This isn’t a pity party. And it’s certainly not me saying that people with chronic illness can’t live full, meaningful, beautiful lives. We absolutely can. But living with lupus has changed the way I define wealth. When you’ve spent thousands on medications, infusions, doctor visits, lab w

This month has been more successful than I ever imagined—not just for my page, but for raising awareness about what it truly means to live with lupus. I have loved creating these videos, sharing my experiences, telling my story, and connecting with so many incredible people along the way. What s

Here’s a caption that matches the emotional/intelligent tone of the video while still being very relatable: One of the hardest parts of living with lupus is realizing how complicated it really is. People hear “autoimmune disease” and often assume it’s one doctor, one treatment plan, one set o

One of the biggest lessons lupus taught me was how to pace my energy. Not because I wanted to slow down… but because my body eventually forced me to. Pacing isn’t giving up. It isn’t laziness. And it isn’t “being dramatic.” It’s learning how to work with your body instead of constantly

Please list your pros and cons for the mobi. Do you love it?? Do you wish you went with something different? Tell me EVERYTHING 💙💙 thank you. #type1diabetes #t1d #t1dlookslikeme #tandemmobi #insulinpump

One of the quietest parts of living with lupus is when the support slowly fades. At first, people check in constantly. They ask how you’re doing. They want updates. But over time, your illness becomes part of the background to everyone else… even though you’re still living with it every

I actually don’t wish this on ANYBODY 🙅🏼‍♀️🙅🏼‍♀️ don’t claim this #lupuswarrior #lupusawareness #lupusawarenessmonth

Wdym I’m placing potato shards in my mouth? #fyp

One of the hardest things about living with lupus is realizing that not every doctor is going to be the right fit for you. And that’s okay. You deserve a doctor who: 💜 listens 💜 explains things clearly 💜 reviews your labs carefully 💜 respects your concerns 💜 works WITH you on treatment d

The two stages of a lupus diagnosis are something I don’t think people talk about enough. At first… there’s relief. Relief that someone finally listened.Relief that you finally have answers.Relief that maybe now, after all the symptoms, confusion, appointments, testing, pain, and exhaustion…

For me, this happens year round, usually transitioning from one extreme temperature to the next (like hot shower into air conditioning, or hot summer day into a cold grocery store) and honestly sometimes this can happen several times a day and last anywhere from 1 minute to several minutes at a tim

Living with lupus changes the way you experience your body. You become hyper-aware of things most people never think about: fatigue, swelling, pain, stress, energy levels, random symptoms. Because when your body has surprised you before… you learn to pay attention. And while that awarenes

Honestly if I had the blueprint I wouldn’t struggle as much as I do😅 #lupusflare #lupuswarrior #lupusawareness #lupusawarenessmonth

One of the strangest parts of lupus is how differently it can show up. People hear “lupus symptoms” and usually think: fatigue, joint pain, butterfly rash. But sometimes it’s jaw pain. Mouth sores. Teeth hurting. Random swelling. Skin issues. Exhaustion that feels impossible to explain.

One of the quietest struggles of living with lupus is the fear of becoming a burden. Not because we want to feel that way… but because we understand how much chronic illness can affect everyday life. The unpredictability. The support we sometimes need. The canceled plans. The hard days.

People sometimes ask: “Does posting about lupus actually help?” Yes. It does. Awareness leads to: 💜 More advocacy 💜 More research funding 💜 Earlier diagnosis 💜 Better treatments 💜 More compassion and understanding A recent example: Following Lupus Research Advocacy Day, Congress ado

Someone recently told me: “You have overcome every obstacle you’ve encountered.” And honestly… that shifted something in me. Because living with lupus can make the future feel overwhelming sometimes. Especially during flares. Especially during the hard seasons. But when I look back, I

Living with lupus is hard. I would never romanticize chronic illness. I would never tell someone “everything happens for a reason.” But I can say this: Lupus changed me. It taught me gratitude. It taught me boundaries. It taught me how to slow down and pay attention to my body. It d