An entire oral + tube feed for my 6 year old with special needs. The light of my life and most dominant source of peace. I love being your mom, Beckham. ❤️

#cerebralpalsy #nonverbal #tubefed #miraclebaby #brainbleed #disabledchild #kidsoftiktok #momsoftiktok #vlog #familyvlog #specialneeds #nicu #nicubaby #gtube

2025/9/2 Edited to

... Read moreFeeding children with special needs, especially those who require tube feeding such as gastrostomy tubes (G-tubes), can be a challenging yet rewarding experience for families. Many parents often worry about their child's ability to eat by mouth due to conditions like cerebral palsy or brain injuries that cause feeding difficulties and impair oral motor skills. However, with the right therapy and support, some children initially tube-fed can gradually regain or develop some oral feeding abilities. Oral feeding alongside tube feeding can provide multiple benefits, not just nutritional but also social and psychological. Eating by mouth helps with oral motor development, sensory experiences, and can enhance communication skills, even for nonverbal children. Speech and occupational therapists typically play crucial roles in facilitating safe oral intake and assessing swallowing function to reduce risks such as choking or aspiration. The emotional journey for parents like the one described is often filled with hope and determination, as they balance the need for adequate nutrition through tube feeding with the dreams of their child experiencing eating orally. Milestones such as a disabled and tube-fed child beginning to eat by mouth, even partially, are often regarded as miracles and bring immense joy and relief. It is important for families to receive comprehensive care and community support, including special needs advocacy groups and online forums dedicated to #cerebralpalsy, #tubefeeding, and #nonverbal children. Sharing stories and experiences can reduce feelings of isolation and provide practical advice. Nutritionists, medical professionals, and therapists can tailor the feeding regimen to each child’s unique abilities and health requirements. This journey exemplifies love, resilience, and the pursuit of peace for families navigating the complexities of special needs care. By understanding the diverse feeding modalities and supporting oral feeding attempts when possible, families can enhance their child’s quality of life and create fulfilling mealtime experiences together.

13 comments

bre's images
bre

awwww he's doing a great job but so are you mamma you are doing a great job as well just wanna make sure a hard working mamma knows

Bri❤️'s images
Bri❤️

You are such a great Mom and a great person. 💛

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