Wasn’t growing pains, it was Ehlers Danlos Syndrome

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Replying to @Lana fights CRPS severe growing pains are not normal and I will die on this hill #growingpains #ehlersdanlossyndrome #chronicillness
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Setup my daily hydration with me, my #IVFluids and pushing an #IVZofran since it’s a hot day at the beach and ya girl is dehydrated af rn (asmr edition as requested ;) 💖 #Fluids #POTSSyndrome #SpoonieLife #HypermobileEhlersDanlosSyndrome #HickmanCentralLine #Hydration #ASMR #Gast
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May is ehlers danlos syndrome awareness month!!🧡🦓
if you suffer from chronic illness, whether that's EDS or something else, feel free to reach out! Id love to talk!🧡🦓 go follow my insta🩷👉 @gracye_gwen1 #chronicillness #fyp #ehlersdanlossyndrome #awarness #chronicillnessawareness
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Don’t ever stop fighting for you. You deserve answers. You deserve relief. And you deserve to feel better. ❤️‍🩹
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That stare… #Cardiacalertdog #seizurealertdog #migrainealertdog #workingdog #wlgsd #germanshepherd #dogtraining #ambulatorywheelchairuser #mcas #ehlersdanlossyndrome #pots #fnd
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When you finally get the answer you’ve been waiting for and there’s no cure- oop. It wasn’t growing pain it was Hypermobile Ehlers Danlos syndrome all along! #EhlersDanlosSyndrome #hEDS #InvisibleIllnessAwareness #ConnectiveTissueDisorder #SpoonieLife
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Come get an iron infusion with me, my service dog, and my boyfriend to help with me anemia! Bc of my Ehlers Danlos absorption issues I sometimes have to get iron infusions so come along with me! #IronInfusion #InvisibleillnessAwareness #EhlersDanlosSyndrome #Chronicillness #SpoonieLife
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Im in denial until I can no longer open my eyes or speak😭 #migraine #pots #potssyndrome #ehlersdanlos #chronicillness
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Happy Ehlers Danlos Syndrome Awarenes Month!
EDS is an invisible disorder affecting connective tissue. I was diagnosed at 17 (I am now 24) & live with daily struggles. I have POTS with my EDS causing other cardio troubles every day. I have hEDS, which is the hypermobility type of this condition. I am hypermobile, while it can be cool if c
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Anti nausea hacks!✨🫶
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༚✧˳⁺⁎✿Emily✿⁎⁺˳✧༚

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A medical room with a bed and a Siemens machine, viewed from a patient's perspective. Overlay text reads 'SIGNS OF EHLERS DANLOS IN CHILDHOOD', indicating the early manifestation of the syndrome.
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I come in peace 👽
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I'm ngl I wasn't expecting to love it
As someone with POTS and EDS, I was recommended to try abdominal compression in addition to my compression socks, to help with blood pooling from May Thurners and Nutcracker. Putting this on for the first time, I immediately felt relief in my hips and back, a pain I didn't even realize I had un
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Replying to @Letusbehastytodefend drop your advice in the comments! These are so fun to make! #Hypermobility #IntimacyTips #HypermobileEhlersDanlosSyndrome
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So much has happened this year. 😩 Who can relate? #ChronicIllness #HypermobileEhlersDanlosSyndrome #Microcatmachine
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A person with short pink hair, wearing a coral dress, smiles by a lake, illustrating the title "symptoms I thought were normal but were actually ehlers danlos syndrome."
A person in a black sweater with colorful dinosaur patterns holds a drink in a dimly lit venue, illustrating the symptom "getting the hiccups ALL the time (painful ones)."
A person with dark hair, wearing a blue top, smiles while holding a drink with an orange rim, illustrating the symptom "shaky hands and twitchy eyes (eyeliner=impossible)."
Normal or a symptom of ehlers danlos syndrome?
Have you heard of ehlers danlos syndrome? 🧐 I was diagnosed a few years ago and was very lucky to get a doctor that specializes in chronic pain and illness. She prescribed me low dose naltrexone, which has really helped with alot of my symptoms! The most common symptoms I experience are:
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A pregnant woman sits in a bathtub with water running, looking down at her belly. Overlay text reads: "Rating My Labor Pains As a 5ft, 96lb, 22y/o who gave birth naturally TWICE."
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A pregnant woman in a bathtub, hands near her head, appears to be in discomfort. Overlay text describes transition pain as "7/10 like terrible menstrual cramps plus pressure," 20 minutes before birth.
Rating my labor pains 😮‍💨
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someone called this one “Growing Pains” ❤️‍🩹
this has been stuck in my head since the moment I recorded it lol
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He was annoyed when he realized I was taking a quick picture before taking the basket and rewarding him #Cardiacalertdog #seizurealertdog #migrainealertdog #workingdog #wlgsd #germanshepherd #dogtraining #ambulatorywheelchairuser #mcas #ehlersdanlossyndrome #pots #fnd
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I’ve honestly really missed working out #ehlersdanlossyndrome #ehlersdanlos #chronicillness
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My son also tries to include me in his wrestling games… I’ll have to get that video for you because that game is full on crazy #sahm #ehlersdanlossyndrome #louludawn #dentist #fyp
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Heat intolerance will get me every time. #Cardiacalertdog #seizurealertdog #migrainealertdog #workingdog #wlgsd #germanshepherd #dogtraining #ambulatorywheelchairuser #mcas #ehlersdanlossyndrome #pots #fnd
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Growing Pains
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Doing a lot better now though🤷🏼‍♀️ #ehlersdanlossyndrome #ehlersdanlos #geneticdisorder #chronicillness #chronicallyill
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I look like Hagrid but do my hair with me for a new doctors appointment @wavytalkofficial #doctor #chronicillness #ehlersdanlossyndrome
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If you have EDS & lipedema, have you noticed that you avoid jeans like the plague because they feel so heavy? Of course this isn’t meant to diagnose ANYONE, but if you’re already wondering if you have those conditions (please see a vascular Dr for lipedema & geneticist for EDS)- or know you do
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Tell them I’m looking for my waist. 🥰
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👁️ 👁️ #Cardiacalertdog #seizurealertdog #migrainealertdog #workingdog #wlgsd #germanshepherd #dogtraining #ambulatorywheelchairuser #mcas #ehlersdanlossyndrome #pots #fnd
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