Being hypermobile doesn’t mean you have EDS. It just means you’re hypermobile. ❤️‍🩹

2025/7/23 Edited to

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My favorite simple release stretch
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Replying to @Ally Tolfrey I am prescribed dopamine for my dopa-responsive dystonia, and I was diagnosed by my neurologist. I hope this helps! Wishing you the best! ❤️‍🩹
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A person wearing a light-colored, fuzzy hooded garment, with text overlay "Things I Do On Flare Days for Hypermobile Ehlers Danlos Syndrome."
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Things I Do On Flare Days for hEDS!
🎭: Heated or cooled eye masks to help with headaches or migraines! 🎧: Headband Headphones to help me calm down. Usually, if I have a headache, my ears are ringing. Ambient calm sounds help drown out the ringing and help keep me zen while I'm in pain. 🛁: Magnesium soak for pain helps with
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🫶racing car is fun 🥰
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Hypermobility
Hypermobility & living an active lifestyle 🫶🏻 I always knew I was hypermobile, but these past couple years were the first time it’s ever began to cause pain and issues for me. As I got deeper into my fitness journey, I was doing more intense and high impact workouts, resulting in a lot of
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I almost forgot I made this video before my pain pump! 😭❤️‍🩹
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Who can relate? 🤪
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Setup my daily hydration with me, my #IVFluids and pushing an #IVZofran since it’s a hot day at the beach and ya girl is dehydrated af rn (asmr edition as requested ;) 💖 #Fluids #POTSSyndrome #SpoonieLife #HypermobileEhlersDanlosSyndrome #HickmanCentralLine #Hydration #ASMR #Gast
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Hypermobility Check!
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Just some things I have noticed over the years. Of course, not everyone with hEDS will have these things and that’s ok. These really don’t mean anything. ❤️‍🩹 #greenscreen
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You HAVE to have generalized joint hypermobility to have Hypermobile type Ehlers Danlos Syndrome. It would be a grave disservice to not talk about hypermobility when talking about HYPERMOBILE TYPE Ehlers Danlos Syndrome.
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Too niche? I could scroll like this forever. #gravity #noair #americanlean #hypermobile
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hopefully this helps!!🤞🏼 #potssyndrome #chronicillness #migraine #botox #migrainebotox
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Let me know if you want specifics about each type of mobility aid. ❤️‍🩹 #greenscreen
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Allergy testing here we go!
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A doctor I saw said that patients with EDS can be a little “nutty.” Six months later, at a completely different appointment with a different specialist, another doctor said that people with EDS can be “emotional.” Both times, right after saying that, they told me I’m “sweet”, and have a “posi
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Just a few reasons why it’s important to be evaluated for Hypermobile Ehlers Danlos Syndrome. ❤️‍🩹 #greenscreen
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Replying to @marissa also it doesn’t help that the Google AI summary mixed up the studies about hypermobile Ehlers Danlos syndrome! #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #ehlersdanlossyndrome #chronicillness #chronicallyill
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So many things make sense now. 😫
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Replying to @Letusbehastytodefend drop your advice in the comments! These are so fun to make! #Hypermobility #IntimacyTips #HypermobileEhlersDanlosSyndrome
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Hypermobility and flexibility are two different things! ❤️‍🩹 they are not one in the same.
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Would I add this to my routine?
This exercise is great for stability, balance, proprioception and it’s pretty fun. #relatable #posturehacks #fitnessinspo #pilates #pilatesforbeginners
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Replying to @samdapotsie I’m sorry it wasn’t clear on the video 🙈 I tried to make it clear, but I see how it could be taken. So, I mean that being hypermobile doesn’t automatically mean you have Hypermobile Ehlers Danlos Syndrome. You have to meet the entire 2017 diagnostic criteria for hEDS, not j
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