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having an unstable child

My son has a visceral disease (incurable disease) and a developmental disorder (mental disability).

Even though I like people, it is very difficult to build relationships.

Being abused by my husband may also be a factor.

As soon as I became a high school student, I stopped going to school.

Because it was a private school, I was advised to voluntarily drop out early and transferred to a correspondence high school.

I am currently in high school and doing a study camp at our school.

I received a call from the school every day saying, "Parents of unstable students will be waiting nearby without telling their children."

I know that I can't run away or put off this time because I'm a strong child, but I feel okay.

Because I like studying and school.

The canned life at the inn is tough, but I brought a PC and books, so I will do my best what I can do now.

Parenting with Developmental Disabilities The Growth Diary

3/11 Edited to

... Read more発達障害と難病を持つ子供の不安定な状態に直面すると、親としての戸惑いと不安は計り知れません。私も同じような経験をしたことがありますが、子供の状態を理解し、無理なくサポートすることの大切さを実感しました。 特に学校生活が難しくなり、不登校や転籍といった選択肢を迫られる中で、子供の好きなこと、得意なことを伸ばす環境づくりが鍵だと感じました。勉強や特定の活動に熱中できる場があると、子供の自己肯定感も少しずつ育まれます。 また、虐待や家庭内の問題が関わっている場合は、専門機関やカウンセリングの活用も重要です。子供に直接話すことが難しい場合もありますが、第三者を交えた相談は精神的な負担を軽減する助けになります。 私は息子のスクーリングの際に、保護者が近くで待機する制度があり、実際に仕事を休んで付き添いました。これは親にとっても子にとっても安心感を与え、長い目で見れば学習意欲の維持につながったと感じます。 生活が缶詰めのようになることもありますが、PCや本を持ち込んで自分の時間を大切にする工夫も心の余裕につながりました。こうした経験から、困難な状況でも親子で少しずつ前に進む姿勢が大事だと強く思います。 お互いに完璧を求めすぎず、小さな成長を喜び合いながら、子供の持つ可能性を信じて支えていくことが、長い支援の道を進む力になります。

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