Being hypermobile doesn’t mean you have EDS. It just means you’re hypermobile. ❤️‍🩹

2025/7/23 Edited to

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Replying to @😶‍🌫️ Sir Smokes A-lot🗣️💨 The act of spreading awareness is powerful - it’s how I was able to recognize this within myself enough to be diagnosed and validated for pain and mobility I have had since puberty! I really WAS doing enough and my experience wasn’t just “in my head”. I hop
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Replying to @Ally Tolfrey I am prescribed dopamine for my dopa-responsive dystonia, and I was diagnosed by my neurologist. I hope this helps! Wishing you the best! ❤️‍🩹
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If you’ve ever felt that deep sinking feeling of panick after your knee pops out of place and jam its self right back in - you know exactly how it feels to never want it to happen again. My physical therapist who also happens to be hypermobile, showed me this trick that helped me feel more bala
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Who can relate? 🤪
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Too niche? I could scroll like this forever. #gravity #noair #americanlean #hypermobile
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I almost forgot I made this video before my pain pump! 😭❤️‍🩹
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is this five and below book worth it?
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So much has happened this year. 😩 Who can relate? #ChronicIllness #HypermobileEhlersDanlosSyndrome #Microcatmachine
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Hypermobility and flexibility are two different things! ❤️‍🩹 they are not one in the same.
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Yea, we’re ‘flexible’ alright. 🤪
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Symptoms I experience w #hypermobileehlersdanlossyndrome #hEDS #spoonielife #ehlersdanlosawareness #connectivetissuedisorder #chronicallylindsay #invisibledisability #disabilityawareness
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I remember being the fastest one in class in 1st and 2nd grade, I even got a Presidential Fitness award for it (the only one in my grade who did). Then after puberty I was so confused when everyone else passed me. I was suddenly having to repeat the mile EVERY single time I had P.E because I co
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PS also maybe don’t let your elbows hyperextend if you’re hypermobile noodle like me. DO AS I SAY NOT AS I DO 🫠 #wristpain #physiotherapy #disabilitytiktok #physicaltherapist #mobility
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Just some things I have noticed over the years. Of course, not everyone with hEDS will have these things and that’s ok. These really don’t mean anything. ❤️‍🩹 #greenscreen
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I come in peace 👽
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Replying to @marissa also it doesn’t help that the Google AI summary mixed up the studies about hypermobile Ehlers Danlos syndrome! #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #ehlersdanlossyndrome #chronicillness #chronicallyill
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Is my costochondritis flaring? Did I slip a rib? Am I having heart burn? Or am I having a pulmonary embolism? Like why is my chest hurting? It could be so many things. 😫
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I’ve been working hard to get this choking under control. If you experience excessive choking, I highly recommend getting evaluated. It is DANGEROUS to choke! Please be careful! Take care of yourself. You deserve care. Love you all. ❤️‍🩹
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Allergy testing here we go!
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like i thought i was supposed to be hypermobile why can’t i do it?!!😭 #yogapose #fypシ #trending #xyzbca
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I swear I use my nail files now more than my tweezers for my PCOS Hirsutism. And trying to pull on my compression leggings for my lipedema? Don’t get me started. That one bent half of my nail! #pcosprincess #heds
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Does anyone else need one of every type of beverage at all times? Or is that just a me thing? 🤪❤️‍🩹
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I literally just got up and changed to do this because I was so excited 😅 #adhd #ehlersdanlos #hypermobile #amyhd
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You HAVE to have generalized joint hypermobility to have Hypermobile type Ehlers Danlos Syndrome. It would be a grave disservice to not talk about hypermobility when talking about HYPERMOBILE TYPE Ehlers Danlos Syndrome.
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