Living with Gastroparesis ✨

Hi Lemonssss, so my story is a long one but I’ll summarize as best as I can. I’ve been living with gastroparesis ( partial paralyzation of the stomach) for about 4 years now after having type 1 diabetes since I was 4 ( I’m 26). Around high school I was started to develop symptoms of kidney disease/ failure but didn’t really understand at the time.

Fast forward to my 2nd year of Uni, ten days after school let out my back was hurting and I never get back pain. Doctors thought I had tuberculosis, I did a lung biopsy and started to bleed through my mouth while in this machine. Code blue. Many surgeries. 3 years of dialysis and losing “friends” and developing some anxiety, leaning more towards my introvert side and becoming a chronic homebody and pretty antisocial- worse than I used to be.

Skip, I get a transplant from a donor and gain my life back right? No. Gastroparesis takes over. I’ve been able to manage it a bit by taking supplements, herbal meds, olipop, kombucha, Yakult, teas, etc. but currently I’m hospitalized with a severe kidney and pancreas rejection.

Treatment is going well, I have a high pain tolerance so it’s nothing to me but my gastroparesis is acting up so bad and it’s never been this bad. Even my kidney doctor is stumped at the fact my colon is so full yet no matter how much I “go” the top of my abdomen won’t go down, I’m nauseating, scared to eat, having headaches and having severe heartburn. My friends and family are the ones helping me power through 🩷 My mum even bought me a bear 🥹 I’m very emotionally strong but I’m actually just tired TODAY. I can’t get a stomach pacer because of my transplant and my immune system being so weak. Hopefully this Friday (06/21/24) I can go home or Saturday and my symptoms are better so I can figure it out at home.

The worst thing is my gastroparesis is actually a mild one. People on the floor I’m on have it SEVERELY so I can’t even begin to imagine what they’re going through 🥺💔

Anyway, I just wanted to share my journey real quick incase anyone else is going through the same. It’s hard to come across lots of people with this illness on the internet or even a support group :/ I’m blessed to have come across such a great circle these past couple years who love my unconditionally even though my mind plays tricks on me and says I’m a burden sometimes. It’s hard to be able to work and go out spontaneously but #chronicconstipation #chronicillnesscommunity #gastrointestinal #gastroparesis #gastroparesisawareness Dallas If anyone has any recommendations or shares a similar story or just has Gut issues as well please comment :) 🥰

#letschat

2024/6/18 Edited to

... Read moreFinding what to eat when you have gastroparesis can feel like a constant puzzle, right? I know firsthand how frustrating it is when every meal feels like a gamble. After years of navigating this condition, and especially after tough episodes like my recent hospitalization, I've really focused on understanding my body and what foods are generally 'safe' for gastroparesis, especially when symptoms like nausea, poor appetite, or upper abdominal bloating kick in. It's not a one-size-fits-all, but here's what I've learned and what often works for me and many others in the gastroparesis community. First off, the general rule of thumb is to go for small, frequent meals rather than large ones. This is crucial because it reduces the load on your stomach and helps prevent that uncomfortable feeling full sensation. Aim for 5-6 small meals throughout the day. When it comes to the types of food, focusing on gastroparesis diet soft foods is key. These are easier for your stomach to process. Think about low-fat and, surprisingly to some, often low-fiber options. High-fat foods can slow digestion even further, and while fiber is usually healthy, insoluble fiber can be tough for a gastroparetic stomach. So, what's on my gastroparesis food list for safe choices? Liquid & Puréed Options: Broths, clear soups, nutritional shakes (like Ensure or Boost, if tolerated), and smoothies made with easily digestible ingredients. I find smoothies with protein powder, a little cooked spinach, and banana can be a lifesaver when my poor appetite is an issue. Soft Proteins: Scrambled eggs, well-cooked white fish, ground chicken or turkey. Avoid fried meats or tough cuts. Cooked & Peeled Fruits/Vegetables: Applesauce, canned peaches (without skin), well-cooked carrots, mashed potatoes (skinless), and puréed pumpkin or squash. Raw fruits and vegetables, especially those with skins and seeds, are often challenging. Refined Grains: White bread (toasted is often better), plain crackers, white rice, and pasta. Whole grains, while typically healthier, can be difficult due to their higher fiber content. Dairy (if tolerated): Some people find plain yogurt or cottage cheese okay, but others struggle with dairy. Listen to your body. I've also found certain things to generally avoid. High-fat foods like fried items, greasy fast food, and creamy sauces are usually a no-go. High-fiber foods, especially raw vegetables and fruits with skins, can cause significant discomfort and bloating. Carbonated drinks tend to worsen acid reflux and bloating, so I stick to still water, herbal teas, or my beloved kombucha (in moderation, as it can be slightly fizzy). Spicy foods can also irritate the stomach lining. It's a constant learning process, and what helps one day might not the next. Always remember to stay hydrated, especially if you're experiencing vomiting or nausea. And most importantly, these are just my personal observations and common recommendations – always discuss dietary changes with your doctor or a registered dietitian who specializes in gastroparesis. They can provide personalized advice to manage your unique symptoms and ensure you're getting adequate nutrition.

20 comments

Angela Jones's images
Angela Jones

I have severe Gastroparesis. It’s no fun and causes a lot of anxiety. I’m on a lot of medications. I take it day by with Jesus and my husbands help. I can barely eat anything.

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amber goodman's images
amber goodman

I have gastroparesis as well, so frustrating working with some doctors because i get told a lot the symptoms i’m having will just stick w me for the rest of my life (im 20). i had an intestinal blockage at 14- finally got surgery for it at 18 and now here i am with this. It’s definitely hard socializing nowadays🥴

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