I still don’t wear deodorant… I just don’t sweat unless it’s nighttime and I have a fever. During my QSART, I didn’t produce any sweat at all.

2/16 Edited to

... Read moreLiving with dysautonomia can be quite challenging, especially when it affects autonomic functions like sweating and circulation. I can relate to the experience of not sweating even in situations where most people would, such as daytime activities, only sweating during a fever at night. This lack of sweating, called anhidrosis, can make regulating body temperature difficult and also leads to issues like dry skin and poor heat tolerance. Poor circulation is another symptom that often accompanies dysautonomia, making one feel cold even when the weather is warm. This can be frustrating, as layering clothes or using heating devices may not always provide relief. Additionally, dry eyes caused by fans or air conditioners are common complaints, as airflow intensifies eye dryness and irritation. This can make simple things like watching TV or reading uncomfortable without precautionary measures like using lubricating eye drops. Another struggle I've noticed is the impact on bladder function, resulting in an overactive bladder with frequent urges. This added discomfort affects daily routines and social interactions. All these symptoms stem from the autonomic nervous system's difficulty in regulating involuntary bodily functions properly. Understanding these symptoms as part of dysautonomia helps in seeking appropriate medical advice and treatments, such as QSART (Quantitative Sudomotor Axon Reflex Test) to assess sweating function. Support groups and personal care strategies, including maintaining hydration, using moisturizers, protecting skin, and managing temperature environments, are essential for improving quality of life. If you experience similar symptoms, discussing them with a healthcare professional specializing in autonomic disorders can provide diagnosis and management options. Awareness and sharing personal experiences empower others living with dysautonomia to find comfort and community.

1 comment

Vanessa's images
Vanessa

welllll... the deodorant thing is a plus, but the rest sux! I've randomly had most of those symptoms for various reasons, and I cant imagine having them routinely and there being no real treatment.

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