Livedo Reticularis is a mottled, net-like pattern that occurs on the skin with autoimmune conditions, or vascular issues. It can also be benign and occur when someone is cold, but mine is always there

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GI followup tomorrow. Praying for answers rather than more tests 🙏🏻 #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle #lupuswarrior

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#onthisday still as true as ever… the dual reality of being a mom living with autoimmune diseases 🫶 #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Lupus doesn’t slow down just because I’m a mom. But, I’ll do everything in my power to be sure that my kiddo has the absolute best childhood. He’s been dying to try out his new net, so lake day it was. I alternated between a shelter, umbrella, and hat to shade my face and of course had on long slee

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My most recent trips should be a Benlysta commercial! I did SO much better in the past few months than I did the past few years thanks to Benlysta #benlysta #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Go team spoonbob, and warrior video 🎉 @Jess | Lupus Life💜🦋 @Ashley Lou, RN | Lupus Warrior @Brandon - Lupus SLE @mallysonwags

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My infusion center for Benlysta #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle #lupuswarrior

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What does a rheumatologist checkup look like for a Lupus patient? Today was my 19 month checkup after being diagnosed and she upped my methotrexate. #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle #lupuswarrior

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Constantly humbled by my rheumatologist, lol. #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle #lupuswarrior

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When you’re not feeling your appointment today, or the next day, or Monday… so many appointments when you’re chronically ill 😂 #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle #lupuswarrior

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Sharing the warrior video in the meeting with Senator Ashley Moody’s legislative assistant 💜. Yes, I bawled through this meeting. I am incredibly sensitive to others’ emotions, so all warrior stories make me cry #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Recap of yesterday on Capitol Hill for the Lupus Advocacy Summit. What the meetings looked like, what the asks were, and how it went overall 💜 #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Lupus 2026 Advocacy Summit at Capitol Hill! What an empowering, important, and emotional day! I am so incredibly honored to have been here alongside such Lupus warriors 💜 #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Lupus Heroes Celebration at the 2026 Lupus Advocacy Summit @Jess | Lupus Life💜🦋 #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Day Two Recap of the 2026 Lupus Advocacy Summit in Washington, DC #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Day two of the 2026 Lupus Advocacy Summit 💜 #lupusadvocacy #lupuswarrior🦋💜 #lupus #autoimmunedisease #sle

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Lupus Advocacy Summit Tour 🎉 #housetour #lupus #lupuswarrior🦋💜 #sle #lupusadvocacy

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Lupus Advocacy Summit Tour 🎉 #housetour #lupus #lupuswarrior🦋💜 #sle #lupusadvocacy

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I’m so incredibly grateful to be here alongside so many Lupus warriors 🦋 #lupus #lupuswarrior🦋💜 #sle #autoimmunedisease #lupusadvocacy

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I’m exhausted, but DC here I come 💜🦋 #lupus #lupuswarrior🦋💜 #sle #autoimmunedisease #lupusadvocacy

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Heather - Living with Lupus 🦋