Being hypermobile doesn’t mean you have EDS. It just means you’re hypermobile. ❤️🩹
2025/7/23 Edited to
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Do you have overactive tight traps?
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The Person Behind the Chronic illnesses
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Too niche? I could scroll like this forever. #gravity #noair #americanlean #hypermobile
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I almost forgot I made this video before my pain pump! 😭❤️🩹
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Get ready with me while I talk allllll things gastroparesis in honor of August being gp awareness month! Let’s talk what it is, my story, symptoms, testing experience, treatments I’ve tried, and more! #Gastroparesis #GJTube #GastroparesisAwareness #TPN #GetReadyWithMe Products used:
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Replying to @Ally Tolfrey I am prescribed dopamine for my dopa-responsive dystonia, and I was diagnosed by my neurologist. I hope this helps! Wishing you the best! ❤️🩹
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Hypermobile Ehlers Danlos Sydrome Memes
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🫶racing car is fun 🥰
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Setup my daily hydration with me, my #IVFluids and pushing an #IVZofran since it’s a hot day at the beach and ya girl is dehydrated af rn (asmr edition as requested ;) 💖 #Fluids #POTSSyndrome #SpoonieLife #HypermobileEhlersDanlosSyndrome #HickmanCentralLine #Hydration #ASMR #Gast
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Clean my room with me: Flare day
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Symptoms I experience w #hypermobileehlersdanlossyndrome #hEDS #spoonielife #ehlersdanlosawareness #connectivetissuedisorder #chronicallylindsay #invisibledisability #disabilityawareness
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My favorite simple release stretch
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TMJ RELEASE
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Who can relate? 🤪
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PS also maybe don’t let your elbows hyperextend if you’re hypermobile noodle like me. DO AS I SAY NOT AS I DO 🫠 #wristpain #physiotherapy #disabilitytiktok #physicaltherapist #mobility
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Hypermobility Check!
My hypermobility is from Ehlers Danlos, but some people are just hypermobile! #hypermobileehlersdanlossyndrome #hypermobile af #hypermobilityspectrumdisorder
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You HAVE to have generalized joint hypermobility to have Hypermobile type Ehlers Danlos Syndrome. It would be a grave disservice to not talk about hypermobility when talking about HYPERMOBILE TYPE Ehlers Danlos Syndrome.
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Just some things I have noticed over the years. Of course, not everyone with hEDS will have these things and that’s ok. These really don’t mean anything. ❤️🩹 #greenscreen
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Hypermobility and flexibility are two different things! ❤️🩹 they are not one in the same.
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Allergy testing here we go!
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Hypermobile Strength Tip
If you’re extra bendy you’ll want to make sure you create resistance around your joints at their end range. This is called Mobility. It’s strength at end-range rather than just length at end range. I find ways to train my joints at their most flexible to lock them in because I have Elhers Danlo
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Yea, we’re ‘flexible’ alright. 🤪
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Dysregulation doesn’t always look dramatic, sometimes it’s subtle. Sometimes it’s a quiet shift into urgency, tension, rumination, and overthinking. And suddenly you are not okay and you don’t necessarily know why. 🤷♀️ 🧚 Learning to recognize the signs of dysregulation in your own body is hu
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Quick Tips for Hypermobile Peeps
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I’ve been working hard to get this choking under control. If you experience excessive choking, I highly recommend getting evaluated. It is DANGEROUS to choke! Please be careful! Take care of yourself. You deserve care. Love you all. ❤️🩹
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Hypermobility
Hypermobility & living an active lifestyle 🫶🏻 I always knew I was hypermobile, but these past couple years were the first time it’s ever began to cause pain and issues for me. As I got deeper into my fitness journey, I was doing more intense and high impact workouts, resulting in a lot of
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So much has happened this year. 😩 Who can relate? #ChronicIllness #HypermobileEhlersDanlosSyndrome #Microcatmachine
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So many things make sense now. 😫
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Healthcare providers that actually understand how to navigate hEDS >>> 🙌 No blown veins. No digging around. No explaining hEDS over and over. The bar is low, but finding medical professionals who actually understand connective tissue disorders is always worth celebrating. Thank you to all
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This is how it is for us hypermobiles
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Let me know if you want specifics about each type of mobility aid. ❤️🩹 #greenscreen
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like i thought i was supposed to be hypermobile why can’t i do it?!!😭 #yogapose #fypシ #trending #xyzbca
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Does anyone else need one of every type of beverage at all times? Or is that just a me thing? 🤪❤️🩹
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6. the mess because of number 5 #fyp #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #medicaltrauma
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I come in peace 👽
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Just a few reasons why it’s important to be evaluated for Hypermobile Ehlers Danlos Syndrome. ❤️🩹 #greenscreen
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Stiff Neck? Stop scrolling and stretch with me
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Pilates clamshells
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I’ll try this again tomorrow. But, I just wanted to post this, because well… this is real. And this is how it often really goes when I’m trying to film videos. I get too sick to finish. 😔
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hEDS is so much more than just being bendy. Just because you see someone on their feet and walking that doesn’t mean they’re not fighting invisible battles that you are not seeing. I struggle a lot on my feet. I have not left my house without a mobility aid in 5 years, because I do not feel sta
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Who can relate? 🤪
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I thought I was “tight,” not hypermobile… turns out those things can exist together. Hypermobility doesn’t always look like doing the splits. Sometimes it looks like: • stiff hamstrings • tight hips • a back that never wants to loosen up • muscles that are always tense For hypermobile bod
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Private Pilates session this morning. 🌻 Living with EDS/hypermobility has taught me that strength and stability matter more than perfection. Grateful for my instructor @The Pilates Co. who continues helping me safely build strength and confidence one movement at a time. Still growing stron
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Replying to @marissa also it doesn’t help that the Google AI summary mixed up the studies about hypermobile Ehlers Danlos syndrome! #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #ehlersdanlossyndrome #chronicillness #chronicallyill
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