2025/1/16 Edited to

... Read moreChronic illnesses such as Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS) are increasingly recognized in today's medical landscape. EDS affects connective tissue, causing symptoms like hypermobility and skin elasticity issues, while POTS is characterized by an abnormal increase in heart rate when standing. Both conditions can significantly impact daily life, with symptoms ranging from fatigue to dizziness. Communities online often create support networks, which can be invaluable for sharing personal experiences and coping strategies. Engaging in discussions and forums can lead to better understanding and management of these syndromes, offering hope and solidarity to those facing similar journeys. Research continues to evolve, bringing new insights into diagnosis and treatment options, emphasizing the importance of raising awareness and education on these often-overlooked illnesses.

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To my Followers…Yes, I have Ehlers Danlos Syndrome
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What Is Ehlers-Danlos Syndrome?
For months, I’ve been experiencing symptoms that I can only describe as feeling like I had the flu—every single day. The nausea, bone-deep fatigue, and crashing exhaustion after doing something as simple as running errands would leave me in bed for days, sometimes even weeks. There were days I coul
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A person with hair in a bun takes a selfie outdoors near a body of water and bare trees, with text "RUNNER TIPS for my EDS zebras!" overlaid.
A scenic view of a lake and trees under a sunset sky, with text "1. Pick the Weather" and advice about avoiding extreme temperatures for running.
A shopping cart filled with groceries including fresh produce, dairy, eggs, and some packaged treats, illustrating the tip "2. You are what you eat."
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A person with short pink hair, wearing a coral dress, smiles by a lake, illustrating the title "symptoms I thought were normal but were actually ehlers danlos syndrome."
A person in a black sweater with colorful dinosaur patterns holds a drink in a dimly lit venue, illustrating the symptom "getting the hiccups ALL the time (painful ones)."
A person with dark hair, wearing a blue top, smiles while holding a drink with an orange rim, illustrating the symptom "shaky hands and twitchy eyes (eyeliner=impossible)."
Normal or a symptom of ehlers danlos syndrome?
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Wasn’t growing pains, it was Ehlers Danlos Syndrome
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May is ehlers danlos syndrome awareness month!!🧡🦓
if you suffer from chronic illness, whether that's EDS or something else, feel free to reach out! Id love to talk!🧡🦓 go follow my insta🩷👉 @gracye_gwen1 #chronicillness #fyp #ehlersdanlossyndrome #awarness #chronicillnessawareness
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A purple title slide with "YOGA POSES FOR EHLERS-DANLOS SYNDROME" in white text. It features a crescent moon icon and four empty light pink circles, with the Lemon8 logo and username at the bottom.
An illustration of a woman sitting in a cross-legged meditation pose with hands in Gyan Mudra, against a light orange circular background. She has her hair in a bun and is wearing a sports bra and leggings.
Two illustrations showing a woman performing Cat-Cow Pose. The top image shows Cat Pose with a rounded back, and the bottom image shows Cow Pose with an arched back, both on hands and knees.
Gentle Yoga for Ehlers-Danlos Syndrome: Strengthen
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Happy Ehlers Danlos Syndrome Awarenes Month!
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A black and grey tattoo on skin depicts a skeleton hand giving the middle finger, with a salt shaker pouring salt onto it. The tattoo symbolizes chronic illness awareness, specifically for POTS and Ehlers Danlos Syndrome.
Ehlers Danlos Syndrome Awareness Month
My Artist killed this POTS and EDS tattoo I wanted. I told her I wanted a bad ass tattoo to both honor my fight and tell my illness to suck it. So she drew up this skeleton hand giving the finger with a salt shaker. It’s perfection if I do say so myself! #potsawareness #ehlersdanlossyndrome #t
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The Person Behind the Chronic illnesses
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A Day in the Life with Ehlers-Danlos Syndrome
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An image listing numerous symptoms and conditions associated with Ehlers Danlos Syndrome (EDS), such as easy bruising, chronic pain, dislocations, gastroparesis, and aneurysms, surrounding a white outline illustration of a zebra.
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An image titled "EHLERS-DANLOS SYNDROMES" listing various symptoms like generalized joint hypermobility, chronic fatigue, pain, poor healing, and gastrointestinal disorders, with a zebra head and purple awareness ribbon.
Ehlers Danlos Syndrome
Signs and Symptoms and how it can present itself… A connective tissue disorder where you have faulty collagen in your body.
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🦓Ehlers-Danlos Syndrome🦓
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A smiling woman in a red and white striped shirt stands in front of a waterfall and building. Text overlays state, 'I asked chat gpt what it's like living with Ehlers Danlos Syndrome And here's what it said->'.
White text on a black background describes living with Ehlers-Danlos Syndrome, likening the body to a marionette with loose joints, experiencing joint slips, unpredictable steps, and constant muscle aches.
White text on a black background discusses the daily pain of Ehlers-Danlos Syndrome, describing it as a constant hum of discomfort that can spike, and comparing it to multiple simultaneous aches.
Life with Ehlers-Danlos according to Chat gpt
Honestly it helped me being able to read it like this and have it put into words. Is it helpful for you too? #ehlersdanlos #ehlersdanlossyndrome #chronicillness #healthinfluencer #health #healthandwellness
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Intro to Ehlers Danlos Syndrome
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Let’s hydrate through my heart! Aka setup IV fluids/hydration with me! #IVFluids #DisabilityAwareness #EhlersDanlosSyndrome #Chronicillness #fypシ゚viral
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A meme comparing Ehlers-Danlos Syndrome (EDS) and vampirism, featuring a hypermobile hand, a vampire, and a list of shared signs like thin skin, visible veins, sunlight avoidance, iron obsession, insomnia, and nocturnal habits, humorously attributed to 'Vampires With EDS'.
Ehlers-Danlos Syndrome (EDS)
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A person with black and white hair looks at the camera, with text overlay "SYMPTOMS OF EHLERS-DANLOS NO ONE TALKS ABOUT BECAUSE THEY AREN'T PARTY TRICKS," introducing the topic of EDS symptoms.
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A close-up of skin displays severe red and purple stretch marks, accompanied by text explaining they are "SEVERE OR IN UNUSUAL PLACES BASED ON SEX AND WEIGHT," a symptom of Ehlers-Danlos.
EDS skin symptoms that…
People don’t talk about because they aren’t fun party tricks. There’s a misconception that Ehlers-Danlos is a disorder that allows people to perform cool tricks, and while many of us can, this misconception overshadows the plethora of other symptoms we experience. #ehlersdanlossyndrome #hype
✮ Kyle-Tyler ✮

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Ehlers Danlos syndrome is tearing me apart!
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A medical room with a bed and a Siemens machine, viewed from a patient's perspective. Overlay text reads 'SIGNS OF EHLERS DANLOS IN CHILDHOOD', indicating the early manifestation of the syndrome.
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ehlers Danlos syndrome can start showing signs very young! #ehlersdanlossyndrome #chronicillness
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#Autism #EDS #AuDHD #ehlersdanlos
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Ehlers Danlos syndrome is tearing me apart
#ehlersdanlossyndrome Vulnerability 🤍 My Story: Fourth rotator cuff surgery. 🤍 How I Felt: I'm always broken, fragile, and in constant pain. 🤍 My Takeaways: No one understands this condition.
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Get to know me!
#gettoknowme #newtolemon8 #alternative #alternativefashion #transgender #FTM #disabled #ehlersdanlossyndrome #autism
✮ Kyle-Tyler ✮

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Hypermobility Ehlers Danlos Syndrome
After 26 years of battling doctors and horrific spasms and onto chronic widespread joint pain and not knowing anything. Then, watching my oldest daughter go thru the same thing and then my youngest, I knew I needed to figure this out. I finally after a crap to of research and my oldest showing off
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A person's wrist with a fitness tracker displaying a heart rate of 172 bpm, with text indicating this is their daily heart rate as someone with POTS, even when just cutting strawberries.
A heart rate graph showing a peak of 198 bpm at 3:52 PM, with text stating the person 'passed out here' and would not recommend the experience.
A heart rate graph illustrating spikes into vigorous and peak zones, with text describing these spikes occurring 'inbetween classes' and expressing dislike for getting up fast.
Charts included
This should definitely count as working out for the day. Stay salty my friends 🧂❤️ #posturalorthostatictachycardiasyndrome #potsawareness #chronicillness #heart #ehlersdanlossyndrome #lemon8diarychallenge #selflove #workout #selfcare #heds
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Summer for someone with chronic illness part 2
Staying out of the heat, sleeping a lot, reading a lot, sooooo many BP checks, lots of nausea. The usual. #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #gastroparesis #dayinthelife
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Replying to @Bug 🐛🐞🪲 my view of which exercises are most helpful with EDS and POTS! But it is different for everyone and it takes a lot of trial and error #chronicillness #chronicillnessworkout #ehlersdanlossyndrome #ehlersdanlos #pots
Unseen & Believed

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Replying to @Leigh Sugar my theories about Maffucci syndrome and Olliers Disease having association with Ehlers-Danlos Syndrome 👀
adisabledicon

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Trans and LGBTQIA+ safe space
I see a decent bit of homophobia on this app, so if you need a place to get away, I'm always here! Repost this if Trans people are safe with you! (i got this from another creator on this app, but i don't remember their name. If anyone knows, please tell me 😭) stay salty, my friends 🧂❤️
SharkintheWaters

SharkintheWaters

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Setup my daily hydration with me, my #IVFluids and pushing an #IVZofran since it’s a hot day at the beach and ya girl is dehydrated af rn (asmr edition as requested ;) 💖 #Fluids #POTSSyndrome #SpoonieLife #HypermobileEhlersDanlosSyndrome #HickmanCentralLine #Hydration #ASMR #Gast
Lindsay Murray

Lindsay Murray

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A meme featuring a zebra with text overlay: 'SKIN OF A NEWBORN' and 'JOINTS OF AN 80 YEAR OLD WOMAN'. A banner across the middle reads 'HEDS Memes to get you through those tough times...'. The background is a green, blue, and yellow radial pattern.
A split image meme. The top shows a person celebrating at sunrise with 'SOME PEOPLE IN THE MORNING'. The bottom shows a person face down on the floor with 'ME', humorously depicting morning struggles.
A four-panel meme showing stick figures experiencing various clumsy accidents: falling off a chair, tripping over a cord, bumping into a cart, and falling down stairs. The title reads 'me: a day in the life'.
Hypermobile Ehlers Danlos Sydrome Memes
A lot of these come from the site/app the mighty. I heavily recommend it for both a good laugh and informative information about this chronic condition and others! stay salty my friends 🧂❤️ #hypermobileehlersdanlossyndrome #memes #lemon8diarychallenge #posturalorthostatictachycardiasyndrome
SharkintheWaters

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Some FAQs about EDS!
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Jayden🪻

Jayden🪻

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An infographic titled 'WHAT IS A SPOONIE?' explaining that a 'spoonie' is someone with a chronic physical or mental health condition that limits daily energy, requiring careful activity choices as each task uses 'spoons' (energy).
Text explaining 'HOW DOES IT WORK?' in the Spoon Theory, stating that daily 'spoons' represent energy, and different tasks require varying amounts, like brushing teeth taking 2 spoons and grocery shopping taking 10.
Text explaining 'HOW MANY SPOONS DO I HAVE?' in the Spoon Theory, noting that the number varies daily and is replenished through rest, depending on activities and quality of rest received.
Spoonies and their Theory
The spoon theory can be very helpful for both demonstrating to others how you feel, and remembering how much energy you have throughout the day so you can spend it well! If you're still having trouble understanding, try using the template on the last slide and figure out how you would spend you
SharkintheWaters

SharkintheWaters

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A POTS BINGO card with a 5x5 grid listing various symptoms like fatigue, dizziness, brain fog, and anxiety. The card is titled 'POTS BINGO!' and has 'Preview' and 'Swipe' indicators.
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I am not a doctor, but these are common symptoms of POTS and Dysautonommia. You guys seemed to like the autism bingo, so I hope you like this one as well! POTS stems from dysautonommia, but other chronic illnesses can as well. If you are concerned, consider talking to your doctor. stay salty my fri
SharkintheWaters

SharkintheWaters

50 likes

Clean my room with me: Flare day
It may be something small, but doing anything on a flare day is an accomplishment! Never be disappointed in yourself for not doing enough on a tough day. Stay salty my friends 🧂❤️ #chronicillnesscommunity #potsawareness #hypermobileehlersdanlossyndrome #roomtour #cluttercore #cottagecore
SharkintheWaters

SharkintheWaters

9 likes

Doing a lot better now though🤷🏼‍♀️ #ehlersdanlossyndrome #ehlersdanlos #geneticdisorder #chronicillness #chronicallyill
Unseen & Believed

Unseen & Believed

36 likes

These are two of my favorite natural supplements for histamine intolerance! #histamineintolerance #mcas #mastcellactivationsyndrome #estrogendominance #pcos #supplements #herbs #fypシ #fypage #fypシ゚viral #fyp #fyppppppppppppppppppppppp #ehlersdanlos #hypermobility #endometriosis
getwell.withnell

getwell.withnell

7 likes

Ehlers Danlos
I have an appointment with a hypermobility PT tomorrow and wanted this photo handy, where my elbow, knee, and back are all bending in ways they shouldn't! #eds #ehlersdanlos #chronicillness #hypermobility
chaoticgreat

chaoticgreat

9 likes

Being Disabled in an Airport?
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SharkintheWaters

SharkintheWaters

47 likes

Get to know me🫶
Hi, I’m Emily Mae! 👋 I am based out of TX and go by She/They pronouns. I am 23 years old living with my Husband and our two furbabies🐾! #Lemon8Diary #embracevulnerability #shareyourthoughts #unaesthetic #autisticadult #autisticcreator #disabled #disability #ehlersdanlossyndrome
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6 likes

What is Autoimmune? -Ehlers Danlos Syndrome
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authorkellianwolfe

authorkellianwolfe

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Replying to @Markus.Deleon I’ve gotten hundreds of these kinds of comments #chronicillness #invisibleillness #pots #eds #ehlersdanlos #autoimmunedisease
Unseen & Believed

Unseen & Believed

20 likes

Inspired by things that have happened to me recently. 🤪❤️‍🩹
Allison Tennyson

Allison Tennyson

3 likes

What's Your Favorite Photo?
Remember to treat yourself every once in a while! you deserve it 😌. stay salty my friends 🧂❤️ #butterfly #garden #selflove #selfcare #chronicillness #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #autistic #photography #chronicillnesscommunity
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Do you guys have any recommendations for what I should keep in it? #chronicillness #chronicillnessbasket #chronicallyill #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome
Unseen & Believed

Unseen & Believed

12 likes

Monday is my dressing change day! This is what my weekly dressing change looks like with my Hickman central line! #DressingChange #HickmanCentralLine #InvisibleIllnessAwareness #SpoonieLife #EhlersDanlosSyndrome Wearing my @CareandWear central line access hoodie! Use my dc: “LINDSAY2
Lindsay Murray

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You might have Ehlers-Danlos syndrome if...
#ehlersdanlossyndrome #chronicillness #spoonie
Chronically Dismissed

Chronically Dismissed

0 likes

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