Merci du fond du cœur à toutes les personnes qui ont embarqué avec moi dans cette belle aventure en 2025.
Merci à ceux qui ont cru, soutenu, partagé, encouragé et aidé, de près ou de loin.
Cette année a été remplie d’émotions, de défis, de projets et surtout… de beaucoup d’amour 💛
Merci d’avoir fait partie de ce chemin avec moi.
Looking back on 2025, I’ve come to deeply appreciate the power of community and support when facing rare neurological diseases. This journey is often filled with uncertainty and emotional highs and lows. But having people stand by you—whether through encouragement, sharing resources, or simply offering a listening ear—makes all the difference. For anyone battling a rare disease or supporting someone who is, it’s vital to connect with others who understand your experience. Joining groups focused on rare diseases (#maladierare) or neurological conditions (#maladiesneurologiques) can provide not only information but also emotional solidarity. The kindness and help from unexpected places often bring hope and strength. Moreover, 2025 has shown how love and compassion can fuel resilience. While challenges arise, celebrating small victories and leaning on a network of care helps maintain motivation. In my experience, this year was not only about facing difficulties but also about cherishing the bonds formed along the way. To those walking a similar path, I encourage you to seek out solidarity, share your story, and embrace the support around you. It’s a unique journey, but you are never truly alone.
