Livedo reticularis is a skin finding where the skin develops a lace-like, net-shaped, reddish-purple or bluish pattern, most commonly on the legs, but sometimes on the arms or trunk. Livedo reticularis occurs because blood flow through small blood ve

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#onthisday

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What do you call the feeling after an appointment with a provider that just doesn’t get it? Lonely? Isolating? I’m trying to put it into words #lupus #autoimmunedisease #lupuswarrior🦋💜 #sle

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First Urology Appointment for Hydronephrosis #hydronephorosis #urology #lupus #autoimmunedisease #lupuswarrior🦋💜

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Urology appointment update - I am consistently shocked at the lack of knowledge of Lupus with providers at times, and today was certainly one of them

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#onthisday

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Another Methotrexate Thursday night. I’m currently taking three per week (with 1 mg folic acid each day except Thursdays) to see if it will help my burning mouth from Sjögren’s Disease. #sjogrens #lupus #autoimmunedisease #lupuswarrior🦋💜 #sle

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Lupus vent… the appointments never end. Tomorrow is my urology appointment to address my swollen kidney #lupus #lupuswarrior🦋💜 #autoimmunedisease #sle

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If you’ve never experienced a brain MRI, this is essentially what it’s like. They put a cage over your head and you lay super still in the MRI machine (which is like a tube) #mri #brainmri #lupus #lupuswarrior🦋💜 #autoimmunedisease

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Chronic illness struggles

So often those of us with chronic illness hear, “But you don’t look sick”, “Are you sure it’s not just in your head?”, “Your labs look normal”, “Oh, I knew someone with that, but they died”, or “Have you tried…” None of these things are helpful. What is helpful? Listening to us, asking us ho

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#onthisday

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Replying to @Vintage Sweet Finds Respectfully, I might not have been alive today without meds, so yes, I will keep taking them. #lupus #lupuswarrior🦋💜 #autoimmunedisease #sle

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Lupus Symptoms I’ve had the past few days #lupus #lupuswarrior🦋💜 #autoimmunedisease #sle

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Lupus Symptoms I’ve Experienced the Last Few Days. I’m doing better today after my infusion 💜💜 #lupus #lupuswarrior🦋💜 #autoimmunedisease #sle

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#onthisday

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#onthisday

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EMLA cream for port access. I put the cream on an hour before my port is accessed and it makes it so numb that I barely feel them stick me at all. The stick also isn’t bad without cream, but I use it anyways to just experience even less pain #lupus #lupuswarrior🦋💜 #autoimmunedisease #powerpo

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Tonight probably sums up an autoimmune personality to rhe T. Always putting everyone and everything before ourselves. I would never change that about myself though. Empathy all day everyday for everything and everyone over here, including this sweet gopher tortoise. You can catch me on the sides of

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Some people have monthly hair or nail appointments… I have infusions. #benlysta #benlystainfusion #lupuswarrior🦋💜 #lupus #autoimmunedisease

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#stitch with @Rosie Benlysta Infusions - what they look like, how long they take, what premeds I’m given 💜 #benlysta #benlystainfusion #lupuswarrior🦋💜 #lupus

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Heather - Living with Lupus 🦋