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Six years ago, I wrote from one of the hardest seasons of my life. Reading those words today, I have so much compassion for the woman I was. She was grieving, scared, and trying to trust God with a future she never would have chosen. So much has changed since then. And yet one thing remain
Julia Erman

Julia Erman

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Six years ago, I wrote these words after meeting with the genetics team at Children’s
At the time, I was grieving the realization that both of our children would face life with a rare genetic disorder. Reading those words today, I have so much compassion for the version of myself who wrote them. She was scared. She was overwhelmed. She was trying to imagine a future she
Julia Erman

Julia Erman

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What it’s like to be diagnosed with cancer while pregnant. #cancerwhilepregnant #chemowhilepregnant #cervicalcancer
Julia Erman

Julia Erman

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Sometimes it all just hits me. Tonight, after putting the kids to bed, everything I’d been holding inside finally came pouring out. I realized something about myself. I spend most of my life holding it together. Holding the grief. Holding the joy. Holding the appointments. Hold
Julia Erman

Julia Erman

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Hear how I was diagnosed with cervical cancer while pregnant with Russell. What started as a routine pregnancy quickly became a fight for both of our lives. In the middle of preparing to welcome a baby, I was facing cancer treatments, impossible decisions, and a future filled with uncertainty.
Julia Erman

Julia Erman

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Sometimes the miracle isn’t the healing. Sometimes the miracle is finding the strength to keep showing up when life doesn’t look the way you hoped it would. It’s choosing joy in the middle of uncertainty. It’s finding gratitude on the hard days. It’s loving fiercely, believing boldly, and t
Julia Erman

Julia Erman

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If you’re looking for a fun family adventure, the Lost Sea in Sweetwater, Tennessee is definitely worth the trip! The tour guides do an incredible job bringing the cave’s history to life through storytelling while teaching you all about this unique underground world. We recently took our nieces
Julia Erman

Julia Erman

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Six years ago, we weren’t sure Russell would make it to this moment. Today, we’re grabbing ice cream to celebrate a very sweet milestone—Russell turning 6 and officially outliving the average lifespan of his rare genetic disorder. If you’ve followed our journey, then you know every birthday f
Julia Erman

Julia Erman

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Six years ago, doctors weren’t sure Russell would survive. Most children with his rare genetic disorder, NKH (LIAS variant), don’t live past infancy. For those who do, the average lifespan is often only a few years. This week, Russell turned six. Six years of laughter. Six years of miracl
Julia Erman

Julia Erman

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#soccer #tiktokcampaign #facebook #worldcup
Julia Erman

Julia Erman

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If you know, you know. 🤍 One of my favorite places to treasure hunt is the local Goodwill and charity shops. I always seem to find the best pieces there, and the prices are incredible. My secret? Go often. The good stuff doesn’t stay long, and every visit is different. Whether I’m looking
Julia Erman

Julia Erman

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Today is a really big day for our family. My son has officially outlived the average age for his root genetic disorder, NKH. Most children with NKH pass away within the first 10 days of life. And for those who survive past those first 10 days, the average life expectancy is often around 3 to 5 y
Julia Erman

Julia Erman

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Tomorrow my son Russell turns 6 years old. And I can’t let this week pass without stopping to acknowledge what that means. Russell has an ultra-rare form of NKH called the LIAS variant. When he was born, we were told his future was uncertain. The average lifespan for children with this disord
Julia Erman

Julia Erman

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Stopped by Honey Bee Coffee in Knoxville, right across from Costco, to fuel up before tackling my grocery run. This place is HUGE with such a cute aesthetic. Whether you’re looking for a spot to work, study, meet a friend, or enjoy a coffee date, they’ve got plenty of seating and cozy spaces to
Julia Erman

Julia Erman

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Russell turns SIX this week. Six years ago, we were told a very different story. We were handed statistics, life expectancy charts, and a prognosis that suggested we should prepare for the worst. But here we are. Six years of laughter. Six years of snuggles. Six years of watching God wri
Julia Erman

Julia Erman

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Tellico Beach is just an hour from Knoxville and sits at the start of one of the most beautiful scenic drives in East Tennessee. The views never disappoint, and the food is always worth the trip. 🌄🚗🍔 #TellicoBeach #EastTennessee #KnoxvilleTN #TennesseeRoadTrip #ScenicDrive
Julia Erman

Julia Erman

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One of the hardest things God has ever taught me is that I can’t do this alone. Not because I don’t love my children. Not because I’m not willing to work hard. But because some journeys were never meant to be carried by one person. For years, I thought if I could just work harder, get m
Julia Erman

Julia Erman

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Some days I’m so focused on the next thing—the next goal, the next challenge, the next problem to solve—that I forget to pause and notice the gifts God has already placed in front of me. The laughter. The little moments. The ordinary days that one day won’t feel ordinary at all. Lord, help
Julia Erman

Julia Erman

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Today was one of those days I’ll never forget. As a special needs mom, milestones often come with mixed emotions. Joy. Gratitude. Pride. And sometimes questions about the future. But today, I’m choosing to celebrate what is. Russell graduated kindergarten. And years ago, even that felt
Julia Erman

Julia Erman

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#christians #childrensbible #biblestudy #vbs
Julia Erman

Julia Erman

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Julia Erman
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Julia Erman