I was diagnosed with IIH (Idiopathic Intracranial Hypertension) and Papladema Both go hand and hand. Its pressure in your skull from over production of spinal/brain fluid that causes brain swelling and optic nerve swelling which can cause serious issues. The past 3 days I have suffered with pressure so severe I almost passed out. My neuro opth. dr saw me immediately and told me to go to the ER where they got me in for a procedure called a lumbar puncture/spinal tap. Its a big needle stuck into your spine to release the spine/brain fluid to relieve and measure the pressure. This has been a long and scary journey for me but today im feeling some relief but alot of spine pain and have to take it easy for the next few days.

#IIH #intercranialhypertension #spinaltap #lumbarpuncture #hospital

6/3 Edited to

... Read moreDealing with Idiopathic Intracranial Hypertension (IIH) can be incredibly overwhelming, especially when symptoms escalate rapidly. From my experience, one of the most daunting moments was the need to undergo a lumbar puncture, also called a spinal tap. This procedure, although intimidating due to the insertion of a needle into the spine, plays a crucial role in reducing the excess cerebrospinal fluid that causes dangerous pressure buildup inside the skull. Before my procedure, the pressure in my head reached nearly unbearable levels, causing severe headaches and vision disturbances related to papilledema, where the optic nerve becomes swollen. It's a serious condition that, if untreated, can lead to vision loss. Quick intervention by my neurologist and ophthalmologist was vital in preventing this. Post-procedure, while I'm relieved the pressure has eased, the pain from the lumbar puncture itself is not negligible. Managing this pain and resting appropriately are essential parts of recovery. It's crucial to stay well-hydrated and avoid strenuous activities to help your body adjust after such an invasive procedure. For anyone facing IIH, I encourage learning as much as possible about your condition and treatment options. Support groups and forums, especially those focused on #IIH and #lumbarpuncture, can provide helpful insights and emotional support. Remember, you’re not alone in this journey, and working closely with your healthcare team can make a significant difference in managing symptoms and improving quality of life.

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