Wife has seizure during holiday shopping

Wife who is diagnosed with functional neurological disorder, has seizure while in the store shopping for the holidays, but husband stops the seizure from lasting longer.#FND

2024/11/28 Edited to

... Read moreMy wife’s recent seizure during holiday shopping was a stark reminder of how functional neurological disorder (FND) can impact daily life. It also got us thinking more deeply about how different conditions can present with similar, often frightening, symptoms. We’ve learned so much about FND since her diagnosis, and how it can cause non-epileptic attacks that look very much like seizures. Sometimes, people get confused between FND seizures and other conditions, like POTS (Postural Orthostatic Tachycardia Syndrome), especially when searching for terms like 'POTS seizures'. While FND and POTS are two distinct diagnoses, they can sometimes co-exist or have overlapping symptoms that might lead to 'seizure-like' episodes. For instance, individuals with POTS often experience significant drops in blood pressure and heart rate changes upon standing, which can lead to fainting (syncope) or pre-syncopal episodes. During these episodes, some people might experience brief jerking movements, which can be mistaken for a seizure. However, these POTS-related jerks are usually part of a fainting spell due to cerebral hypoperfusion, not a neurological 'short circuit' like an epileptic seizure or the specific brain network dysfunction seen in FND attacks. Understanding this key difference is crucial for getting the right diagnosis and treatment plan, as management for each condition varies significantly. For FND, managing stress, fatigue, and identifying triggers is essential. Therapy, such as Cognitive Behavioral Therapy (CBT), and physical therapy can be incredibly helpful in retraining the brain. If you ever witness someone having a seizure or a seizure-like event, whether it's an FND attack, an epileptic seizure, or a POTS-related faint, the core principles of support remain similar: ensure their safety by gently guiding them away from hazards, stay with them, and don't restrain them. If it's their first seizure, lasts longer than usual, or they have difficulty recovering, always call for medical help. Our experience, especially during something as seemingly routine as holiday shopping, showed us the immense value of quick thinking and a supportive partner. It’s not just about stopping the seizure from lasting longer, but also about providing comfort and reassurance during such a vulnerable moment. Continuing to educate ourselves and others about FND and related conditions helps foster more understanding, reduces stigma, and empowers us to better support those living with these invisible illnesses.

77 comments

Lorna Cartrette's images
Lorna Cartrette

Thanks for showing us your personal moments like this. It seems you’ve worked out a good system. Love the way you both handle it. ❤️

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