Being hypermobile doesn’t mean you have EDS. It just means you’re hypermobile. ❤️🩹
2025/7/23 Edited to
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🎭: Heated or cooled eye masks to help with headaches or migraines! 🎧: Headband Headphones to help me calm down. Usually, if I have a headache, my ears are ringing. Ambient calm sounds help drown out the ringing and help keep me zen while I'm in pain. 🛁: Magnesium soak for pain helps with
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The Person Behind the Chronic illnesses
Always remember that you are more than what limits you! Stay salty my friends 🧂❤️ #posturalorthostatictachycardiasyndrome #gettoknowme #sharks #chronicillnesscommunity #autistic #hypermobileehlersdanlos #lemon8diarychallenge #dino #theoffice #pickles
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Hypermobility
Hypermobility & living an active lifestyle 🫶🏻 I always knew I was hypermobile, but these past couple years were the first time it’s ever began to cause pain and issues for me. As I got deeper into my fitness journey, I was doing more intense and high impact workouts, resulting in a lot of
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This is how it is for us hypermobiles
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Can you do any of these? 🎥 @wemblymofoundation1 #mobility #doctorexplains #hypermobility #interestingfacts
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another part of me that I didn’t list as a fact on my first post is that I do deal with a series of health issues! I wanted to make this video to show that my day to day fluctuates and it’s okay for yours to do so as well! I deal with Cyclic Vomiting Syndrome, POTS, & Hypermobile Ehlers Danlos
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Replying to @😶🌫️ Sir Smokes A-lot🗣️💨 The act of spreading awareness is powerful - it’s how I was able to recognize this within myself enough to be diagnosed and validated for pain and mobility I have had since puberty! I really WAS doing enough and my experience wasn’t just “in my head”. I hop
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🫶racing car is fun 🥰
#hypermobile #racing #car
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Hypermobility Spectrum Disorder #hsd #heds #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome #lupuswarrior🦋💜 #sle #lupus
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Growing into the person that little me always needed 🫶 #DisabledModel #DisabilityAdvocate #SpoonieSupport #AccessibleBeauty #DisabledTravel #InvisibleDisabilities #MedicalDevices #GJTube #HickmanCentralLine #PotsSyndrome #Gastroparesis #HypermobileEhlersDanlosSyndrome #Chro
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Replying to @Ally Tolfrey I am prescribed dopamine for my dopa-responsive dystonia, and I was diagnosed by my neurologist. I hope this helps! Wishing you the best! ❤️🩹
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Hypermobile Ehlers Danlos Sydrome Memes
A lot of these come from the site/app the mighty. I heavily recommend it for both a good laugh and informative information about this chronic condition and others! stay salty my friends 🧂❤️ #hypermobileehlersdanlossyndrome #memes #lemon8diarychallenge #posturalorthostatictachycardiasyndrome
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If you’ve ever felt that deep sinking feeling of panick after your knee pops out of place and jam its self right back in - you know exactly how it feels to never want it to happen again. My physical therapist who also happens to be hypermobile, showed me this trick that helped me feel more bala
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Postural Orthostatic Tachycardia Syndrome Memes
A lot of these come from the site/app the mighty. I heavily recommend it for both a good laugh and informative information about this chronic condition and others! stay salty my friends 🧂❤️ #laughteristhebestmedicine #lemon8diarychallenge #chronicillnesscommunity #posturalorthostatictachycar
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Who can relate? 🤪
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Most days are structured. My brain is not 🙃 DIML 🫶 • #nyccreator #nyctherapist #audhd #diml #therapistlife
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This is me
After being a chronic scroller on this app here’s my first post. A millennial with chronic illness still listening to my same playlist from high school. I love vanilla comfy cozy aesthetic but I also highly believe my spirit animal is a trash panda. WFH mom of two. I’m an inside cat who loves to re
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Too niche? I could scroll like this forever. #gravity #noair #americanlean #hypermobile
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Clean my room with me: Flare day
It may be something small, but doing anything on a flare day is an accomplishment! Never be disappointed in yourself for not doing enough on a tough day. Stay salty my friends 🧂❤️ #chronicillnesscommunity #potsawareness #hypermobileehlersdanlossyndrome #roomtour #cluttercore #cottagecore
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When did I know it was time to start using a #mobilityaid #mobilityaids #chronicallyill #spoonielife #pots #hEDS #invisibledisability #disabilityawareness #babewithamobilityaid #canes #walkers #wheelchairuser #chronicallylindsay
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I almost forgot I made this video before my pain pump! 😭❤️🩹
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Suffer Through My Conditioning with Me!
As much as I complain about it physical therapy is very important and you should be doing it as often as your doctor tells you to! I also have to do about an hour worth of stretching everyday, but an hour and a half of something I don't like is much better than the rest of my life in pain! stay
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is this five and below book worth it?
#fiveandbelowfinds #pushupvariations #pushups #pilates
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Hypermobility
Hypermobility isn’t just flexibility… it’s a whole lifestyle 💗 #hypermobility #hypermobile #flexibilitycheck #bodyfacts #learnontiktok
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Hypermobility Check!
My hypermobility is from Ehlers Danlos, but some people are just hypermobile! #hypermobileehlersdanlossyndrome #hypermobile af #hypermobilityspectrumdisorder
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So much has happened this year. 😩 Who can relate? #ChronicIllness #HypermobileEhlersDanlosSyndrome #Microcatmachine
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Hypermobility and flexibility are two different things! ❤️🩹 they are not one in the same.
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Yea, we’re ‘flexible’ alright. 🤪
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Symptoms I experience w #hypermobileehlersdanlossyndrome #hEDS #spoonielife #ehlersdanlosawareness #connectivetissuedisorder #chronicallylindsay #invisibledisability #disabilityawareness
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I remember being the fastest one in class in 1st and 2nd grade, I even got a Presidential Fitness award for it (the only one in my grade who did). Then after puberty I was so confused when everyone else passed me. I was suddenly having to repeat the mile EVERY single time I had P.E because I co
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Hypermobile Strength Tip
If you’re extra bendy you’ll want to make sure you create resistance around your joints at their end range. This is called Mobility. It’s strength at end-range rather than just length at end range. I find ways to train my joints at their most flexible to lock them in because I have Elhers Danlo
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Never sleep on this exercise!
Fundamentals for thoracic mobility and rounded shoulder pain relief 💙 (bear with me while I learn this new app... we'll figure it out together 😬) #thoracicmobility #posture #roundedshoulders #hypermobile #slowyoga
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Dating with a disability: KT tape > flowers (I still want flowers tho) Dating with a disability is really difficult, but it’s nice when someone sees you for more than that (while still trying to help you out with the KT tape) Should I make more videos about dating with a disability? Lmk in t
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PS also maybe don’t let your elbows hyperextend if you’re hypermobile noodle like me. DO AS I SAY NOT AS I DO 🫠 #wristpain #physiotherapy #disabilitytiktok #physicaltherapist #mobility
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Just some things I have noticed over the years. Of course, not everyone with hEDS will have these things and that’s ok. These really don’t mean anything. ❤️🩹 #greenscreen
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I come in peace 👽
#HypermobileEhlersDanlosSyndrome #LongArms
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Jelliebend is like $60 retail, supacore like $140 @Jelliebend @Supacore #getjellie #dysautonomia #hypermobileehlersdanlossyndrome #pots #compression
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Replying to @marissa also it doesn’t help that the Google AI summary mixed up the studies about hypermobile Ehlers Danlos syndrome! #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #ehlersdanlossyndrome #chronicillness #chronicallyill
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PCOS & Lipedema Body Tour After Losing 121lbs 🎀 The act of spreading awareness is powerful - it’s how I was able to recognize this within myself enough to be diagnosed and validated for pain and mobility I have had since puberty! I really WAS doing enough and my experience wasn’t just “in my
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Is my costochondritis flaring? Did I slip a rib? Am I having heart burn? Or am I having a pulmonary embolism? Like why is my chest hurting? It could be so many things. 😫
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I’ve been working hard to get this choking under control. If you experience excessive choking, I highly recommend getting evaluated. It is DANGEROUS to choke! Please be careful! Take care of yourself. You deserve care. Love you all. ❤️🩹
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Allergy testing here we go!
#hypermobileehlersdanlossyndrome #allergy #allergyawareness
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like i thought i was supposed to be hypermobile why can’t i do it?!!😭 #yogapose #fypシ #trending #xyzbca
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My (chronic pain) Story
Im not going to be upset at myself for something I had no control over. Instead, I look at the benefits of having a disability. For example, I dont have to stand in lines at theme parks 😜. Even though the bad outweighs the good, I always try my hardest to see the good side of things. So let m
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What it was like trying to get diagnosed w Ehlers Danlos 🦓🖤 #hEDS #HypermobileEDS #MedicalGaslighting #HypermobileEhlersDanlosSyndrome #InvisibleDisability #ChronicallyLindsay #ConnectiveTissueDisorder #ChronicPain #ChronicallyIll #DisabilityAwareness
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Spoonies Support Group
Found a local support group for POTS and similar problems. It felt so good to be heard and to hear other stories that while different felt so familiar! We are not alone and we are enough! #summerdiary #lemon8contest #Lemon8Diary #spoonielife #embracevulnerability #potsawareness #potssy
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Get ready with me while I talk allllll things gastroparesis in honor of August being gp awareness month! Let’s talk what it is, my story, symptoms, testing experience, treatments I’ve tried, and more! #Gastroparesis #GJTube #GastroparesisAwareness #TPN #GetReadyWithMe Products used:
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I swear I use my nail files now more than my tweezers for my PCOS Hirsutism. And trying to pull on my compression leggings for my lipedema? Don’t get me started. That one bent half of my nail! #pcosprincess #heds
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Does anyone else need one of every type of beverage at all times? Or is that just a me thing? 🤪❤️🩹
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I literally just got up and changed to do this because I was so excited 😅 #adhd #ehlersdanlos #hypermobile #amyhd
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Disability in fantasy books 📚
In 2025 let’s read more disabled characters by disabled authors! Books Listed and Their Rep: 💚Green represents sensory disabilities. -Redsight by Meredith Mooring (Blind) -A Handful of Spells by Kimberly A. Shaw (Hard of Hearing) -The Whispering Dark by Kelly Andrew (Deaf) -Mooncakes by W
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You HAVE to have generalized joint hypermobility to have Hypermobile type Ehlers Danlos Syndrome. It would be a grave disservice to not talk about hypermobility when talking about HYPERMOBILE TYPE Ehlers Danlos Syndrome.
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