TikTok shop is offended by this and won’t let me have a shop, so get the hat from my Shopify, link in bio! ✊🏼♿️ #MakeAmericaGuaranteeAccessibility #MadeYouLook #DisabilityJustice #DisabilityTiktok #DisabilityVisability

I don’t share this very often, but I wrote Zabrina the Zebra a few months after the onset of my physical conditions in 2019, and I published it in 2022. When I wrote it, I was processing what was happening to me. It was deeply traumatizing. Like always, I processed my feelings through art. I

You do not need to understand every scar, mobility aid, medical device, oxygen tank, or visible difference you see on someone’s body. It’s really not your business. And you are not automatically entitled to ask about it just because you’re curious. You are not entitled just because you see me o

Disabled people constantly hear others praising our spouses for doing the bare minimum expected in any loving relationship, as though remaining committed to a disabled partner is the ultimate sacrifice. Sometimes, they even make comments like this…which paints disabled people as a burden. It’s quit

An ICE facility is coming to a town near me…and near you, too! ICE and the Department of Homeland Security are building 23 more ICE detention warehouses across the country—and one of them is in Hagerstown, Maryland, about two hours away from me. These are industrial buildings for distribution

I was on the phone with my social worker from palliative care, planning my end-of-life care. Most people my age don’t have to think about that. We were filling out my MOLST and advance directive. A MOLST (Medical Orders for Life-Sustaining Treatment) is a legally binding medical order. It t

Palliative care gave me enough relief to feel like I had my life back, and I injured myself 🤪 I’ve been in palliative care for about a month now, and I am not use to having any level of pain control. So when I felt relief and was able to take my wheelchair out AND stand for 3 minutes at a time a

Though palliative care doesn’t make me less sick, it does make my life more livable☀️. I still deal with pain, nausea, exhaustion, and all the things that come with being medically fragile. What changed is how much of it is managed and how much of my life is no longer spent just trying to endure

The response to the opioid crisis is putting seriously ill patients at risk. Per usual, disabled folks who depend most on last resort medications pay the price of unjust policies. Congress really needs to reconsider how they’ve attempted to manage the opioid crisis. [ID: A video of Syan

Let me know. #PalliativeCare #ChronicIllnessWarrior #disabilitytiktok

Replying to @cadnac22 #palliativecare #chronicillnessawareness

Replying to @janetg1021 This is part 1, part 2 coming soon. Step 1: Call your insurance and ask them about palliative care services and they will help you with the process. Step 2: Talk to your doctor! [ID: A video of Syanne, a disabled Afro-Indigenous Latina, speaking directly into the camera

#PalliativeCare #DisabilityAwareness #ChronicIllnessWarrior

A disease affecting 1 in 10 women and those with uteruses still receives only about $2 per patient per year in research funding in the United States. March is Endometriosis Awareness Month, and every year I’m reminded of how little research there is for this disease, despite how common it is.

Today something happened that I will probably remember for the rest of my life 🥹 Right before I was supposed to speak at the flagship @standupforscience rally on the National Mall, the ramp to the stage broke 😩. Then something beautiful happened. Truly did not expect it. A group of volun

For a long time, I thought palliative care meant something bad. But it doesn’t at all. It just means adapting to the body I exist in—and not the one I keep hoping to get back. Because that’s unlikely to happen. So maintaining my joy now means choosing supportive services so that my symptoms

When Bad Bunny steps onto the Super Bowl stage, it’s a rare moment where Latino joy is visible. And that joy matters—especially for multi-marginalized Latinos who are being hit on every front right now by this administration. For me, it’s especially impactful as a Puerto Rican woman myself.