Can you tell I’m sick?
✨Hey y’all!✨
Yesterday I posted explaining that I was diagnosed with Multiple Sclerosis in 2022. Just to recap, MS is an autoimmune disease where your immune system attacks the protective covering around your nerves, resulting in lesions in the brain and spinal cord. Today I would like to share what diagnosis was like for me! 🧠
Many people go years without diagnosis, because MS presents differently in everyone. In my case, my onset began with stuttering and mild aphasia. My tongue felt funny. I asked my family if I was talking strangely and they said no, then when I asked again 5 minutes later every face was painted with concern 😧
The best way I can describe it is that pins and needles feeling that happens when your foot falls asleep. You know that feeling? Well I had that, consistently, in my tongue. I couldn’t get it to cooperate with my brain so words were not coming out of my mouth correctly. 👄
I took a nap and woke up feeling better. As the evening progressed, it got worse again. I waited two days hoping to see some positive change, but when the left side of my face started drooping I finally decided to visit the ER. I walked up to triage and said, “Hi, I think I’m having a stroke.” 😬
They immediately rushed me back to get scans done. When those came back clear, my doctor got a pensive look on his face and ordered an MRI. I was breastfeeding so they couldn’t use contrast, but when the results came back he could tell I had lesions. He let me know we were most likely looking at a case of MS and ordered a spinal tap 💉
The ladies (a doctor and her assistant) who did my spinal tap were so kind. I had heard some horror stories and was on the verge of tears when they wheeled me into the operation room. They explained everything to me in gentle tones and talked to me while they were doing the spinal tap. They numbed me very well so I only had slight pain 💪🏻
The spinal tap came back confirming that I have MS. By this time I had managed to do some online research and I knew that with treatment, I would be okay. My life changed forever in just a few short days, but it’s given me something to fight for. I made a commitment to myself that I wouldn’t take my health for granted anymore. I ended up having another flare up just one short year later, which I will share more about another time. Receiving a life altering diagnosis is something you won’t understand until you’re in those shoes, and I hope you never have to experience that. But if you do, know that I am here for you. My inbox is open for anyone who has questions or is going through a similar experience!
#multiplesclerosis #embracevulnerability #unfiltered #letschat #awareness #recovery #chronicillness #Lemon8Diary #sick #healthylifestyle2024
Multiple Sclerosis (MS) is a complex autoimmune disease that varies widely among individuals. Symptoms can range from fatigue and mobility issues to cognitive challenges and nerve pain. Early recognition is critical due to the unpredictable nature of the disease. Many patients experience 'invisible symptoms' which can lead to delays in diagnosis, as mine did with stuttering and facial drooping. The diagnostic process often involves neurological exams, MRIs, and spinal taps, which can be daunting but are crucial for understanding the extent of the disease. Support networks and communities play a vital role in managing MS; connecting with others can provide emotional support and valuable information. Awareness initiatives are essential not only for spreading knowledge about MS but also for fostering understanding and reducing stigma around chronic illnesses. Educational resources such as the National Multiple Sclerosis Society offer comprehensive guides for both patients and caregivers. Remember, if you or someone you know is navigating similar health challenges, open communication can be a lifeline. Never hesitate to reach out for help or share your story, as it can empower others. Incorporating a healthy lifestyle, including proper nutrition, physical activity, and stress management, significantly impacts symptom management and quality of life for MS patients. Engaging in activities that promote physical and mental well-being is key, as is staying informed about the latest advancements in MS research and treatments.
Hey. Welcome back Kaylie. Miss you. And yes I take my medicine everyday ! 🥰