2024/12/31 Edited to

... Read moreDysautonomia encompasses various disorders affecting autonomic nervous system functions. Key symptoms can range from fatigue and lightheadedness to neuropathy in extremities. Understanding these symptoms is crucial for managing daily challenges. Another common experience is Postural Orthostatic Tachycardia Syndrome (POTS), which often accompanies dysautonomia, causing increased heart rate upon standing, leading to dizziness and fainting. Patients may also experience generalized fatigue, impacting quality of life. Having knowledge about these symptoms encourages discussions and support within communities, especially online forums where individuals share their experiences and coping strategies. Awareness of related conditions like hypermobility can also foster better management and understanding of these often debilitating symptoms. By sharing and connecting with others facing similar challenges, we can create a more informed and supportive environment for those affected by chronic illnesses.

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POTS
#pots #potssyndrome #dysautonomia #invisibleillness #chronicillness
Tomika Wheeler

Tomika Wheeler

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A young woman with long dark hair looks at the camera. Overlay text reads "HOW TO EXPLAIN POTS To friends and family." Yellow graphic elements frame her, with a Lemon8 logo and username at the bottom.
A slide titled "What is POTS?" defines the condition, lists cardiovascular, neurological, and gastrointestinal symptoms, and mentions its prevalence. A large number '1' is centered on the slide.
A slide titled "How to Explain Symptoms" provides guidance on describing dizziness/fainting, rapid heart rate, fatigue, and brain fog. A large number '2' is centered on the slide.
POTS: HOW TO EXPLAIN! To friends and family
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Kate

Kate

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Hot Pilates: 1 Me: 0 🥲 #pilates #pots #dysautonomia #fitness
BETHANY SIMKO

BETHANY SIMKO

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omg I love running it’s so good for you 😇🥰🤭🤌🏼✨😛💅 #pots #dysautonomia #builtdifferent
BETHANY SIMKO

BETHANY SIMKO

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Hot Pilates: 1 Me: 0 🥲 #pilates #pots #dysautonomia #fitness
BETHANY SIMKO

BETHANY SIMKO

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#POTS explained (with cats & footage!) #PotsAwareness #PotsSyndrome #Dysautonomia #InvisibleDisability
Lindsay Murray

Lindsay Murray

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The girls that get it, get it. 🫶🏼🔥 #chronicillness #chronicillnessawareness #dysautonomia #dysautonomiaawareness #dysautonomiapots
Daisy Jane🌼

Daisy Jane🌼

10 likes

Hot Pilates: 1 Me: 0 🥲 #pilates #pots #dysautonomia #fitness
BETHANY SIMKO

BETHANY SIMKO

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A young person with dark hair and light eyes smiles at the camera, with string lights and a rainbow flag in the background. The text overlay reads "Debunking POTS myths" with small heart doodles.
A graphic titled "Debunking Myths About POTS" states that POTS is not the only type of dysautonomia, listing examples like Vasovagal Syncope and Orthostatic Hypotension.
A graphic titled "Debunking Myths About POTS" clarifies that POTS is not just a high heart rate or dizziness, but causes diverse symptoms across multiple body systems.
Debunking POTS myths
#potssyndrome #dysautanomia #chronicillness #trending #myths
Kate

Kate

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Just doing what the dr advised 🫡 #pots #orthostatichypotension #dysautonomia #tachycardia #hypotension
Ashley Brown | The Chaotic Mom

Ashley Brown | The Chaotic Mom

14 likes

signs i had POTS syndrome
postural orthostatic tachycardia syndrome is becoming more common recently, and we are still learning more about it… i have both confirmed POTS and neurocardiogenic syncope, as types of dysautonomia. my biggest indicator for having POTS syndrome before testing evidence was that my heart rate ju
skylar gallo

skylar gallo

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Service dog tasks for Dysautonomia
#service dog #tasks #disabilityawareness #dysautonomia #pots
Emily C.

Emily C.

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I hate to be an inconvenience #xyzbca #chronicillness #dysautonomia #pots #chronicallyill
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

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Carolina_Martinez

Carolina_Martinez

10 likes

Chronic illnesses//POTS
Hi lovelies! I wanted to share a bit about my experience with POTS (postural orthostatic tachycardia syndrome), a dysautonomia condition. My cardiologist likes to joke that it’s a disorder where your body quite literally hates gravity, and to be fair, I can definitely see that! 😂😭 As someone who s
Safia H

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The Invisible Illness: Dysautonomia/NCS/POTS
Hi, I’m Grayson and for the longest time I had so many problems with my body. Everyone always told me I was just crazy and it was all in my head. Out of nowhere I: 1) Would shake almost like I had Parkinson’s Disease 2) Can’t do high temps outside (which I hate because I love Summer) 3) Coul
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Stopping every ten minutes to regulate heart rate but at least I made it to the top 🙂‍↕️🤪 #invisibleillness #chronicillness #hiking #dysautonomia #pots
Savskii.diary

Savskii.diary

1 like

#pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia
Kylie - Women’s Health

Kylie - Women’s Health

7 likes

I hate when this happens!! I feel like I’m gonna faint but the floor is gross<< Thankfully I usually have a mobility aid but sometimes w quick errands I think “I’ll be fine” - my flaw haha #Faint #SpoonieLife #ChronicIllnessHumor #PotsSyndrome #DysautonomiaAwareness
Lindsay Murray

Lindsay Murray

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Hi @Tini👩🏼‍🍳🔥 ! I know your POTS diagnosis is still relatively new, and you might already be aware of some (or all) of this — but just in case, I wanted to share what I’ve learned from my own experience and the POTS community. Pregnancy can be unpredictable with POTS, and I hope this helps you f
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

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A POTS BINGO card with a 5x5 grid listing various symptoms like fatigue, dizziness, brain fog, and anxiety. The card is titled 'POTS BINGO!' and has 'Preview' and 'Swipe' indicators.
POTS BINGO! Test yourself or a Friend
I am not a doctor, but these are common symptoms of POTS and Dysautonommia. You guys seemed to like the autism bingo, so I hope you like this one as well! POTS stems from dysautonommia, but other chronic illnesses can as well. If you are concerned, consider talking to your doctor. stay salty my fri
SharkintheWaters

SharkintheWaters

50 likes

#heds #hypermobility #ehlersdanlossyndrome #dysautonomia #posturalorthostatictachycardiasyndrome #pots #chronicillness #doctorsoftiktok
Parasocial Princess

Parasocial Princess

5 likes

A teal circle with white text states that about 25% of people with POTS are unable to work due to their symptoms. Below, a black bar begins the phrase "DID YOU".
An anatomical diagram highlights areas of the body affected by dysautonomia symptoms, including the head, chest, and extremities. Detailed lists categorize symptoms by body system, such as cardiovascular, gastrointestinal, and neurological issues.
A grid-like list presents numerous dysautonomia symptoms, including difficulty staying upright, dizziness, fainting, irregular heartbeat, chest pain, visual disturbances, fatigue, migraines, anxiety, and sleep issues.
Dysautonomia
#gettoknowme
WhoCares🖤

WhoCares🖤

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The cooling towels are bilitok and the instant cold packs are from med pride! Please let me know if you tried these brands and if you have better recommendations!! #xyzbca #chronicillness #summer #heat #cool #stayingcool #pots #posturalorthostatictachycardiasyndrome #chronicallyill #chr
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

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A title slide for "9 Things I Wish More People Knew About P.O.T.S," an invisible illness deserving awareness, presented by Tilt Table Talks.
The first point explains that POTS is a form of Dysautonomia, a disorder of the autonomic nervous system, noting that all POTS patients have dysautonomia.
The second point asserts that POTS is a physical disorder, not psychological, and encourages patients to advocate for themselves and push for necessary testing.
Sitting pretty until I stand up 😅 POTS ✨
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Brianna | POTS & Recovery

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A detailed diagram illustrating the components of the Autonomic Nervous System, showing connections between the brain, spinal cord, and heart. Key parts like the cardiac regulatory center, nerve pathways, and cardiac muscle are labeled with numbers and a corresponding legend.
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A comparative chart explaining the Sympathetic and Parasympathetic Nervous Systems. The sympathetic side shows 'Fight or Flight' responses like increased heart rate, while the parasympathetic side shows 'Rest & Digest' functions like decreased heart rate, with illustrative icons.
POTS disorder and dysautonomia
I recently went to my cardiology electrophysiology doctor and I was diagnosed with pots and dysfunctional autonomic nervous system. For years I have been searching for answers. From my heart spiking to 183 and dropping to 52 for no reason, the dizziness, fatigue, and just overall not feeling we
Katelin Allen

Katelin Allen

26 likes

5k training week 3!!!
#homeworkout #lemon8challenge #5ktraining #fitness #running #vlog #pots #dysautonomia
liv

liv

10 likes

Link in linktree in bio for histamine digest from seeking health and use code “Nellie10” at checkout. The DAO enzyme in our bodies is responsible for the breakdown of histamine. If we have too little of this enzyme, it can lead to histamine intolerance. I take the histamine digest supplement which
getwell.withnell

getwell.withnell

4 likes

This morning I was outside doing some light training with Sebastian, just to spend time with him and keep his mind engaged. He’s retired now, but training has always been something we both enjoy. And then he alerted. No gear. No tasking cue. Just him, noticing a change in my heart rate and r
Kate & Sebs

Kate & Sebs

1210 likes

Replying to @LackofGluten what do I do for work living with a chronic illness? #invisibleillness #chronicillness #dysautonomia #pots #disabilitytiktok
Savskii.diary

Savskii.diary

3 likes

A woman with dark hair in a clip takes a mirror selfie, holding a phone with a glittery case. Text overlays read 'romanticizing my life' and 'living with dysautonomia aka POTS.' A soap bottle is on the counter, and towels are in the background.
Living with Dysautonomia aka POTS
Getting ready looks differently for me these days. Showers are exhausting, doing my hair makes my heart race causes difficulty breathing, and all this means sweating profusely making me question why I showered at all. There are many ways I try and alleviate these symptoms. I could sit and dwell
Jennifer

Jennifer

10 likes

Majority of POTS patients are women
#pots #potssyndrome #dysautanomia #chronicillness credit for video: hopebraincenter_
POTS & Dysautonomia Warriors

POTS & Dysautonomia Warriors

6 likes

Let’s talk about my disability part one
#chronicillnesscommunity #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnessjourney #chronicillnessawareness #potsawareness #dysautonomia #chronicfatigue #embracevulnerability
Reina Johnson

Reina Johnson

2025 likes

let’s talk about my disability part four
#chronicillnesscommunity #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnessjourney #chronicillnessawareness #potsawareness #dysautonomia #chronicfatigue #embracevulnerability
Reina Johnson

Reina Johnson

158 likes

Oh yeaaaa😩
#pots #posturalorthostatictachycardiasyndrome #chronicillness #dysautonomia
Alex

Alex

26 likes

Essentials needed
#fyp #potsie #potssyndrome #fibromyalgia #chronicillness #fibromyalgiawarrior #fibro #mcas #connective tissue disorders #dysautonomia #spoonie #dayinthelife #invisabledisease #neverjudgeabookbyitscover #bekind #stagesoffibromyalgia #chronicpain #pots #mcas #occipitalneuralgia #gutdismoti
Cori444

Cori444

11 likes

let’s talk about my disability part three
#chronicillnesscommunity #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnessjourney #chronicillnessawareness #potsawareness #dysautonomia #chronicfatigue #embracevulnerability
Reina Johnson

Reina Johnson

223 likes

And of course, just as I start complaining, Bailey came in with a plate full of desserts for us to share. She even checked to make sure the chocolate cake didn’t have espresso powder! We ate together and watched love island and I still feel like crap but I’m very grateful to be surrounded by so muc
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

328 likes

what’s been helping my POTS lately 🌸
seriously, it’s been trial & error for 5 years trying to find things that ACTUALLY work! I’ve finally gotten to a place where these products genuinely help aid in my recovery on flare days. If you experience POTS, Dysautonomia, etc. I hope these things help you as well! (& yes I have t
ꕤ 🅛🅘🅥🅨.❼❸❼ ꕤ

ꕤ 🅛🅘🅥🅨.❼❸❼ ꕤ

112 likes

A path covered in vibrant red and pink fallen leaves, with trees and a fence in the background. Overlaid text discusses using compostable tableware to avoid doing dishes, as a life hack for basic functioning.
A hand holds a textured, reddish-brown fruit in a bedroom with a bed and furniture. Overlaid text suggests finding comfortable sleep spaces like a couch or hammock, emphasizing sensory comfort.
An orange cat sleeps peacefully in a soft bed on a sunlit windowsill. Overlaid text advises adjusting sensory input (music, dim lights, earplugs) to overcome task paralysis for neurodivergent individuals.
AuDHD life hacks
I promise you it doesn’t have to be this hard ♥️ and there’s so much more where this came from. #audhd #neurodivergent #chronicillness #parasocialprincess #adhd #pots #autism #disability #aging #dysautonomia # #selfhelp
Parasocial Princess

Parasocial Princess

7 likes

An open box contains a variety pack of electrolyte drink mixes. The box lid reads "THANK YOU SO MUCH FOR SENDING ME YOUR VARIETY PACK OF ELECTROLYTES!". Inside, individual packets show "1000mg SODIUM, 200mg POTASSIUM, 60mg MAGNESIUM", and flavors like Watermelon Salt. The packaging highlights "No Sugar, Low Carbs" and "Health Through Hydration".
LMNT Electrolytes 🍉🍊
Thank you LMNT team for sending me your variety pack of electrolytes! These have helped me tremendously with my vasovagal syncope! #lmnt #lmntelectrolytes #potsawareness #vasovagalsyncope #dysautonomia
monica :)

monica :)

4 likes

Replying to @skydivepanda27 #dysautonomia #autism #audhd #adhd #braindamage #autisticburnout #pots #mcas #eds #heds #hypermobility
Parasocial Princess

Parasocial Princess

4 likes

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