Living with Dysautonomia aka POTS

Getting ready looks differently for me these days. Showers are exhausting, doing my hair makes my heart race causes difficulty breathing, and all this means sweating profusely making me question why I showered at all.

There are many ways I try and alleviate these symptoms. I could sit and dwell in the misery of how difficult POTS has made my life, but I’m choosing to look at it a different way.

I bought a drink holder for my shower so that I could have ice water to regulate my body temperature. I also have a shower chair that tones down some of the dizziness when showering.

When getting ready for the day I will sit in a chair and have a fan blowing so I don’t get too hot. I’ve also learned to take breaks when I need to so I don’t overdo it.

#dysautonomia #potsawareness #potssyndrome #potsie #romanticizeyourlife #chronicillnesswarrior #chronicillness #chronicillnesscommunity #chronicillnessjourney #grwm

2024/1/9 Edited to

... Read moreDysautonomia and POTS (Postural Orthostatic Tachycardia Syndrome) can profoundly impact daily life, making even simple tasks feel exhausting. This article highlights personal experiences and coping mechanisms, showcasing the importance of hydration and regulated body temperature in managing symptoms. Many individuals with POTS experience an increased heart rate, difficulty breathing, and dizziness, especially during routine activities like showering. Adaptations such as shower chairs and keeping cool can significantly help in managing these symptoms. Creating a comfortable environment with a fan and taking breaks are crucial strategies that enable individuals to handle their daily routines without overexerting themselves. In recent years, awareness around POTS and its effects has grown, with support from online communities where others share their journeys with chronic illness. Engaging with these communities can provide emotional support and practical advice. It's essential to listen to one's body and find personalized strategies that work best, such as pacing activities and using tools like drink holders during hygiene routines to facilitate hydration. Living with POTS may not be easy, but with the right strategies and support, it is possible to navigate the challenges and maintain a fulfilling life.

11 comments

Redhead_Relove's images
Redhead_Relove

I completely understand. I have dysautonomia as well. It’s crazy to not be able to do basic things without issues, but you do have to keep doing the best you can!

Related posts

Fainting with POTS
Any one else experience sudden fainting episodes with POTS? #pots #potsie #potssyndrome #chronicillness #fainting
Living with Latitude | Shara

Living with Latitude | Shara

4 likes

POTS
#pots #potssyndrome #dysautonomia #invisibleillness #chronicillness
Tomika Wheeler

Tomika Wheeler

107 likes

signs i had POTS syndrome
postural orthostatic tachycardia syndrome is becoming more common recently, and we are still learning more about it… i have both confirmed POTS and neurocardiogenic syncope, as types of dysautonomia. my biggest indicator for having POTS syndrome before testing evidence was that my heart rate ju
skylar gallo

skylar gallo

1140 likes

Living with Dysautonomia: 3 Things I Wish I Knew
If you have Dysautonomia - POTS, EDS, MCAS or just a mystery illness no one takes seriously, you’re in the right place. I’m Kiki. I’ve been passed from doctor to doctor, misdiagnosed, and told “it’s just stress” more times than I can count. But chronic illness warriors deserve soft living too.
KikiOnTheFarm

KikiOnTheFarm

8 likes

POTS: HOW TO EXPLAIN! To friends and family
#pots #dysautonomiaawareness #howto #helpfultips #chronicillness
Kate

Kate

72 likes

omg I love running it’s so good for you 😇🥰🤭🤌🏼✨😛💅 #pots #dysautonomia #builtdifferent
BETHANY SIMKO

BETHANY SIMKO

286 likes

Life with POTS
#dysautonomia #potssyndrome
🧂👑AK🌸🥄

🧂👑AK🌸🥄

23 likes

Vulnerable Chronic Illness Post
It’s okay to be vulnerable sometimes. I will get back to my old life, someday, somehow. #chronicillness #chronicillnesscommunity #potssyndrome #posturalorthostatictachycardiasyndrome #chronicillnesswarrior
𝑀𝒜𝐿𝐿🕸️𝑅𝒴 𝑀𝐼𝒮𝐸𝑅𝒴

𝑀𝒜𝐿𝐿🕸️𝑅𝒴 𝑀𝐼𝒮𝐸𝑅𝒴

15 likes

Welcome to my little corner of the internet
Welcome to my little corner of the internet! My name is Amaya and I am a queer individual with a chronic illness! My goal is to post more about what it’s like living with a chronic illness and an undiagnosed autoimmune disease. Oh! And I also have POTS aka postural orthostatic tachycardia syndr
Amaya

Amaya

10 likes

This morning I was outside doing some light training with Sebastian, just to spend time with him and keep his mind engaged. He’s retired now, but training has always been something we both enjoy. And then he alerted. No gear. No tasking cue. Just him, noticing a change in my heart rate and r
Kate & Sebs

Kate & Sebs

1151 likes

Service dog tasks for Dysautonomia
#service dog #tasks #disabilityawareness #dysautonomia #pots
Emily C.

Emily C.

73 likes

POTS BINGO! Test yourself or a Friend
I am not a doctor, but these are common symptoms of POTS and Dysautonommia. You guys seemed to like the autism bingo, so I hope you like this one as well! POTS stems from dysautonommia, but other chronic illnesses can as well. If you are concerned, consider talking to your doctor. stay salty my fri
SharkintheWaters

SharkintheWaters

50 likes

#POTS explained (with cats & footage!) #PotsAwareness #PotsSyndrome #Dysautonomia #InvisibleDisability
Lindsay Murray

Lindsay Murray

97 likes

Just doing what the dr advised 🫡 #pots #orthostatichypotension #dysautonomia #tachycardia #hypotension
Ashley Brown | The Chaotic Mom

Ashley Brown | The Chaotic Mom

9 likes

Dysautonomia
#gettoknowme
WhoCares🖤

WhoCares🖤

9 likes

Debunking POTS myths
#potssyndrome #dysautanomia #chronicillness #trending #myths
Kate

Kate

43 likes

The Invisible Illness: Dysautonomia/NCS/POTS
Hi, I’m Grayson and for the longest time I had so many problems with my body. Everyone always told me I was just crazy and it was all in my head. Out of nowhere I: 1) Would shake almost like I had Parkinson’s Disease 2) Can’t do high temps outside (which I hate because I love Summer) 3) Coul
Grayson Lewis

Grayson Lewis

40 likes

Essentials needed
#fyp #potsie #potssyndrome #fibromyalgia #chronicillness #fibromyalgiawarrior #fibro #mcas #connective tissue disorders #dysautonomia #spoonie #dayinthelife #invisabledisease #neverjudgeabookbyitscover #bekind #stagesoffibromyalgia #chronicpain #pots #mcas #occipitalneuralgia #gutdismoti
Cori444

Cori444

8 likes

I hate to be an inconvenience #xyzbca #chronicillness #dysautonomia #pots #chronicallyill
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

67 likes

Reality of POTS | HR spike while vacuuming 🫠
This is real life POTS. POTS is a form of dysautonomia where my nervous system doesn’t get the memo to regulate properly. HR spiked to 157 💗 while simply vacuuming. Causing a full on autonomic crash | tremors, vision disturbances, lightheaded , and out of breath. This is why I’m trainin
Amanda Bailey

Amanda Bailey

9 likes

While my symptoms are still VERY debilitating to my everyday life, these have helped me take a VERY big step in the right direction!❤️🫶🏼 #pots #chronicillness #prismglasses #lowhistamine #antihistamine #mastcell #posturalothostatictachycardiasyndrome #healingjourney #girlinher20s #dysauto
Ally Hwu

Ally Hwu

4 likes

The girls that get it, get it. 🫶🏼🔥 #chronicillness #chronicillnessawareness #dysautonomia #dysautonomiaawareness #dysautonomiapots
Daisy Jane🌼

Daisy Jane🌼

10 likes

Tips for living with Pots!
Hope this helps someone!❤️ #potsawareness #pots #chronicillness #chronicillnesscommunity #saltis myfavoritefood #water #roominpso #roomdecor #selflove #selfcare
SharkintheWaters

SharkintheWaters

96 likes

Jelliebend is like $60 retail, supacore like $140 @Jelliebend @Supacore #getjellie #dysautonomia #hypermobileehlersdanlossyndrome #pots #compression
Parasocial Princess

Parasocial Princess

3 likes

Helpppp 🫶
#pots #potssyndrome #potsawareness #dysautonomia #ehlersdanlossyndrome
kariwillinger

kariwillinger

2 likes

Not all disablities are visible
*Invisible Disabilities: Breaking Down Barriers and Stigmas* Imagine living with a condition that affects your daily life, yet is invisible to others. No casts, no wheelchairs, no visible signs of illness. Just a complex web of symptoms that can be debilitating, yet remain hidden from the outsid
Becca Jeremiah

Becca Jeremiah

15 likes

#potssyndrome #syncope #dysautonomia #ibs #trigeminalneuralgia #chronicmigraines #hearingloss #gastroesophagealrefluxdisease #epicgastricpain #asthma
Carolina_Martinez

Carolina_Martinez

9 likes

Let me know if you want me to explain what collections is to begin with or would a settlement means 💜 #medicaldebt #healthinsurance #collections #debtcollector #chronicillness #mutualaid #neurodivergent #audhd #dysautonomia #pots #hypermobileehlersdanlossyndrome #uwmedicalcen
Parasocial Princess

Parasocial Princess

2 likes

When POTS tries to kill you at 7 AM
Like chill out heart…I’m just trying to get my kid ready for school 👀😭 #pots #potssyndrome #highheartrate
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

1 like

Chronic illnesses//POTS
Hi lovelies! I wanted to share a bit about my experience with POTS (postural orthostatic tachycardia syndrome), a dysautonomia condition. My cardiologist likes to joke that it’s a disorder where your body quite literally hates gravity, and to be fair, I can definitely see that! 😂😭 As someone who s
Safia H

Safia H

41 likes

Comorbidities that I have (so far 🫠🫠🫠) with Lupus. Brain fog had me forget Raynauds and livedo reticularis… lol. I’m also very close to my GI diagnosis too. #lupuswarrior🦋💜 #lupus #sle #autoimmunedisease #chronicallyill #autoimmunewarrior #anemia #hypermobilityspectrumdisorder #fibromyalg
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

2 likes

Nalu had another public access training session today and I swear this girl surprises me every time. Our sessions are still short (about 20 minutes max) to keep things fun and set her up for success… and you can tell when she’s hitting that wall in this video when she tried to crawl onto a shelf
Kate & Sebs

Kate & Sebs

8 likes

MCAS (mast cell activation syndrome) and histamine intolerance are often used interchangeably because they both involve mast cells and histamine but they are actually 2 different things. Both have to do with an excess of histamine but MCAS is much more complex and broader than just too much his
getwell.withnell

getwell.withnell

3 likes

POTS Bingo… and yep, I got BINGO
Living with POTS means my body likes to surprise me daily—and not in the fun way. I saw this bingo and couldn’t not mark it up. From dizzy spells to salt cravings, weird heart rates to the daily dance of “am I dehydrated or dying?”… if you know, you know. POTS isn’t cute, but I try to keep my hu
Dee

Dee

13 likes

Majority of POTS patients are women
#pots #potssyndrome #dysautanomia #chronicillness credit for video: hopebraincenter_
POTS & Dysautonomia Warriors

POTS & Dysautonomia Warriors

6 likes

When did I know it was time to start using a #mobilityaid #mobilityaids #chronicallyill #spoonielife #pots #hEDS #invisibledisability #disabilityawareness #babewithamobilityaid #canes #walkers #wheelchairuser #chronicallylindsay
Lindsay Murray

Lindsay Murray

7 likes

Life kept going, but I stopped living💔
#chronicillness #chronicmigraine #pots #potsawareness #dysautonomia
Alex

Alex

237 likes

Living with POTS
Writing this from the couch, after being in the heat for less than an hour. Can’t move. Hard to walk. Nauseous. But worth it to see my oldest graduate 8th grade! 🥰 #pots #potssyndrome #chronicillness #chronicillnessjourney #tachycardia
dani_reads

dani_reads

12 likes

Link in linktree in bio for histamine digest from seeking health and use code “Nellie10” at checkout. The DAO enzyme in our bodies is responsible for the breakdown of histamine. If we have too little of this enzyme, it can lead to histamine intolerance. I take the histamine digest supplement which
getwell.withnell

getwell.withnell

3 likes

And of course, just as I start complaining, Bailey came in with a plate full of desserts for us to share. She even checked to make sure the chocolate cake didn’t have espresso powder! We ate together and watched love island and I still feel like crap but I’m very grateful to be surrounded by so muc
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

296 likes

Pots-Depression-fatigue-pain-brain dysfunction🤌
⭐️Overall rating: /10: definitely 0/10 Coming soon to my link 🔗 in my bio ♥︎ Pots checklist Foods, supplements, products that help #unfiltered #embracevulnerability #Lemon8Diary #shareyourthoughts 💵 Price:free ✨
✨♥︎Jacqueline♥︎✨

✨♥︎Jacqueline♥︎✨

1 like

It took nearly 6 years after losing my family and then my health and everything else before I had any real hope. Literally that entire time I was just like well 🤷‍♀️ guess I don’t have anything of significance left to lose so might as well send it by effin around and finding out. I completely depri
Parasocial Princess

Parasocial Princess

2 likes

Replying to @montrale THEY’RE MEDICAL 😩 #xyzbca #pots #dysautonomia #funny #explanation
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

144 likes

POTS Diet Essentials
Some Essentials For a POTS Diet! What did you have to change in your diet to help POTS? #pots #potssyndrome #dysautonomia #chronicillness #education
POTS & Dysautonomia Warriors

POTS & Dysautonomia Warriors

8 likes

See more