Living with POTS

Some days are like the first photo; I feel like me. The old me where I could take on the world and move mountains. Other days its all about rest and finding a pupper to cuddle me. We affectionately call them “Dr. Doggy” when they do this. It’s almost as if they can tell when I am not ok, when I need the break. Almost as if they know if they don’t lay on top of me I will try to “push through” and make things so much harder for myself later. Then other days feel like a dream such as the last photo. I am standing on a beach with my fiancé planning our wedding. I think this is the hardest part of having an invisible diagnosis for me. It is always there but sometimes it is quiet enough that I feel I can forget (which often leads to overdoing it). The quiet days also impact the loud days because I often compare what I used to do or even did yesterday to my struggles today. There isn’t anything looking back at me in the mirror that warns me “hey you have POTS and Fibromyalgia.” It’s hidden and stealthy.

All in all, I am buckled in to the ride and will make it fun for myself and hopefully helpful for others. #safespace #lemon8challenge

2024/10/21 Edited to

... Read moreLiving with POTS can be an emotional roller coaster, with good days and challenging ones. It’s essential to recognize your body's signals and allow for rest when needed. One effective strategy is to incorporate mindfulness practices into your daily routine, which can help you stay grounded and aware of your physical state. Connecting with supportive communities online, such as forums and social media groups, can also provide encouragement and shared experiences from others facing similar struggles. Resources like educational websites and local support groups can enhance your understanding of POTS, helping you find coping strategies tailored to your lifestyle. Learning about pacing yourself and seeking professional guidance can further empower you to manage symptoms effectively while pursuing your passions and goals. Additionally, consider exploring adaptive techniques for social interactions and events, so you can engage meaningfully without overexerting yourself. Small adjustments, like using mobility aids or planning quieter outings, can make a significant difference in your quality of life. Ultimately, embracing a proactive approach to managing your condition, while celebrating the wins—no matter how small—can lead to a more fulfilling experience in everyday life.

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