A few years ago, there was a debate in my local community about whether fathers should be allowed in women’s restrooms to help their very young daughters. Tons of people were furious about it. I remember adding to the conversation and explained that sometimes my husband has to come into the r

We fought for decades to get disabled people out of institutions, and now we’re cutting the very services that keep them out. I’m absolutely appalled that Maryland leadership (my state) is allowing this to happen. Maryland is cutting funding for self-directed disability services, reducing some

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The best job ever. You should try it sometime.

Guys this is so wholesome 🥹 watch until the end!!!

Nearly HALF (48%) of undocumented immigrants have avoided seeking medical care since January 2025 due to fears of ICE. Disabled immigrants are literally having to avoid getting cancer treatment or dialysis because of ICE presence outside of these facilities. If you’ve been keeping up, then you

ReLisa DeFilez 💅🏽😏

Finish the story! available on Amazon prime. “Zabrina the Zebra”, out now. #DisabilityVisability #DisabilityAwareness #ZabrinatheZebra #RareDisease #NothingAboutUsWithoutUs

“There’s no market for this.”That’s what multiple literary agents and publishers told me about this children’s book in 2021, a year before I decided to figure out how to do it on my own. Funny thing is that publishers and agent actually told me it was beautiful, meaningful, and well done. They

TikTok shop is offended by this and won’t let me have a shop, so get the hat from my Shopify, link in bio! ✊🏼♿️ #MakeAmericaGuaranteeAccessibility #MadeYouLook #DisabilityJustice #DisabilityTiktok #DisabilityVisability

I don’t share this very often, but I wrote Zabrina the Zebra a few months after the onset of my physical conditions in 2019, and I published it in 2022. When I wrote it, I was processing what was happening to me. It was deeply traumatizing. Like always, I processed my feelings through art. I

You do not need to understand every scar, mobility aid, medical device, oxygen tank, or visible difference you see on someone’s body. It’s really not your business. And you are not automatically entitled to ask about it just because you’re curious. You are not entitled just because you see me o

Disabled people constantly hear others praising our spouses for doing the bare minimum expected in any loving relationship, as though remaining committed to a disabled partner is the ultimate sacrifice. Sometimes, they even make comments like this…which paints disabled people as a burden. It’s quit

An ICE facility is coming to a town near me…and near you, too! ICE and the Department of Homeland Security are building 23 more ICE detention warehouses across the country—and one of them is in Hagerstown, Maryland, about two hours away from me. These are industrial buildings for distribution

I was on the phone with my social worker from palliative care, planning my end-of-life care. Most people my age don’t have to think about that. We were filling out my MOLST and advance directive. A MOLST (Medical Orders for Life-Sustaining Treatment) is a legally binding medical order. It t