I almost forgot I made this video before my pain pump! 😭❤️‍🩹

2025/7/24 Edited to

... Read moreHypermobile Ehlers-Danlos Syndrome (hEDS) is a complex connective tissue disorder often surrounded by myths. According to the 2017 diagnostic criteria edition, many common beliefs about hEDS are inaccurate, leading to confusion among patients and healthcare providers alike. One prevalent misconception is that individuals with hEDS must have extremely stretchy skin. In reality, people with hEDS may exhibit only mild skin hyperextensibility, such as the ability to stretch the skin on their forearm beyond 1.5 cm. This mild elasticity contrasts significantly with the pronounced skin stretch seen in other types of Ehlers-Danlos syndromes. Another myth is that atrophic scarring is a required symptom for diagnosis. While some individuals with hEDS may have atrophic scars, particularly in at least two locations, this is not mandatory. The presence of scarring varies and is just one of several features considered in the diagnostic process. A further misunderstanding involves the necessity of a positive family history. Although genetics play a role in many cases, hEDS does not always require a family history for diagnosis. Some patients are diagnosed based on clinical features alone, reflecting the heterogeneity and complexity of the condition. Understanding these nuances is essential for accurate diagnosis and management of hEDS. Patients and healthcare professionals should refer to the 2017 criteria to avoid misdiagnosis and ensure appropriate care. Comprehensive evaluation includes assessing joint hypermobility, musculoskeletal complications, and other systemic manifestations beyond skin and family history factors. Raising awareness and correcting misinformation about hEDS can improve patient outcomes, guide treatment strategies, and foster a better support system for those affected by this condition.

11 comments

Trisha Meloling's images
Trisha Meloling

my hip would partial dislocated if I did that. my hip even goes put if I sit with my feet together toes to heal an legs are out . if that makes nay sense. lol 😂 glad you didn't dislocated anything in thos video

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