Invisible illness gang

2024/12/7 Edited to

... Read moreInvisible illnesses, such as POTS, can significantly impact daily life and well-being. Postural Orthostatic Tachycardia Syndrome is characterized by an abnormal increase in heart rate when transitioning to an upright position, leading to symptoms like dizziness, fatigue, and palpitations. Many individuals with POTS face challenges that aren’t visible to others, making it crucial to foster a community that supports awareness and understanding. The POTS awareness movement emphasizes the importance of education, proper diagnosis, and treatment options available for those affected. By sharing personal experiences, individuals can help reduce the stigma and misconceptions surrounding these conditions. Online forums and support groups can play an essential role in connecting people living with POTS. These platforms not only provide a space for sharing coping strategies but also foster community engagement and collective advocacy efforts. Engaging with hashtags like #POTS and #InvisibleIllness on social media platforms can amplify the voices of those navigating the complexities of these conditions, promoting greater visibility and understanding within broader societal contexts. Ultimately, raising awareness about invisible illnesses is a key step in ensuring that individuals who are disabled due to these conditions receive the empathy and accommodation they need in various aspects of life, including healthcare, workplace policies, and social support.

11 comments

Related posts

living with an invisible illness
You can’t see it… but it’s real. Some days I look “fine” but inside, I’m fighting battles no one else can see. The exhaustion. The flare-ups. The canceling plans. The trying to explain something people don’t understand… It’s not just physical— it’s mental, emotional, and constant.
Life with Grace | Stormy Jade

Life with Grace | Stormy Jade

39 likes

5 Things Chronic Illness Taught Me 💛
Living with chronic illness changed me in ways I never expected. It taught me that strength doesn't always look strong. Sometimes strength looks like resting when your body says stop. Sometimes it looks like asking for help. Sometimes it looks like simply making it through the day. Her
Cooking Through Pain 🩹

Cooking Through Pain 🩹

81 likes

A Prayer for Chronic Illness Warriors
Some battles aren’t visible, but they are very real. Today I’m praying for every warrior fighting chronic pain, autoimmune disease, fatigue, dysautonomia, anxiety, and other invisible illnesses. May God give you strength for today, peace for your heart, and hope for tomorrow. No matter what y
Life with Grace | Stormy Jade

Life with Grace | Stormy Jade

1 like

Chronic/Invisible Illness
Some days, it’s not about “pushing through” — it’s about surviving your own body’s rebellion with a little humor and a lot of grit. Living with a chronic illness means constantly fighting battles no one else can see, and sometimes laughter is the only armor we have left. It doesn’t take away the pa
Today is for You

Today is for You

1 like

Things I keep rebuying: chronic illness hospitalization edition, all under $35!!!
Hospitals are supposed to be where you go when things get bad. But during my most recent hospital stay… I was reminded that thinking simply does NOT apply when you have a chronic illness. 7 weeks after my last IVIG (far too late, thanks insurance… not), after travel, stress, and weather fluctuat
Alexandra Wildeson

Alexandra Wildeson

299 likes

Life with a chronic illness be like…
#chronicillness #invisibleillness #autoimmunedisease #lifewithautoimmunedisease #spoonie
Mar - MA | 🩺 | Lifestyle 🇲🇽

Mar - MA | 🩺 | Lifestyle 🇲🇽

21 likes

Fibromyalgia, The Invisible Illness
Fibromyalgia isn’t “just being tired.” It’s pain that moves, fatigue sleep can’t fix, and fog that steals your words. Triggers don’t warn you — weather, stress, hormones, overdoing it on a good day… sometimes just existing is enough. And no — not looking sick doesn’t mean I’m fine. Resti
Oma’s Homestead❌

Oma’s Homestead❌

4 likes

Migraine is an invisible illness
“But you don’t look sick.” Migraines don’t always look the way people expect. Some days I can show up smiling, and other days the pain is overwhelming. Both moments are real parts of living with a neurological disease. If you live with migraines or another invisible illness, you know how diff
MoreThanAHeadache

MoreThanAHeadache

1 like

Unseen, But Valid: Invisible Disabilities
Living with invisible disabilities like CPTSD, neurological conditions, and unseen injuries means constantly facing questions about my “level” of disability. But their doubts don’t invalidate my needs. For years, I wrestled with internalized ableism, pushing through pain and pretending I didn’t
Ally

Ally

3 likes

A young woman in a black dress and sunglasses stands next to a colorful mosaic dolphin statue, with text overlay indicating she is struggling with invisible issues despite her appearance.
Some Illnesses Are Invisible 🩵
By just looking at me, can you tell that I am dealing with multiple chronic illnesses? Probably not and that’s because my illnesses are invisible. Disabilities are not always visible, and I am a representation of that. I have Ehlers Danlos Syndrome which is a genetic condition affecting
Lexie Kathleen

Lexie Kathleen

27 likes

Chronic illness mornings look like this…
The hours it takes just to feel “okay” enough to start the day… How long does it take you in the morning to feel functional? #chronicillness #chronicillnesslife #chronicillnessjourney #invisibleillness #spoonie
Living with Latitude | Shara

Living with Latitude | Shara

1 like

Dear Invisible Illness…
Original poem 🖤 #writersoflemon8 #poetsoflemon8 #poems #originalpoem #invisibleillness
MendInLines

MendInLines

17 likes

Invisible Illness Sisters Roll Call
Where are all my fellow invisible illness warriors? Roll call! I have Ehlers-Danlos, Idiopathic Intracranial Hypertension (IIH), Endometriosis, POTS, etc. I can add a few randoms to that list but you get the idea. I love the amazing community in my followers/comments on TikTok and hoping to fi
Michele Lea

Michele Lea

8 likes

Chronic Illness Affirmations
“This is your reminder: You are allowed to rest. You are allowed to cancel. You are allowed to survive quietly.” #chronicillness #spoonie #invisibleillness #multiplesclerosis #chronicpain
Lauryn👑MS Warrior🧡SAHM of 6🤓😎

Lauryn👑MS Warrior🧡SAHM of 6🤓😎

8 likes

A purple-toned image features two figures walking on a path through a misty forest. Overlaid text reads: "Being able to walk pain-free is a blessing. Being able to walk without showing the pain is a skill" - KYLIE MCPHERSON, emphasizing the hidden struggles of chronic pain.
Chronic pain, invisible illness is real
#chronicpain #invisibleillness #fibromyalgia nerve damage
Michelle Goslin

Michelle Goslin

4 likes

✨Invisible illness✨
Ms struggles daily life a diff life style change isn’t easy for all of us and we do our best but this auto immune disease is a bish! Frfr never felt so helpless and freaked out and just wanna give up but I don’t I keep going n fighting a trying to improve me quality of life. A better way and Health
в𝔢𝔞𝔲𝔱í𝔣𝔲l��𝔡í𝔰𝔞𝔰𝔱r҉

в𝔢𝔞𝔲𝔱í𝔣𝔲l𝔡í𝔰𝔞𝔰𝔱r҉

1 like

The Invisible Illness: Dysautonomia/NCS/POTS
Hi, I’m Grayson and for the longest time I had so many problems with my body. Everyone always told me I was just crazy and it was all in my head. Out of nowhere I: 1) Would shake almost like I had Parkinson’s Disease 2) Can’t do high temps outside (which I hate because I love Summer) 3) Coul
Grayson Lewis

Grayson Lewis

40 likes

Chronic/invisible illness
What it’s like dealing with an illness that no one sees on the outside. Don’t get me wrong my doctors are absolutely amazing and go above and beyond to make sure I am taken care of. However, the doctors in our local hospitals if it isn’t seen directly there are a few possibilities that could be a
🌈🐦‍⬛Nova☮️Rain🐦‍⬛🌈

🌈🐦‍⬛Nova☮️Rain🐦‍⬛🌈

1 like

Chronic Illness Warrior 🫀
Reflecting on where I was this time last year and everything else that transpired in 2023: ‌ 6 Surgeries 2 Heart Procedures 2 Ports/PICC lines 1 Port Infection 1 Bloodstream Infection 1 Sickle Cell Crisis ‌ Countless doctor’s appointments, ER visits, home health visits, hospital admiss
LaFemmeGisele ✨

LaFemmeGisele ✨

3 likes

🌸Chronic Illness🌸
#CertifiedLifeCoach #TheMagicalMind🔮 #ChronicIllness
mamameehan

mamameehan

0 likes

A light-colored sweatshirt with "my chronic illness hobbies" embroidered. An embroidery hoop on the sweatshirt shows a moon, stars, and a "no" symbol, representing a crafting hobby. A "SWIPE" indicator is at the bottom.
A white headset and a light blue and mint green Nintendo Switch console are placed on a plaid blanket, illustrating a gaming hobby. The word "GAMES" is visible.
A white headset rests on a pink spiral-bound journal with a gold leaf design, all on a plaid blanket. This image represents a journaling hobby. The word "JOURNALING" is visible.
My chronic illness hobbies
Hi Lovely’s! These are some of my low energy activities I do to still get the most of my day while being stuck at home most often due to my chronic illness! All with music of course! Xoxo #chronicillness #chronicallyill #invisibleillness #invisibledisability #gastroparesis
🤍 Frost 🤍

🤍 Frost 🤍

8 likes

A person with red hair and blue headphones, wearing a purple hockey jersey, holds a package. Text overlay reads "Invisible Disabilities Exist!" with rainbow smiley faces on a colorful background.
A person with red hair, wearing a black top and fingerless gloves, makes a peace sign in a car. Text overlay reads "I had a meltdown shortly after" with rainbow smiley faces on a colorful background.
A person with red hair and blue headphones, wearing a purple hockey jersey, holds a package. Text overlay reads "I used a cane" with rainbow smiley faces on a colorful background.
Invisible Disabilities Exist!
Most (if not all) of my disabilities are invisible on the outside. I have POTs, Chronic Pain, Chronic Migraines, Endometriosis, PCOS, Hypermobility, and a lot of GI issues. 🫠 I'm also autistic and adhd. Not everything is visible but they're still there. Still affecting me and making me un
🖤💜Emk💜🖤

🖤💜Emk💜🖤

37 likes

My Life with an Invisible illness
#lemon8diarychallenge #embracevulnerability #chronicillnesswarrior #Lemon8Diary #sicklecellwarrior 📍 City/Country: Seattle/USA Location: Fred Hutchinson Cancer Center 📝Description: living with a blood disease that causes extreme pain . It can be hard at times to manage, and I may requ
Breeweird

Breeweird

10 likes

The Price of Chronic Illness
People see the groceries. The laundry. The cleaned house. The smile. What they don’t see is the invoice my body sends later. 🫠 With chronic illness, the crash is often delayed. You feel “okay enough,” so you push a little harder… maybe too hard. Then hours later your body starts collecting pa
HeartFailureHQ

HeartFailureHQ

1 like

If invisible illness had a poem written by ChatGPT
How does it sum up everything so perfectly? I’m sorry if you get what it’s saying ♥️ #InvisibleIllness #ChronicIllnessAwareness #MentalHealthMatters #PoetryHealing #AutoimmuneWarrior #ChronicFatigueSyndrome #ButYouDontLookSick #PainIsReal #LupusAwareness #TypewriterPoem #SpoonieL
Lexie - Chronic Health🦋

Lexie - Chronic Health🦋

0 likes

If People With a Chronic Illness Were 100% Honest
#chronicillnesslife #invisibleillness #chronicpainawareness
Ashley Taguchi

Ashley Taguchi

5 likes

Just because… and all things chronic illness
The “just because” list could go on forever. Living with chronic illness means constantly being misunderstood, by strangers and those you love. People see the smile, the posts, the good days, the “you’re so strong” moments… and they fill in all the blanks with their own assumptions.
 But the truth
Alexandra Wildeson

Alexandra Wildeson

4 likes

✨ 5 Things Chronic Illness Taught Me That Changed Everything 💛
Chronic illness has taught me lessons I never wanted to learn, but lessons I'm grateful to carry. 💛 ✨ Not everyone deserves the full story. ✨ Rest is productive. ✨ My worth isn't measured by what I accomplish. ✨ Protecting my peace isn't selfish. ✨ I'm stronger than I ever kn
Cooking Through Pain 🩹

Cooking Through Pain 🩹

10 likes

Chronic illness Junk journal
I spent a week in the hospital with sepsis so I decided to junk journal about it. I love to make art out of my pain it makes everything feel less sucky when I can make something cute. #chronicillness #artist #junkjournaling #scrapbook #messyjournal
Flame Foxxe•Disabled drag king

Flame Foxxe•Disabled drag king

154 likes

Beyond the Sash: Living With Invisible Illness
#invisibleillnessawareness #mrsutahpetite #chronicillness #tpn #sbs
Abigail G.

Abigail G.

3 likes

A woman in a tan trench coat speaks at an event, with a banner for 'Leadership Ladies of the Upstate South Carolina chapter (LLUSC)' visible, providing mentorship and support for women.
A text overlay on a plain background states that chronic illness can rob educated, ambitious, hardworking, and tireless individuals of their ability to work, clean, exercise, think clearly, or feel healthy.
A person holds a BLUESTONE blood pressure monitor displaying readings: SYS 87 mmHg, DIA 53 mmHg, and PUL 89 /min, with the cuff around their arm.
Ambition VS Chronic Illness
The tension between ambition and chronic illness is a nuanced and deeply personal challenge. Chronic illness often imposes physical, emotional, and mental limitations that can feel at odds with the drive to achieve personal or professional goals. However, navigating this dynamic is possible with se
LaShonda Prim

LaShonda Prim

2 likes

Things people with chronic illness do
Invisible does not equal imaginary #chronicillness #autoimmunediseaseawareness #chronicillnessawareness
hgray

hgray

6 likes

FREE sticker :) (Jesus and chronic illness themed)
Do you have a chronic illness? Same. Struggle to find media that hits right? Same. Christians With Chronic Illnesses' first episode drops NOVEMBER 30! Alsooo... I'll ship you a free sticker (w/ free shipping) if you follow these three simple steps: 🧡 1: Follow Christians With Chronic Illn
ChristiansWithChronicIllnesses

ChristiansWithChronicIllnesses

0 likes

#invisibleIllness#Chiari Warrior#RetiredFF
Hey everyone, I'm excited to share a few quirky and interesting facts about myself with you all! #gettoknowme
Maria❤️‍🔥❤️‍🔥Cabrera

Maria❤️‍🔥❤️‍🔥Cabrera

3 likes

chronic illness
#chronicillness #chronicillnesscommunity #chronicillnesslife #chronicillnessawareness
Callie Meese

Callie Meese

8 likes

Day in the Life of a Chronic Illness Baddie❤️‍🩹🏥💋😘🤕
Living with chronic illness isn’t cute… but the way I keep going is. Day in my life — smiling through it all 😀 #chronicillnessjourney #mylifewithchronicillness #chronicillnesslife #invisibleillness #dayinthelife
msjv0

msjv0

1 like

🌿 Illness Is a Sign of What Your Body Needs
✨Your body is always speaking — symptoms aren’t punishment, they’re messages. Instead of fighting them, try listening. Here’s what common issues may be telling you your body needs 👇🏾 💧 Acne → Zinc, Vitamin A, Omega-3s 🧠 Anxiety → Magnesium + B Vitamins 💤 Insomnia → Magnesium, Calcium, Amino Ac
xoaerin

xoaerin

1349 likes

See more