๐๐ธMy Sickle Cell Journey๐ธ๐
My name is Terchele I am a 33 yr old Mom to a beautiful daughter thatโs 15 and a handsome son that is 13. I was born with Sickle Cell Anemia SS Acute Chest Syndrome. I also suffer from AVN and Pulmonary Hypertension. Iโve gone Thur so much in my life but for the last 3 years things have gotten worse. I had a right shoulder replacement almost two years go now. Also within the last three years Iโve been dealing with my blood count consistently dropping my hemoglobin levels used to sit around 7 maybe 8 but over the last three years itโs dropped as low as 4.2 and I can no longer get blood transfusions due to having so many of them. So now I have to get weekly Epogen to try and keep it around 6. Rite before COVID hit I was in the hospital a few months prior for about 3 months I had to sign custody to my best friend because they was saying I was never coming home again I was headed to ICU. My GOD did the unthinkable and proved them wrong I came back home to my children yโall I made it home! Since then I have been in the hospital so much fighting for my life but recently I found out that first off I now have to get a right hip replacement due to AVN and holes growing in my hip bone. And the left leg is weak and damaged always hurting due to the sickle cell. Also now I have pulmonary hypertension to come out the hospital and go to my check up only to find outโฆ.. my body is now 100 percent sickled and Iโm being passed along to end of life care. Iโm praying so hard because I know only GOD can work this miracle because I canโt leave my babies they are EVERYTHING TO ME! I wanna see them go to their first dances, get their learners, prom, walk across the stage and receive their high school diploma and so on. Iโve been a single mom without taking care of my babies solo alone since day one I donโt receive child support but also not gonna stress and get sick. Thatโs a whole other story lol! I have set up a go fund me in honor of my children so when and if that time comes they will have something. I would like them to be able to continue the sport activities that they have done since they have been 3 I have always made sure that just because our house isnโt a 2 parent home that they canโt do what they love to do and now I can longer work and that has been that hardest part for me the last 3 years. It showed me how life can change in an instant. I'm fighting with everything I have left for my children and loved ones. Please help me ensure they have a secure future. Every donation counts and means the world to us. Even sharing this post means the world to US! Let's come together in this critical time. Thank You All Much Love to EVERYONE!๐๐๐พ๐#sicklecell #sicklecellwarrior #gettoknowme #SickleCellDisease #fyp
https://gofund.me/2c4f87eb
Living with Sickle Cell Anemia poses numerous challenges and complexities. Many people affected by this genetic blood disorder encounter severe pain episodes, fatigue, and complications such as acute chest syndrome and pulmonary hypertension. Education around Sickle Cell Disease is crucial not only for patients but also for families and friends, as understanding the condition can significantly improve support systems. Additionally, psychological support can help patients cope with chronic pain and the emotional toll of their illness. Various organizations and support groups are available that provide resources, information, and community support for families dealing with Sickle Cell Disease. Exploring new treatments and research developments offers hope to many battling this illness. As we raise awareness, sharing personal experiences can play a vital role in increasing understanding and promoting further advancements in SCD treatment. Remember, every voice added to this conversation can help others feel less alone in their journey. If youโd like to support families affected by Sickle Cell, consider contributing to charitable organizations dedicated to research and support. A small act, like sharing your story or donating, can make a profound difference in the lives of countless individuals grappling with this condition.
Have you ever asked your doctor about getting blood exchanges, not transfusions?? If not, you should and see what they say. Iโm praying that God delivers you because he has the final say so and this is not the end for you. You will see your children blossom and become amazing human beings and make you proud. Believe and keep your faith strong and hold on to Gods unchanging hand.