Infusion days are for reading.
Infusion therapy days are often long and can feel isolating, but I’ve found an unexpected survival strategy: reading. For those dealing with autoimmune diseases, infusion days aren’t just medical appointments—they become moments to pause, reflect, and reconnect with ourselves through stories. One thing I've noticed is how books help me embrace vulnerability while navigating the unpredictability of chronic illness. Reading allows me to step away from the stress of treatment and dive into different worlds, which oddly enough boosts my mental strength. When I’m sitting in the infusion chair, the quiet hum of the machine mixes with the turning pages and the emotional journeys of characters who face their own struggles. It’s a comforting distraction, but also a source of inspiration. The hashtags like #embracevulnerability and #unfiltered really resonate with my experience. Being open about the challenges I face isn’t easy, but I find solace in communities that cherish honesty. Reading novels where characters develop 'packs' or families of support, like in fantasy stories featuring dragons, wolves, or other mystical creatures battling adversities, mirrors the real-life need for strong support systems. For me, infusion days also highlight the importance of teamwork—not just medically, but emotionally. Sharing book recommendations with others in similar situations, like a virtual or literal book club, has brought about new friendships. These connections remind me that even while physically tethered to an IV, we can build relationships that make us feel stronger and less alone. Finally, I want to emphasize that 'infusion days are for reading' isn’t just about filling time. It’s about cultivating resilience and hope. Books give me courage to face my autoimmune journey with a renewed spirit, knowing I’m part of a larger community that understands the highs and lows. If you’re on infusion therapy, consider bringing a compelling book along—it might just turn those long hours into empowering moments of peace and reflection.
