Being hypermobile doesn’t mean you have EDS. It just means you’re hypermobile. ❤️🩹
2025/7/23 Edited to
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You HAVE to have generalized joint hypermobility to have Hypermobile type Ehlers Danlos Syndrome. It would be a grave disservice to not talk about hypermobility when talking about HYPERMOBILE TYPE Ehlers Danlos Syndrome.
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Do these stretches 3x30 seconds each for your back
#backpain #lowbackstretch #simpleexercise #gentlemovement
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Just a few reasons why it’s important to be evaluated for Hypermobile Ehlers Danlos Syndrome. ❤️🩹 #greenscreen
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hEDS is so much more than just being bendy. Just because you see someone on their feet and walking that doesn’t mean they’re not fighting invisible battles that you are not seeing. I struggle a lot on my feet. I have not left my house without a mobility aid in 5 years, because I do not feel sta
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Get ready with me while I talk allllll things gastroparesis in honor of August being gp awareness month! Let’s talk what it is, my story, symptoms, testing experience, treatments I’ve tried, and more! #Gastroparesis #GJTube #GastroparesisAwareness #TPN #GetReadyWithMe Products used:
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Replying to @samdapotsie I’m sorry it wasn’t clear on the video 🙈 I tried to make it clear, but I see how it could be taken. So, I mean that being hypermobile doesn’t automatically mean you have Hypermobile Ehlers Danlos Syndrome. You have to meet the entire 2017 diagnostic criteria for hEDS, not j
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Do you have overactive tight traps?
Try this! #tighttraps #posture #traps #fitnesshacks
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Growing into the person that little me always needed 🫶 #DisabledModel #DisabilityAdvocate #SpoonieSupport #AccessibleBeauty #DisabledTravel #InvisibleDisabilities #MedicalDevices #GJTube #HickmanCentralLine #PotsSyndrome #Gastroparesis #HypermobileEhlersDanlosSyndrome #Chro
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Pain pumps are not for everyone. With that being said, I am going to be getting a pain pump, even with the potential risks, because I am desperate for relief. ❤️🩹
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Replying to @Letusbehastytodefend drop your advice in the comments! These are so fun to make! #Hypermobility #IntimacyTips #HypermobileEhlersDanlosSyndrome
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Replying to @marissa also it doesn’t help that the Google AI summary mixed up the studies about hypermobile Ehlers Danlos syndrome! #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #ehlersdanlossyndrome #chronicillness #chronicallyill
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Replying to @emilie 🌸 colourful artist dysautonomia, visceroptosis, and hypermobile bladder cells can all contribute to frequent urniation when you are hypermobile. ❤️🩹
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What it was like trying to get diagnosed w Ehlers Danlos 🦓🖤 #hEDS #HypermobileEDS #MedicalGaslighting #HypermobileEhlersDanlosSyndrome #InvisibleDisability #ChronicallyLindsay #ConnectiveTissueDisorder #ChronicPain #ChronicallyIll #DisabilityAwareness
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Symptoms I experience w #hypermobileehlersdanlossyndrome #hEDS #spoonielife #ehlersdanlosawareness #connectivetissuedisorder #chronicallylindsay #invisibledisability #disabilityawareness
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So much has happened this year. 😩 Who can relate? #ChronicIllness #HypermobileEhlersDanlosSyndrome #Microcatmachine
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Tyler and I went out to celebrate our love this weekend at Good Day Cafe, and, then, we grabbed a butterfinger cheesecake from @muddypawscheesecake! Today we prepped some jerk wings, meatballs, cling-ons, hummus, and othet snacks for the Super Bowl today! We have had such a memorable weekend! #val
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Setup my daily hydration with me, my #IVFluids and pushing an #IVZofran since it’s a hot day at the beach and ya girl is dehydrated af rn (asmr edition as requested ;) 💖 #Fluids #POTSSyndrome #SpoonieLife #HypermobileEhlersDanlosSyndrome #HickmanCentralLine #Hydration #ASMR #Gast
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The truth is that you don’t have to dislocate your joints to have Hypermobile Ehlers Danlos Syndrome. I think it’s unfortunate that most people attribute dislocations and stretchy skin with hEDS, and, according the the 2017 diagnostic criteria for hEDS, you don’t have to have dislocations or stretc
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This is how it is for us hypermobiles
#hypermobile #mobility #jointstrength #posture
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Hypermobility Spectrum Disorder #hsd #heds #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome #lupuswarrior🦋💜 #sle #lupus
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You don’t have to be flexible to have hypermobile Ehlers Danlos Syndrome. You have to be hypermobile. ❤️🩹
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Too niche? I could scroll like this forever. #gravity #noair #americanlean #hypermobile
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If you’re going through this too, know you’re not alone. I AM taking charge of this now & I can’t wait to see what I’ll be posting a year from now. My neurosurgeon said that my neck injury is too risky for surgery because it can cause other spinal problems afterwards so right now I just have t
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Jelliebend is like $60 retail, supacore like $140 @Jelliebend @Supacore #getjellie #dysautonomia #hypermobileehlersdanlossyndrome #pots #compression
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Replying to @_siorez_ it depends on my placenta and my EDS! But hopefully going term ❤️ right now my cervix is long and closed which is great. #hypermobileehlersdanlossyndrome #ehlersdanlossyndrome #highriskpregnancy #pregnancy #placentaprevia #lowlyingplacenta
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23 weeks pregnant with hEDS + co #pregnancy #highriskpregnancy #jtube #gtube #chronicillness #disability #gastroparesis #hypermobileehlersdanlossyndrome #globaldysmotility
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Replying to @SPOKE! 💘 the science behind my pregnancy, the impact of my genetic disorder, and the eugenics elephant in the room. This series is to emphasize the justice of CHOICE in becoming a parent, and to highlight that access to care, willingness to move forward, and the actual physical imp
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I literally just got up and changed to do this because I was so excited 😅 #adhd #ehlersdanlos #hypermobile #amyhd
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Replying to @love.mal5104 the 2017 diagnostic criteria for Hypermobile Ehlers Danlos Syndrome is a big difference. Also, you don’t have to have generalized joint hypermobility to have hypermobility spectrum disorder (according to the Ehlers Danlos Society). You can have localized and peripheral hyp
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I remember being the fastest one in class in 1st and 2nd grade, I even got a Presidential Fitness award for it (the only one in my grade who did). Then after puberty I was so confused when everyone else passed me. I was suddenly having to repeat the mile EVERY single time I had P.E because I co
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A doctor I saw said that patients with EDS can be a little “nutty.” Six months later, at a completely different appointment with a different specialist, another doctor said that people with EDS can be “emotional.” Both times, right after saying that, they told me I’m “sweet”, and have a “posi
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like i thought i was supposed to be hypermobile why can’t i do it?!!😭 #yogapose #fypシ #trending #xyzbca
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Hypermobile Strength Tip
If you’re extra bendy you’ll want to make sure you create resistance around your joints at their end range. This is called Mobility. It’s strength at end-range rather than just length at end range. I find ways to train my joints at their most flexible to lock them in because I have Elhers Danlo
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Dating with a disability: KT tape > flowers (I still want flowers tho) Dating with a disability is really difficult, but it’s nice when someone sees you for more than that (while still trying to help you out with the KT tape) Should I make more videos about dating with a disability? Lmk in t
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Quick Tips for Hypermobile Peeps
As a hypermobile Pilates instructor I’ve learned a thing or two… #pilatesstrengthtraining #hypermobility
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Another important milestone, and a thank you to everyone for being here #pregnancy #highriskpregnancy #tfmr #rainbowbaby #ehlersdanlossyndrome #gastroparesis #hypermobileehlersdanlossyndrome #jtube #tubie #ivhydration
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DIY Ring Splints Tutorial ✨💍 Okay icons, welcome to my little corner of the internet where fashion and chronic pain management hold hands like soulmates. Today we’re diving into DIY ring splints (aka the cutest way to keep your hypermobile joints from acting out) 💅 If your fingers love to ben
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I can’t wait for the new hypermobile Ehlers Danlos Syndrome criteria and all the new research and findings that will be rolling out this year! I don’t want our future generations to have to wait decades for a diagnosis like many of us have had to. I was not diagnosed with hEDS until I was 32 years
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Now let me be clear, this shouldn’t be on the patient to have to search for a team that’s EDS aware. This is to counter the rhetoric that some providers have that feel like an EDS diagnosis isn’t important or wouldn’t change the course of treatment. This is just factually incorrect, and for people
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Dysregulation doesn’t always look dramatic, sometimes it’s subtle. Sometimes it’s a quiet shift into urgency, tension, rumination, and overthinking. And suddenly you are not okay and you don’t necessarily know why. 🤷♀️ 🧚 Learning to recognize the signs of dysregulation in your own body is hu
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I’ve been called ‘weird’ my entire life. But, the truth is that I’m neurodivergent, and I have hypermobile Ehlers Danlos Syndrome. (I’m referring to my pectus excavatum, btw. That’s what I was picked on for growing up - not my line or scar in my chest, to be clear). ❤️🩹
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Replying to @Corrie Christine you deserve a proper diagnosis, and I’m sorry you were mislead. But you are spreading extremely harmful misinformation by misrepresenting Generalized Joint Hypermobility as a positive diagnosis of EDS. I am sure OP is getting the proper diagnosis by getting genetic tes
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