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Most of My Life and Time is Spent in this Bed

#lemon8diarychallenge

Every day changes for me since I am retired on disability with #SecondayProgressiveMultipleSclerosis. The diagnosis has recently changed, but thankfully the disability status has not. If anything, the recent changes solidify my need for SSDI even more! #osteoarthritis #osteopenia

My days are more routine when school is back in session and my daughter’s routine doesn’t change weekly.

Right now I am also having sleep issues. I find out the plan, other than going off my SSRIs which I have been doing slowly. I get INCREDIBLY sleepy and know I need to lay down or get someplace safe to nap for at least a few minutes.

So this summer I get up at 6:30 to have my daughter at the local pool by 7 to swim for 1.5 hours while I go home & get back in bed until I wake up again anywhere from 9-10:45! (My mom picks up my daughter.) I am almost on an intermittent fasting routine just from my weird sleep schedule.

In the summer two weeks are hardly the same! This week I have been getting back up in time to pick my daughter (14) up from our church’s COVID inspired combination of Vacation Bible School and Music Camp (VBSMC). One of the people we serve on Monday nights saw a pastor with the shirt on and asked him if it meant VBS Motorcycle Club. I bet weren’t expecting THAT response when they set it up during COVID!

Now for PT & spending the rest of the day prepping fruit for the next two days that are going to be BIG. I’ll let you in on that tomorrow.

2024/7/11 Edited to

Living with Secondary Progressive Multiple Sclerosis (SPMS) can profoundly impact daily life. This condition, a form of multiple sclerosis characterized by a gradual worsening of disability, often requires individuals to adapt their routines. Many face sleep disturbances, fatigue, and the need for disability support, including SSDI. Beyond physical challenges, emotional and mental health also require attention, driving the importance of developing coping strategies. Support networks, including family and friends, become vital. Engaging in activities like parenthood, even through a challenging lens, provides purpose and joy. Exploring nutrition, exercise, and therapy can contribute to overall well-being, allowing individuals to maintain a semblance of normalcy despite their condition. Through sharing experiences and connecting with others facing similar challenges, community support fosters resilience and courage in navigating life's complexities, making each day a little brighter.

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