24 followers

Follow

Follow

Follow

1/4

1 saved

3

13

Lupus is taking my hair

Lupus is absolutely DECIMATING my hair. I take vitamins and eat fairly well (I have a sweet tooth) but I’m so swollen and my hair is falling out in chunks. My legs are so swollen that my pants dont fit right and it hurts to walk. I keep crying today.

I dont want to feel like this.

I don’t want to be around people.

I don’t want to be in family pictures tomorrow.

I feel so down on myself and I needed to get it off my chest.

#notcute #swolleneverywhere #lupuswarrior🦋💜 #badmentalhealthday

2025/4/20 Edited to

Lupus can have debilitating effects that extend beyond physical symptoms, deeply affecting mental health and emotional well-being. This autoimmune disease occurs when the body’s immune system mistakenly attacks its own tissues, resulting in inflammation, pain, and a variety of symptoms including fatigue and hair loss. For those experiencing hair loss, it's essential to understand that you're not alone. Support groups and forums can provide valuable connections with others facing similar battles. Lifestyle changes such as a balanced diet rich in vitamins, consulting with healthcare professionals, and exploring treatment options can help in managing symptoms. Mental health is just as vital; seeking support from loved ones or professionals can aid in navigating the emotional landscape of living with Lupus. Don't hesitate to express feelings of despair or frustration; these emotions are valid and common among those affected. Resources such as the Lupus Foundation of America offer extensive information and support to help manage Lupus symptoms and improve quality of life. Remember, advocating for your health and seeking help is a sign of strength.

13 comments

Trying to actually get to know the people I follow on here so I just wanted to say I seen your post and my heart broke for you. 🥺 I’m so sorry you are going through all that and I really pray things get better for you! 💕

See more(2)

Related posts

The front label of Essential Palace Botanical Fibroid & Lupus Care Tonic, highlighting key ingredients like French Tarragon, Linseed, Green Tea, and Chives Extract. It also states "NEW 5 IN 1 ULTIMATE BLADDER & SEXUAL SUPPORT" and claims to be 100% organic.

Essential Palace Fibroid & Lupus Tonic 8oz

#herbal supplements #tonic Brand: Essential Palace Product: Fibroid & Lupus Botanical Balance Care Tonic Ingredients: This Tonic is a blend of natural Ingredients, such as French Tarragon, Linseed, Green Tea, Chives Extract, Fenugreek, gymnema, ginseng, psyllium, Cinnamon, Aloe Ver

943 likes

Could it be lupus? What to know BEFORE you see a doctor

You’ve been tired for way too long. Your joints hurt. You feel off. You’ve gone to the doctor… and left with no real answers. Here’s the thing: Lupus can be sneaky. It mimics other conditions and hides behind vague symptoms. And many people (especially women) go years without a diagnosis.

113 likes

Lupus Supplement ✨🌸🫶

BENEFITS: Reduces Inflammation Enhances Immune Function Provides Relief for Muscle, Joint and Chest Pain Improves Mental Health and Well-Being Ingredients Filtered Water, Papaya Leaf*, Marshmallow Root*, Moringa*, Seamoss*, Kola Nut*, Barberry*, Goldenseal Root*, Slippery Elm*, Cardamom

106 likes

Lupus cheat sheet✨✨

🩸 Lupus Cheat Sheet (Save This Soft Girl Survival Guide) ✨ Lupus is more than joint pain. It’s body betrayal. It’s brain fog. It’s invisible suffering. And most days… it’s misunderstood. This cheat sheet is your daily reminder that your pain is real, your healing is sacred, and your softness

307 likes

🌿Herbal Support for Lupus🌿

Hey friends! I wanted to hop on here and talk about herbal support for lupus. My sister has lupus, and these natural remedies have really helped improve her health and keep flare-ups at bay, alongside exercise, a balanced diet, and healthy lifestyle changes. 💚 Flax, Reishi, and Turkey Tail are po

73 likes

Symptoms of Lupus

I spent a year trying to figure out what was wrong with me. My functional medicine doctor tested me for autoimmune disorders and it was lupus. #lupusawareness #lupus #autoimmunedisease #autoimmunehealing

116 likes

Custom designs to inspire my Lupus Warriors💜🥰🫶🏾

#gettoknowme @Lupus Warrior Lil Trina

10 likes

My Lupus Diagnosis Story💜

Last year around this time I was diagnosed with a chronic autoimmune disease. I began feeling sick 2023 spring semester but I thought it was due to the stress of college as well as the sickness that runs its course on campus. I noticed a problem once I can home and was not able to workout, eat, or

75 likes

A person with hair in a bun, wearing an oversized dark t-shirt with 'OKCE' text and biker shorts, takes a mirror selfie. They have a leg tattoo. The desaturated image includes text 'Hello! It's so nice to meet you in lemon8.'

My workout split with Lupus!

#gettoknowme #workouts #workoutroutine I wanna first start with I always do about 5-10 mins of stretching before & after my workout & these are just ideas for the week… sets and reps are up to you. Typically I do 4-5 sets 8-10 of each exercise. Day 1 - Glutes & Hamstrings - Bu

11 likes

To my lupus warriors we got this 🫶🌸

#lupuswarrior🦋💜 #lupuscommunity #lupusjourney

8 likes

This image defines Fibromyalgia (FMS) as a neurological condition where inappropriate nerve signals cause various symptoms. It states sufferers experience up to five times the pain level of non-sufferers, set against a background with butterflies.

This image, titled 'THE THIEF THAT IS FIBROMYALGIA,' lists various aspects that fibromyalgia 'steals,' such as body, energy, health, mind, sleep, friends, family, happiness, fun, special moments, careers, and the person you used to be, with a purple ribbon and butterfly.

This image describes Vulvodynia in Fibromyalgia, a chronic pain condition affecting the vulva. It details symptoms like burning, stinging, rawness, itching, throbbing, and soreness, and its impact on daily life, with a small anatomical illustration.

Fibromyalgia And Lupus Life 🫶✨🫶✨

71 likes

Lupus won't defeat me!

Lupus is an autoimmune disorder in which the body attacks itself. Affecting organs, skin, hair, joints, and more. #lupusawareness #chronicillness #lupus #dancer #Lambda4theCure

3 likes

Lupus used to make my hair fall out.

So grateful to have a head full of hair now. Lupus is stable thank God 😘🙌🏽🙏🏽

6 likes

Lupus And Fibromyalgia 🫶🫶🫶🫶🫶

17 likes

Be the bad ass that you are! Be the Lupus warrior

Lupus Warriors don’t give in We push through the pain and hide behind the mask

64 likes

My most viral video on TikTok! #medicalstudent #learnonlemon8

36 likes

Lupus Diagnosis Timeline

Here’s how my journey went, from starting to show symptoms in 2018, to getting diagnosed in 2024 with SLE Lupus #lupus #lupuswarrior🦋💜 #sle #lupuswarrior #autoimmunedisease

2 likes

This is Lupus 💜🦋

This one is a hard one to post each time. I’m not the same person I was before my symptoms started! 💜🦋 #lupus #lupuswarrior #lupusawareness #lupusjourney #lupuscommunity Memphis

49 likes

Symptoms on Lupus before I knew I had Lupus (SLE)

I’m going to be very vulnerable and show you pictures of my (SLE) Lupus journey. For three months I struggled not knowing why I was sick all the time and I had more symptoms by the day. Now that I’m diagnosed I want others to know what to look for and if you’re experiencing the same symptoms I was

159 likes

Anyone here with Lupus?

So I have Lupus. Which is an autoimmune disease this where the body fights against it self, instead off the infection in your body. Doctors are still unaware of the infection that’s is in the body. There are different ways of getting lupus. Rather it is generic or environmental. When I found out th

143 likes

This is Lupus 🥹💜🦋

It’s been almost 6 years since I was diagnosed with lupus! Everyday has been a battle ever since 🥹 trying to be more holistic has helped with my symptoms and improved my spirit substantially! My mental health tends to take a hit from the stress of having lupus and how it impacts my life in so many

26 likes

Lupus summer saving products

#beautyhaul #lemon8challenge @FabFitFun @CVS Pharmacy @L’Oreal Paris @elfcosmetics @Aquaphor @Neutrogena @Lemon8 Beauty these are the products I would save if I were to be on a deserted island. The @Neutrogena spf 60 blends in beautifully under my makeup. I live in Phoenix an

1 like

✨Living with lupus 🌸

So this happened today. So I have lupus and it is an autoimmune disease. This disease has a mind of its own and flares up randomly. So today I was sitting outside in the sun drinking my morning coffee, and watching YouTube videos. I then got up and went to use the ladies room and notice r

51 likes

An infographic titled "WHY IS MESS SO TRIGGERING?" features an illustration of a woman sweeping. Surrounding her are bullet points explaining how mess causes feelings like overwhelm, anxiety, guilt, and shame, and makes daily tasks challenging, reminding us of to-do lists and making us feel out of control.

#Lupus 🫶 #Fibromyalgia 🫶

15 likes

Understanding Lupus and Anxiety 💜

Hey Sunshine’s Living with lupus can be challenging, especially when it comes with anxiety. The unpredictability of flares and ongoing symptoms can create a lot of stress. Remember, it’s important to take care of both your physical and mental health. Find what helps you relax, whether it’s min

118 likes

A white background with purple text asking about chronic tiredness, lifelong medication, depression, and mood swings, all related to an invisible illness. Purple butterflies and ribbons are also present.

A purple background with text stating, 'Lupus Fact Change of weather can trigger a flare' and 'Lupus Butterflies and more...'. A purple ribbon with 'LUPUS' is in the top right corner.

A pink and purple background with text explaining that chronic fatigue is not just being tired and cannot be cured by sleep or coffee, describing it as total physical, mental, and emotional exhaustion.

#IHaveLupus 🫶🫶🫶🫶

40 likes

Lupus Warrior 💜

I'm just a girl fighting a battle that I didn't ask for. But asking for it, or not. I'm going to win at all means. Lupus messed with the wrong girl cuz I don't give up. #warriorqueen #lupus #lupuswarrior

19 likes

World Lupus Day

World Lupus Day #lupusawareness #lupus #chronicillness #chronicpain #autoimmune #autoimmunedisease #lupusstruggles #lupuswarriors #lupusjourney #marsblends #lupuswarrior🦋 #kidneyfailure #kidneydisease #kidneywarrior #SLE #slelupus #worldlupusday

26 likes

It gets old quickly dealing with lupus. #lupus #lupusawareness #lupuswarrior

10 likes

Lupus/rheumatoid arthritis Pain

Living with his since 2020.. it’s is not my favorite thing and the pain and level of tiredness I feel is dumb.. I want my old self back.

11 likes

Surprising this that Lupus and Rheumatoid Arthritis do. They make your nails all wonky! I use to have beautiful hands🥺 #arthritis #lLupus sucks

124 likes

An infographic titled 'Signs & Symptoms of LUPUS' displays various symptoms including extreme fatigue, hair loss, face rash, fevers, sun sensitivity, brain fog, liver issues, migraines, kidney issues, mouth sores, anemia, and joint issues.

✨Signs of Lupus✨

This past week has been a lot, especially after being diagnosed with Lupus. But at the same time, I am so grateful to know that I was not crazy imagining my symptoms. With symptoms that come and go (due to flare ups) one day your fine and the next day your dehabilitated. One min your body hurts so

635 likes

A close-up selfie of a woman with text overlays "I am the face of Lupus" and "fyp#foryou #explorepage". The image is decorated with purple hearts and butterflies, emphasizing Lupus awareness. The TikTok handle @angiebaby0215 is visible at the bottom.

#LupusWarrior💜🦋 #IamTheFaceOfLupus #ButGotGod♥️🙌🏾

6 likes

An infographic titled "How Lupus Affects the Body" shows a human silhouette surrounded by icons and text for symptoms like headache, hair loss, mouth/nose sores, fever, Raynaud's Syndrome, fatigue, sun exposure rash, and stiff, swollen joints.

Text describes neuropsychiatric lupus, causing depression, headaches, and lupus fog (trouble thinking/remembering). It states 25% of lupus patients experience major depression and 37% have major anxiety.

An infographic lists symptoms of lupus with icons: Fatigue, Fever, Anemia, Headache, Hair Loss, Butterfly Rash Across Face, Edema, Joint Pain & Swelling, Raynaud's Disease, Mouth & Nose Ulcers, and Sensitivity to Light.

Lupus 🫶🫶🫶🫶

Lupus has changed and ruined my entire life and body. It’s gotten worse due to also having fibromyalgia, hypothyroidism, inflammation, arthritis and osteoarthritis. The daily and constant pains are unbearable. The weight gain, the hair loss, the inflammation, the chronic insomnia, the depression, t

95 likes

A close-up image of skin showing a reddish, raised, irregular ring-shaped mark. The accompanying text describes it as a rapidly growing infection on a leg, requiring antibiotics, and related to Lupus.

Lupus makes your immune system go haywire

Any little infection I get, goes wild. A small bump got infected somehow and just kept spreading and spreading. Now I’m on 500 mg of Keflex FOUR times a day to get it under control #lupus #lupuswarrior #lupuswarrior🦋💜 #autoimmunedisease #sle

6 likes

As a girl with Lupus, I love:

All the comfort items, providers that listen, and awareness/advocacy for Lupus 🦋 #lupuswarrior🦋💜 #sle #autoimmunedisease #lupus

10 likes

LupusWarrior 🦋🦋💜💜

#lupuswarrior🦋💜 #lupusjourney #lupusawareness #lupusnephritis #lupuslife

6 likes

Lupus Warriors 💜🪻

Some days are harder than others… but I’m still here, still fighting 💜 Living with lupus isn’t easy, especially when people can’t see what you go through. The pain, the fatigue, the ups and downs… it’s real. But so is my strength Taking it one day at a time 💜 #LupusWarrior #InvisibleIl

1 like

Two smiling women, one holding a purple folder for the Lupus Foundation of America, both wearing lanyards.

Five smiling individuals in purple "SpoonBob FlarePants" t-shirts hold a "Walk to End Lupus Now" sign for the Lupus Foundation of America outdoors.

Two smiling women pose for a selfie, one wearing purple sunglasses and a purple t-shirt featuring a "SpoonBob" character.

Lupus has taken so much, but has also given me the blessing of great friends who get it

Lupus is awful and takes so much from us, but, I have gained some of my greatest friends who are fighting this disease with me. I’m grateful for each and every single one of them 💜💜

4 likes

My life with LUPUS‼️‼️(autoimmune disease)

Living with lupus is a journey of ups and downs, constant learning, and deep resilience. I want to share a piece of my life to raise visibility, break the stigma, and remind us that we’re not alone. Our health matters, and speaking about it is an act of courage and healing. #letschat #lemon8cha

54 likes

The Reality of Living with Lupus.

I’ve come to realize the reality of living with Lupus means learning what the word Chronic means. The chronic fatigue has been a battle I end up losing on a daily basis. #lupus #lupuswarrior #lupussymptoms #lupusearlysymptoms #chronicpain Memphis

46 likes

Defeating lupus 💪🏽

Lupus is my worst enemy but I won’t let it win

9 likes

Lupus Emergency Pouch

https://www.just-in-case-kits.com/ #emergencypouch #lupus #lupusawareness #lupuswarrior

41 likes

lupus & Hormones

Hormones, particularly estrogen, act as powerful chemical messengers that can significantly influence the immune system. This is a primary reason why lupus (Systemic Lupus Erythematosus) is much more common in women, especially during their childbearing years when hormone levels are at their peak.

122 likes

See more