we actually did it we went to @PRComicCon 🥹
i’m not even gonna lie, i was so nervous about bringing my rollator and just being perceived in general, but i’m really proud of myself for choosing what my body needed over what people might think. because truthfully? there’s no way i would’ve survived the day without it. it was loud, a little overwhelming at times, and yeah i definitely pushed myself more than i probably should’ve 😅 but at the same time?? it was so worth it.
we had such a good family day. getting out of the house, doing something normal, laughing, just existing together like that i needed that more than i realized. AND i got to see my best friend after so long 2 years exactly, we literally stayed together the whole time and it made the day 10x better.
also to everyone who came up to me and said hi please know that meant everything to me, like truly. i didn’t cosplay this year (my body said absolutely not) but next year? we’re going ALL OUT. so drop cosplay ideas for me because i’m already planning
Zarisa did SO good too 😭 at first she was like “uhm absolutely not” to some of the scarier cosplays lol but she warmed up and ended up enjoying herself so much. seeing her happy made everything worth it. i’m not gonna lie though… one thing i was a little sad about, i really wanted to go to the Q&A for Jamie Campbell Bower (aka Vecna from Stranger Things) and ask him questions, but we got there too late 💔 timing just wasn’t on our side today. i was lowkey bummed about that one.
but honestly? even with that, the day was still such a win.
now reality hit 😭 i am PAYING for today. like everything hurts. every. single. thing. i already know i’m gonna need a few recovery days and that’s okay. i’m learning that i can have good days and still need rest after. but overall?? no seizures, no blood sugar chaos, no major issues. that alone makes today a huge win 🥹
just really grateful i got this moment 🤍
Attending an event like PR Comic Con while living with a chronic illness presents unique challenges that often go unseen by the public eye. Using a rollator to maintain mobility in such a busy, loud environment isn't just about convenience—it's a vital tool to preserve energy and reduce pain. From my own experience, preparation is key: I always pack comfortable shoes and plan rest breaks ahead of time, knowing the physical demands can be intense. What stood out most was the emotional boost gained from connecting with loved ones. Sharing laughter and new experiences with family and friends can be just as healing as any medication. It reminded me that taking part in everyday joys, like attending conventions or meetups, enriches life beyond physical limitations. It's also important to recognize the importance of pacing yourself. Overexertion can lead to a difficult recovery period, but accepting rest days afterward helps maintain overall wellbeing without diminishing fulfillment from participation. One personal highlight was seeing my best friend after two years, which underscored how social connections impact mental health positively. Plus, witnessing the joy of a loved one gradually warming up to new experiences—like a child embracing cosplay despite initial hesitation—adds an extra layer of meaning to the outing. Though missing out on certain plans, such as the Q&A with a favorite actor from Stranger Things, was a disappointment, the overall win was in simply showing up, adapting when needed, and building treasured memories. For others navigating chronic illness and public events, I recommend building a support network, communicating openly about your needs, and celebrating each small victory. These strategies foster resilience and allow us to enjoy moments that define life’s richness, even on tougher days.
