Proton therapy ends ✨ X-ray therapy begins❤️🩹
After about a month of proton therapy 👏
The irradiation schedule for 11 times (11 days) went smoothly without getting sick, and I was discharged from the hospital on May 12 and returned home 🏠
I irradiated the primary lesion (also the lymph node of the metastatic part next to it) and the right upper arm bone of the metastatic part. The primary lesion was irradiated from the back and when I took a shower on the morning of the 10th day, the irradiation part turned red and still has a dark trace 💦 It does not itch or hurt, but it seems that it is better to apply moisturizing firmly for a while 🥺
On Saturdays, Sundays, and holidays, there was no treatment because the machine was closed, and it was said that it was okay to leave the hospital temporarily or stay out, but since the house is far away (5 hours by car), the hospital... lol
The playroom was unsatisfactory because there was a time limit of 2 hours a day, and the hospital room was a big room and I could not speak much, so this month felt long 🛌
My son seemed to enjoy spending his time at his own pace as usual 🤣
I go out every day after I get home 🚗
Park, shopping, grandpa's house, park, park...
Move your body in a wide place and have fun 😆⚽️
Animals were also watching while being scared 👀 lol
It's the season for playing in the water, so I'm looking forward to playing outside 🩵
I have been hospitalized since the 18th and am undergoing radiation therapy. I will irradiate the metastatic part of the head. (11 times)
It seems that proton beam is good, but it became X-ray after discussion with the teachers. By the way, it seems that if proton beam irradiation is applied to the head, it will become bald semi-permanently. It seems that it will grow again even if it is X-ray. Proton beam can be irradiated more precisely, so I thought that proton beam would be better to prevent recurrence, and when I asked, it seems that X-ray is okay because it is not clear which is better for the head, proton beam or X-ray. Multiple teachers said the same thing 👂
The next treatment will start soon, but I will be hospitalized for 2 weeks and leave the hospital for half a year. It seems that fever will always come out... 🛌 I have to switch to all-night mode 🛌
Actually, I was told that I could leave the hospital temporarily for about a week, but there was a reason why I wanted to proceed quickly, and if 👦 was in good physical condition, I decided to proceed as it was 💦
As for the reason why I want to proceed quickly
I wish I could talk to you next time 💡
# 2 years old # son # neuroblastoma High risk Childhood cancer
陽子線治療とX線治療はどちらも小児がん治療で重要ですが、治療部位や副作用の違いがあるため、病院での話し合いが欠かせません。実際に息子の治療を通して感じたことは、陽子線はピンポイントに放射線を照射できるため、周囲の正常組織へのダメージを抑えられるメリットがあります。一方で、頭部への陽子線照射は半永久的な脱毛のリスクがあり、X線では脱毛しても再生の可能性があることから、医師たちの間でもどちらが適切か見解が分かれていました。 入院中はプレイルームの時間制限や大部屋で気軽に声を出せない環境が長期滞在のストレスとなることも。子どもが楽しみを感じられるように、毎日好きなおやつを用意したり、大根やにんじんを転がす遊びを取り入れたりして工夫しました。退院後は公園や買い物など外で思い切り体を動かす機会を増やし、気分転換に努めています。 放射線治療は時に発熱や体調不良をともなうため、2週間入院・2週間退院を繰り返す生活リズムに慣れる必要があります。保湿ケアなどの副作用対策も重要で、照射部の皮膚の赤みや痕が残ることがあります が、本人が痛みやかゆみを訴えなければ優しくケアを続けています。 私たちの経験から言えることは、治療中のマイナス面だけでなく、外遊びや好きなものを楽しむ時間を大切にすることで、子どもの心身のバランスを保ちやすくなるということです。治療の選択やスケジュールは家族ごとに異なるため、医師とよく相談し納得のいく方針を立てることが何より大切です。これから治療に向かう方々に少しでも役立つ情報としてお届けします。
