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Hypermobility EDS makes my body feel like it’s going shatter. #heds #chronicillness #womenshealth
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Hypermobility Spectrum Disorder #hsd #heds #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome #lupuswarrior🦋💜 #sle #lupus
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#heds #hypermobility #ehlersdanlossyndrome #dysautonomia #posturalorthostatictachycardiasyndrome #pots #chronicillness #doctorsoftiktok
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#hypermobility #heds #pots #nervoussystem #dysautonomia
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Did you know 40% of people with Ehlers Danlos have sleep apnea? #sleepstudy #ehlersdanlos #hypermobility #heds #chronicillness
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Mobility & stability work is my first recommendations to baddies trying to grow a relationship with their bodies. Dissociation can alienate us from our body and it takes small moments of consistency & love to build any relationship. My body is always STIFF from constantly bracing from hEDS/hype
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EDS skin symptoms that…
People don’t talk about because they aren’t fun party tricks. There’s a misconception that Ehlers-Danlos is a disorder that allows people to perform cool tricks, and while many of us can, this misconception overshadows the plethora of other symptoms we experience. #ehlersdanlossyndrome #hype
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I called 4 different doctors in my area and none could help me! I had an appointment with my primary who said he didn’t feel confident in diagnosing me but he would send a referral were it needed to go. I spoke with 3 rheumatologists (one of which previously took EDS patients but doesn’t now) a
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Happy EDS awareness month 🤠 #ehlersdanlos #pots #mcas #pentadsupersyndrome #connectivetissuedisorder #partytricks #systemicmastocytosis #edsawareness #hypermobility #hEDS #HSD #doublejointed #thethumbthing
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Think you’re hypermobile? Try these 👀
If this looks familiar, you’re not alone. Save this & talk to a provider who understands hypermobility. #hypermobility #ehlersdanlossyndrome #chronicillness #heds
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“I have a good doctor you should see” 😇 #edsawareness #ehlersdanlos #mcas #pots #pentadsupersyndrome #hEDS #hypermobility #hsd #postviralsyndrome #ctd #connectivetissueissue #autoimmune #dysautonomia #genetics #disability
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Replying to @MLUUUU one thing about me, I got a death grip girl down there and that’s on dysautonomia 😅😅😅 #dysautonomia #pelvicfloor #hypermobility #heds #pots #neurodivergent #audhd
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Ehlers Danlos skin up close 🕵🏻
What is Ehlers Danlos? Ehlers Danlos is a connective tissue disorder where one’s body does not make collagen properly, resulting in stretchy/thin skin, joint hypermobility, and a wide array of other symptoms. Ehlers Danlos is responsible for a lot of my body’s features: Deepset, hollow eyes with
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PAGE ANNOUNCEMENT
Hi. It's been a while. 😅 Before tiktok got shut down (for like a day) and came back up, I thought I was doing an okay job managing my chronic illnesses, neurodivergencies, and handling all of my cosplay socials while still doing real life stuff like work and housekeeping. In actuality I was in
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Crazy what goes through some people’s brains. I can’t even wear a brace without having it tied back to something sexual? That’s CRAZY. News flash, my disability isn’t for your pleasure 🧐 #isabarbella #neckpain #neckbrace #invisibleillness #invisibledisability #chronicpain #chronicp
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Showdown: Epilepsy vs hEDS
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its not a gangster lean its just my scoliosis
#gettoknowme #scoliosis #hypermobility #heds #chronicillness
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Just me and my go-go-gadget-joints against the world ✨ #hypermobility #professionaldancer #physicaltherapy #jointhealth #dancertok
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Not all doctors are very helpful, unfortunately. Sometimes, it can take multiple opinions until you find a doctor that really knows what they’re talking about. Trust your gut. If what your doctor says doesn’t sound right - I recommend getting a second opinion to double check. 🥰
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Replying to @skydivepanda27 #dysautonomia #autism #audhd #adhd #braindamage #autisticburnout #pots #mcas #eds #heds #hypermobility
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Folks with connective tissues disorders struggle with grounding more than anyone talks about and this is why people with heds struggle with the root chakra. #heds #connectivetissuedisorder #grounding #hypermobility #rootchakra
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Replying to @Amy | PNW HMUA there is also an EDS clinic at OHSU or at least used to be bc I remember my mom going there after she was diagnosed #pots #dysautonomia #chronicillness #hypermobility #heds #ehlersdanlossyndrome #neurodivergent #gastroperesis #seattle
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Here are some signs you should see a geneticist for Ehlers-Danlos 🧬 Hyperflexed joints Soft & stretchy skin Easy bruising Slow wound healing Fragile tissue Chronic pain Joints dislocating Fatigue Family history Getting your genes tested can rule out other causes of these symptoms or co
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Can you do any of these? 🎥 @wemblymofoundation1 #mobility #doctorexplains #hypermobility #interestingfacts
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Did you know this is possible? #hypermobility #dislocation #injury #doctorexplains
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Talking on TikTok: Day 4/30 No filters, no trending sounds, just real life. I’ve been feeling like a fitness fraud for a while now due to my invisible disability and I just wanted to talk about it in case anyone out there can relate. If you’re struggling, just know that I see you and I’m sen
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These are two of my favorite natural supplements for histamine intolerance! #histamineintolerance #mcas #mastcellactivationsyndrome #estrogendominance #pcos #supplements #herbs #fypシ #fypage #fypシ゚viral #fyp #fyppppppppppppppppppppppp #ehlersdanlos #hypermobility #endometriosis
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This is life with hypermobile EDS! I’ve been having trouble squeezing bottles/containers, so I’ve been squeezing them with my foot! This is reality for me and if it’s reality for you too, just know you’re safe here 🩷 #isabarbella #invisibledisability #invisibledisabilityawareness #hyp
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🔥 Friday Class = Elite Training Only 🔥 This session is reserved for advanced dancers who bring full mental awareness and adaptability to the floor. Every drill is rooted in biomechanics and structured progression no wasted movement, just results. We’re focusing on the signature band exercises y
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#hypermobileehlersdanlossyndrome #hypermobilespectrumdisorder
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Examples of underlying causes include: Ehlers Danlos Syndrome, Marfan Syndrome, Osteogenesis Imperfecta, Hypermobility Spectrum Disorder, and more. ❤️🩹
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I feel like everytime I make a video about this, I make things more confusing - does this make sense? 😫 let me know! ❤️🩹 #greenscreen
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NOT MEDICAL ADVICE Further research is needed in this area but this is based on my research and my personal experience. #histamineintolerance #pmdd #zyrtec #estrogendominance #ehlersdanlosawareness #ehlersdanlossyndrome #hypermobility #mcas #mastcellactivationsyndrome #endometriosi
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Bsffr 😭😭😭 #sydneysweeney #genetics #olebrandselect #fyp #jeans #eds #pots #geneticdiseaseawareness #heds #hypermobility #jointdislocations #americaneagle #aerie #genes
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Replying to @lauren🎗️ how do yall feel about starting the workout program on Monday? #ehlersdanlos #ehlersdanlossyndrome #workout #hypermobility #pots
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bottom loaded push through teaser ♥️ Amazing exercise for those who are hyper mobile or have scoliosis 🫶🏽 #pilates #cadillacpilates #hypermobility #teaser #beginnerpilates #pilatesstudio #lululem #aubrionnaprice #fyppppppppppppppppppppppp
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HEDS, Over and Under my Skin
A story about my experiences, about the way that my disability can effect me and the way I experience life. #storytime #lemon8contest #disabled #disabilitypride #disabilityawareness #hypermobileehlersdanlos #hypermobility
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Happy Ehlers Danlos Syndrome Awarenes Month!
EDS is an invisible disorder affecting connective tissue. I was diagnosed at 17 (I am now 24) & live with daily struggles. I have POTS with my EDS causing other cardio troubles every day. I have hEDS, which is the hypermobility type of this condition. I am hypermobile, while it can be cool if c
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And I live with chronic pain❤️
I’m new hehe #chronicpain #hypermobility
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Have you seen this condition before? 🎥 mari_tovt on IG #medical #doctorexplains #joints #conditions
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Working out with ADHD
Working out with ADHD can present its own special challenges. Keeping track of reps, being aware of your body, staying present, and slowing down can all be challenges for us. Beyond that, ADHDers are more likely to have a plethora of conditions from hypermobility to dysautonomia to migraines
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This is the first time I’ve gone into discussing my rare diseases. I hope to spread more awareness of what I have and explain my journey to you. It seems more and more people are being diagnosed with rare and chronic illnesses. Hopefully this video may help those who relate feel seen or comfort. #
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hEDS Awareness
I live with this everyday of my life. I struggle daily with chronic pain but I am still going. I hope whoever needs to see this, I hope it will inspire you to continue to push, no matter how bad you feel, there is always a positive among the negatives. You just have to look for it. #heds #traum
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