Living with Sickle Cell
The question I get asked.
1. Why are your eyes yellow?
2. How long have you had it?
3. Is it painful?
4. What is it?
5. What does it do to your body?
6. Is there a cure?
7. Is it contagious?
8. How does this affect you?
9. How did you get it?
10. Is that’s why you so skinny
11. Do you have a liver disease?
12. Have you been to the doctor your eyes are yellow?
This is just a few but it’s crazy sometimes the nerves of people who lack information about this disease but want to tell you tell you about you🤦🏾♀️#sicklecellwarrior #lemon8 #smileandkeepmoving
Sickle cell disease is a genetic blood disorder that affects millions globally. It's crucial to dispel myths surrounding this condition and understand its impact on patients' lives. Symptoms often include painful crises, anemia, and fatigue, leading to unexpected questions from those unfamiliar with it. Public awareness is vital, as many people mistakenly believe it to be contagious or linked to lifestyle choices. The disease can cause various complications, including damage to organs like the liver, increased risk of stroke, and respiratory issues. Awareness and education not only improve support for individuals but also promote better healthcare resources and policies. Many living with sickle cell also face stigmas regarding their health, which can add to emotional distress. While there is no cure, advancements in treatment options, such as hydroxyurea, and supportive care can significantly enhance quality of life. Advocacy groups play a critical role in lobbying for more research funding and raising public awareness. By sharing personal experiences and challenges, we can foster a community of support and understanding for those affected by sickle cell disease.
