Just a typical Friday outing. 🤪

2025/9/30 Edited to

... Read moreLiving with Hypermobile Ehlers Danlos Syndrome (hEDS) often means that what might be a minor mishap for others can turn into a whole ordeal. My recent experience with a jammed toe is a perfect example of this. What started as just hitting my foot hard against a door frame – something I've done countless times before – quickly escalated into a trip to urgent care. Initially, I didn't think much of it. I'm pretty used to accidentally bumping into things, and my toes, especially, have taken a beating over the years. But then the pain started radiating into my foot, and I noticed it was bleeding and looked really bruised. The numbness, which I already experience in my toes due to what my neurologist suspects is fibro neuropathy, made it hard to assess the severity. This is a common challenge with hEDS – our bodies don't always give us typical pain signals, or our proprioception is off, making us more prone to these kinds of accidents. Going to urgent care was definitely the right call, even if it felt like 'not a big deal' at first. They compared my numb right toe to my left (which also has some numbness, a long-standing issue for me) and got an X-ray. Thankfully, it wasn't broken, but it was a pretty good sprain. For someone with hEDS, even a sprain can take longer to heal and require more careful management due to our hypermobility and fragile connective tissues. It's a reminder that we really do need to listen to our bodies, even when the signals are confusing. They prescribed a special shoe to wear for a few weeks to keep pressure off the toe and some bacitracin ointment for the cut to prevent infection. This kind of diligent care is crucial for us. My doctors and I often discuss how important it is to manage even seemingly small injuries to prevent them from becoming chronic issues. It's not just about the immediate pain, but about protecting our joints and tissues in the long run. If you're also living with Ehlers Danlos Syndrome and find yourself constantly dealing with toe issues, you're not alone. I've learned that having a good relationship with a team of specialists who understand hEDS is invaluable. They can help differentiate between a typical injury and something more serious related to our condition, like worsening neuropathy or a more significant soft tissue injury. Always check with your doctor if you experience persistent pain, swelling, or numbness after an injury, even if it seems minor. Our bodies might be 'bendy,' but they also need extra care and attention.

11 comments

ChellymydearWatson's images
ChellymydearWatson

Girl. I don't have ED, but I've got a growing list of issues. spatial awareness is one. I look like I was kicked by toddlers all day. The "Let's go through your med list" and the. "you see a lot of specialists, huh" I want to scream every time I hear them. doctor offices are called practices for a reason. Sending love and white light!

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