 𝐢𝐧 𝐚 𝐭𝐮𝐛 𝐝𝐮𝐩𝐞❤️ ✧ 𝐈𝐧𝐠𝐫𝐞𝐝𝐢𝐞𝐧𝐭𝐬 ❤︎︎ 𝐈𝐜𝐞𝐛𝐞𝐫𝐠 𝐥𝐞𝐭𝐭𝐮𝐜𝐞, 𝐬𝐡𝐫𝐞𝐝𝐝𝐞𝐝 ❤︎︎ 𝟒 𝐬𝐥𝐢𝐜𝐞𝐬 𝐨𝐟 𝐭𝐮𝐫𝐤𝐞𝐲 𝐥𝐮𝐧𝐜𝐡 𝐦𝐞𝐚𝐭 ❤︎︎ 𝟐 𝐬𝐥𝐢𝐜𝐞𝐬 𝐜𝐨𝐨𝐤𝐞𝐝 𝐭𝐮𝐫𝐤𝐞𝐲 𝐛𝐚𝐜𝐨𝐧 𝐨𝐫 𝐛𝐚𝐜𝐨𝐧 𝐨𝐟 𝐜𝐡𝐨𝐢𝐜𝐞, 𝐜𝐫𝐮𝐦𝐛𝐥𝐞𝐝 ❤︎︎ 𝟏/𝟒 𝐜𝐮𝐩 𝐣𝐚𝐥𝐞𝐩𝐞𝐧̃𝐨 𝐩𝐞𝐩𝐩𝐞𝐫 ❤︎︎ 𝟏/𝟒 𝐜𝐮𝐩 𝐛𝐚𝐧𝐚𝐧𝐚 𝐩𝐞𝐩𝐩𝐞𝐫𝐬, 𝐬𝐥𝐢𝐜𝐞𝐝 ❤︎︎ 𝟏/𝟐 𝐚𝐯𝐨𝐜𝐚𝐝𝐨, 𝐬𝐥𝐢𝐜𝐞𝐝 ❤︎︎
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

524 likes

PreNursing Student
#prenursing #digestivesystem #medicalterminology
Tijuana E.

Tijuana E.

545 likes

#biliaryatresia #medicalmom #medicalmomma #biliaryatresiaawareness #medicalmama #feedingtubeawareness #raredisease
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

Language Study Template (Notion) - Part 2 Tutorial
✨Perfect for Chinese learners (but work for any language too). Start your language study journey today with structure, creativity and motivation all in one place. Download now at 🛒missydizzy.gumroad.com #notiontemplate #studytemplates #chineselearning #notionstudent #learnlanguage
Missy Dizzy

Missy Dizzy

2 likes

Take a good care of yourself, maintain personal Health and go for check up immediately you feel any symptoms #guthealth #healthylifestyle #functionalnutrition #wellness #healthyfood #guthealthmatters #vegan #ibs #probiotics #guthealing
Eforganics

Eforganics

12 likes

I thank the universe for you 🥰
#nicu #nicubaby #duodenalatresia #nicumama
Chelsea Swisher

Chelsea Swisher

2 likes

Mother Newborn Exam 1 Review
CherryCheckups

CherryCheckups

34 likes

A person holds up denim shorts that are now too large, with 'muscle atrophy' text overlay and a yellow tulip graphic. Another person's torso is partially visible in the reflection.
A person with orange hair, glasses, and a nasal cannula looks up, with a vintage record player graphic superimposed and motivational text on the wall.
A person with orange hair, glasses, and a nasal cannula looks up, with pixelated sunglasses graphic superimposed and motivational text on the wall.
muscle atrophy
I'm sad, I've lost so much weight since surgery and learned I was in double organ failure heart and liver. A year ago I started my transplant journey, which we all know now it was denied. I miss my body when I was strong, working full time doing yoga multiple times a week. I miss so many t
🐲dragonchild1988🫀♿🦓

🐲dragonchild1988🫀♿🦓

4 likes

Judy Hulett3712

Judy Hulett3712

1 like

#stetsonstrong #livertransplant #biliaryatresia #liverdisease #liverfailure
Foxy Mama Bailey

Foxy Mama Bailey

1 like

Larry be Larrying
TikTok app made me post this just to save without the watermark, resulting in none of my writing or hashtags getting sent with it! Posting it here too for my TA community! #TA #tricuspidatresia #heartdisease #depressionisreal #nuerodivergant
Kaileigh

Kaileigh

1 like

OUR BRAND!
Always looking for the #Tricuspidatresia #TA #heartdisease brand!
Kaileigh

Kaileigh

2 likes

overnight oats 46g protein + creatine 🤌🏼
#mealprep #highproteinrecipe #protein #overnightoats #proteinbreakfast
stef🐆

stef🐆

195 likes

#medicalmom #medicaltiktok #biliaryatresia #biliaryatresiafighter #raredisease #rarediseaseawareness #jaundice #momtok #medicalmomlife
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

Charge Syndrome Mommy💙
CHARGE syndrome - Rare Awareness Rare Education Portal CHARGE syndrome is a rare genetic disorder named after common features: Coloboma (eye defect), Heart defects, Atresia choanae (blocked nasal passages), Retarded growth/development, Genital abnormalities, and Ear abnormalities, causing a range
Makayla Halfhill🤍

Makayla Halfhill🤍

2 likes

#stetsonstrong #biliaryatresia #liverdisease #liverteansplant #transplant
Foxy Mama Bailey

Foxy Mama Bailey

3 likes

microtia #fyp #fgteev #sad #nostalgia #sad
Lemon8er

Lemon8er

4 likes

Big Dreams & Endless Hope
Hi, I’m Kristle 💖 Mama to my two wonderful girls, Kylie & Kassie! My youngest, Kassie, is a brave little fighter waiting for a liver transplant while battling biliary atresia. Our journey is filled with love, challenges, and hope, and I’m grateful to share it with you 💕 #biliaryatresia #ra
kristlepmcneal

kristlepmcneal

4 likes

Ashukaru

Ashukaru

4 likes

#medicalmom #tubie #biliaryatresia #medicalmama #tubielife #medicalmama
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

#liverfailureawareness #biliaryatresiafighter #biliaryatresiaawareness #liverdisease #livertransplant #livertransplantjourney #liverfailure #hospitallife
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

#stetsonstrong #biliaryatresia #liverdisease #BA #biliaryatresiafighter #waitingonatransplant #liver #transplant #liverfaliure
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

𝐓𝐡𝐢𝐧𝐠𝐬 𝐈 𝐀𝐭𝐞 𝐓𝐨 𝐋𝐨𝐬𝐞 𝟏𝟖𝐥𝐛𝐬 𝐓𝐡𝐢𝐬 𝐌𝐨𝐧𝐭𝐡🏋🏾‍♀️✨
#weightlosstips #weightlossprogress # #weightlossfoodideas #mealp #mealprepideas #highprotein #highproteinrecipe #weightlossroutine #cobbsalad #englishmuffinpizzas
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

1186 likes

#Stetsonstrong #septic #biliaryatresia #liverfailure #hospital
Foxy Mama Bailey

Foxy Mama Bailey

1 like

#biliaryatresia #liverdisease #liverfailure #hospital
Foxy Mama Bailey

Foxy Mama Bailey

1 like

School is hard? Support makes it easier ✅ proctored exam prep. HESI . TEAS . WGU helping students stay calm,prepared and confident #students #nursing #nursingstudenttips #exams #teasprep
GetHelpWithProctoredExam

GetHelpWithProctoredExam

6 likes

All jokes aside, this has been the hardest thing we have gone through. We would love to share more awareness for Biliary Atresia. #liver #biliaryatresia #liverhealth #liverfailure #medicaltiktok #medicalmom
Foxy Mama Bailey

Foxy Mama Bailey

0 likes

𝐎𝐮𝐭𝐝𝐨𝐨𝐫 𝐄𝐚𝐬𝐭𝐞𝐫 𝐃𝐞𝐜𝐨𝐫𝐚𝐭𝐢𝐨𝐧𝐬 2026
𝐼𝑡'𝑠 𝑡𝑖𝑚𝑒 𝑓𝑜𝑟 𝐸𝑎𝑠𝑡𝑒𝑟. 𝑇𝑖𝑚𝑒 𝑡𝑜 𝑑𝑒𝑐𝑜𝑟𝑎𝑡𝑒 𝑡ℎ𝑒 𝑜𝑢𝑡𝑑𝑜𝑜𝑟𝑠. 🐥 #easter #easter2026 #easterdecor #easterdecor2026 #eastervibes
𝑴𝒊𝒌𝒆 𝑮��𝒆𝒆 3 😎

𝑴𝒊𝒌𝒆 𝑮𝒆𝒆 3 😎

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