how i got diagnosed with an autoimmune disease

4/14 Edited to

... Read moreLiving with unexplained chronic pain for years can be incredibly frustrating and isolating, especially when the root cause remains elusive. My personal journey began at age 15 with persistent knee pain, swelling, and inflammation. Despite numerous physical therapies, including electric stimulation and blood flow restriction, the pain continued without improvement. Early interventions, such as knee surgery at 19, revealed synovitis—a sign of inflammation inside the joint—but sadly, this red flag was overlooked. An attempt at genicular nerve ablation at 20, which aimed to numb the pain signals from my knee nerves, didn't work, highlighting the challenge of treating symptoms rather than underlying causes. It wasn’t until referral to a rheumatologist at 22 that I received crucial blood tests revealing elevated ESR and CRP levels and a positive rheumatoid factor, alongside imaging confirming synovitis in both knees and fingers. These findings pointed towards juvenile idiopathic arthritis (JIA) or rheumatoid arthritis (RA), autoimmune conditions where the immune system mistakenly attacks healthy joint tissue. Starting treatment with methotrexate injections, a disease-modifying antirheumatic drug (DMARD), was a turning point. This therapy works to control immune activity and limit disease progression. Later, the addition of Remicade infusions, a biologic therapy, provided stronger control over my RA symptoms and inflammation. These treatments have greatly improved my quality of life, allowing me to regain mobility and reduce pain. For anyone experiencing unexplained chronic pain and inflammation, advocating for thorough rheumatologic evaluation is essential. Early diagnosis and intervention can prevent joint damage and improve outcomes. Chronic illness comes with many challenges, but modern treatments and support communities, like the #autoimmunewarrior network, offer hope and empowerment to those affected.

4 comments

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maryellen

🥰 Autoimmune stuff sucks! I remember crying when the umpteenth doctor (a rheumatologist) walked into my hospital room, the day before exploratory spine surgery...I had lost the ability to walk at times...to say 'good and & bad news! I know what you have but we can't cure it.' I cried because something was real. It wasn't me playing at pain...which I was starting to be accused of...by my spouse. Spouse ate humble pie and I began the long adventure of finding which med, lifestyle, etc that would get me relief. Oddly enough, pregnancy gave that to me! Elevated hormones? That was a long while ago and I've just begun treatment with Simponi Aria. I send to you best wishes and hope you find a good doctor that understands and respects you. Suggestion, write your symptoms down before you go into the Dr office and don't let them leave the room until you've checked off all your questions. Once my doctor got up to put hand on the door. I politely said that I wasn't finished and that I would feel better if he sat down until I was done. He apologized and never did that to me again. Now I get a handshake and a hug! Fight for your comfort and future!🥰

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maryellen

Shame on me for going off on my own story. I apologize. I responded without scrolling thru your pics and explanations. I was obviously triggered but I should have known better. *sit down til I'm finished* taking my own advice a bit late. Again, I apologize.🥴

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